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Show your rare, Show you care! (Rare Diseases Day)

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What is rare disease day?

Since 2008, Rare Disease Day (RDD) has been held annually on the last day of February. Bringing together physicians, patient organizations, researchers, medical companies, and of course, rare disease patients from around the world; RDD is a unique opportunity to raise awareness and bring support to the community.

Why raise awareness?

The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases, and their impact on patients' lives. It's never too late to get involved!

Why is it important?

It is important to improve understanding and awareness of rare diseases, not only on Rare Disease Day, in the hope that we can better support patients living with these conditions.

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