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Implement a National Day of S.U.D.E.P Awareness

Implement a National Day of S.U.D.E.P Awareness

115 signatures 135 to reach 250
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Started by Anonymous 17 years, 3 months ago
It is a sad fact that many people suffer from epilepsy or have family or friends with epilepsy. Yet so few sufferes or their family are aware of the risk of S.U.D.E.P (Sudden Unexpected Death in Epilepsy) I lost my brother Nathan to this condition just less than three years ago. He had suffered with epilepsy for many years, yet neither he himself, or his wife or family were ever told of the risk of S.U.D.E.P. It is my ambition to raise awareness of this condition and of inform people of potential risk preventions. I am keen to establish a National Day for S.U.D.E.P Awareness. If you or your family or friends have been touched by S.U.D.E.P or epilepsy please sign this petition to raise awareness through a National day. Thank you for your support, Roy Grimes

Updates

December 3, 2009

The medical establishment kept us in the dark about the risks for far too long. This momentum proves that families are done being ignored by those who refuse to talk about SUDEP.

Reached 100 supporters

December 3, 2009

6 Comments

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Mark Pearce
17 years ago Featured

Why do doctors keep quiet about this? It is incredibly frustrating that families are left in the dark until tragedy strikes. Change this now.

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Tom Reeves
17 years ago Featured

Awareness saves lives. Nobody should have to go through what you went through without warning. Good luck.

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Sarah Griffin
17 years ago Featured

Lost my cousin to this last year. We had no idea this was even a thing until it was too late. People need to know so they can protect their loved ones.

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David Mensah
17 years ago Featured

SO IMPORTANT. Nobody told us either.

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Rachel McKenzie
17 years ago Featured

I had no idea this existed and I have epilepsy. Scary stuff. Please keep pushing for this.

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Lisa Preston
17 years ago Featured

My heart goes out to you Roy. This is so overdue. We need this day to get the info out there.

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