It is a sad fact that many people suffer from epilepsy or have family or friends with epilepsy. Yet so few sufferes or their family are aware of the risk of S.U.D.E.P (Sudden Unexpected Death in Epilepsy)
I lost my brother Nathan to this condition just less than three years ago. He had suffered with epilepsy for many years, yet neither he himself, or his wife or family were ever told of the risk of S.U.D.E.P.
It is my ambition to raise awareness of this condition and of inform people of potential risk preventions.
I am keen to establish a National Day for S.U.D.E.P Awareness. If you or your family or friends have been touched by S.U.D.E.P or epilepsy please sign this petition to raise awareness through a National day.
Thank you for your support,
Roy Grimes
The medical establishment kept us in the dark about the risks for far too long. This momentum proves that families are done being ignored by those who refuse to talk about SUDEP.
Reached 100 supporters
December 3, 2009
6 Comments
M
Mark Pearce
17 years ago
Featured
Why do doctors keep quiet about this? It is incredibly frustrating that families are left in the dark until tragedy strikes. Change this now.
T
Tom Reeves
17 years ago
Featured
Awareness saves lives. Nobody should have to go through what you went through without warning. Good luck.
S
Sarah Griffin
17 years ago
Featured
Lost my cousin to this last year. We had no idea this was even a thing until it was too late. People need to know so they can protect their loved ones.
D
David Mensah
17 years ago
Featured
SO IMPORTANT. Nobody told us either.
R
Rachel McKenzie
17 years ago
Featured
I had no idea this existed and I have epilepsy. Scary stuff. Please keep pushing for this.
L
Lisa Preston
17 years ago
Featured
My heart goes out to you Roy. This is so overdue. We need this day to get the info out there.
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250 signatures.
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It is a sad fact that many people suffer from epilepsy or have family or friends with epilepsy. Yet so few sufferes or their family are aware of the risk of S.U.D.E.P (Sudden Unexpected Death in Epilepsy)
I lost my brother Nathan to this condition just less than three years ago. He had suffered with epilepsy for many years, yet neither he himself, or his wife or family were ever told of the risk of S.U.D.E.P.
It is my ambition to raise awareness of this condition and of inform people of potential risk preventions.
I am keen to establish a National Day for S.U.D.E.P Awareness. If you or your family or friends have been touched by S.U.D.E.P or epilepsy please sign this petition to raise awareness through a National day.
Thank you for your support,
Roy Grimes
The medical establishment kept us in the dark about the risks for far too long. This momentum proves that families are done being ignored by those who refuse to talk about SUDEP.
Reached 100 supporters
December 3, 2009
6 Comments
M
Mark Pearce
17 years ago
Featured
Why do doctors keep quiet about this? It is incredibly frustrating that families are left in the dark until tragedy strikes. Change this now.
T
Tom Reeves
17 years ago
Featured
Awareness saves lives. Nobody should have to go through what you went through without warning. Good luck.
S
Sarah Griffin
17 years ago
Featured
Lost my cousin to this last year. We had no idea this was even a thing until it was too late. People need to know so they can protect their loved ones.
D
David Mensah
17 years ago
Featured
SO IMPORTANT. Nobody told us either.
R
Rachel McKenzie
17 years ago
Featured
I had no idea this existed and I have epilepsy. Scary stuff. Please keep pushing for this.
L
Lisa Preston
17 years ago
Featured
My heart goes out to you Roy. This is so overdue. We need this day to get the info out there.
Help this petition grow
Share it with friends to help reach
250 signatures.
Sign Petition
We never post to your account. Social sign-in is used only to verify your signature.
or sign with Email
Add a comment?
Your signature will be added via . Tell others why you're signing — it's optional.
Signing with Google or Facebook verifies your signature instantly — no email needed.
Why do doctors keep quiet about this? It is incredibly frustrating that families are left in the dark until tragedy strikes. Change this now.