Restore Funding for Tourette Syndrome Services in PA
85 Comments
C
Cheryl Malloy
7 years ago
Please restore funding without the supports at age 5 my son would not be the independent young man at 18 he has become.
S
ShellyLaPorta
7 years ago
Funny how nothing is ever important until their family needs it
L
Lesley Geyer
7 years ago
PATSA does so much with so little. Please continue our funding.
S
Stefanie Morgan
7 years ago
Finding is needed to support the PA Tourette Syndrome Alliance...the community outreach programs that they are able to offer have been invaluable in our lives. My 15 year old son has battled Tourette’s syndrome since he has been 2 years old. The training and education PATSA gave my son’s teachers and peers have enabled him to be successful both academically and socially in school and the community.
D
Dennis Morgan
7 years ago
I would love to see what is included in the budget and the funding that was eliminated.
J
jack chambers
7 years ago
During my childhood many years ago TS was unknown to doctors, teachers, and the general public. Today, thanks to TS Symptoms Alliance, the tics are recognized by most, but not all. Don't defund this needed organization.
B
Brinton Culp
7 years ago
PATSA has meant so much to my family. They are an amazing resource and support that help so many who have Tourette Syndrome. Please reinstate funding for this important organization.
J
Jane Vogel
7 years ago
Featured
Mother of 43 Year old who has ongoing problems because of Tourette Syndrome. The disorder does not go away because the person becomes an adult. It is life long! PA TSA needs continued funding to help these people.
R
rosa hatch
7 years ago
If it weren't for the caring and compassion for the people at PATSA my son would not have gotten the help he needed for school, and my husband and I gained so much knowledge from them to help our family live with Tourettes. Please keep funding this amazing program so more families can benefit from their program.
K
Karen Spies
7 years ago
My son is going to be 40 years old this year and I found the people working for the TS Alliance when he was diagnosed at 11. Their assistant is beyond words- the hours they spent reassuring and educating about Tourette Syndrome were life-lines keeping me on an even plane. With everything they taught me and the seminars that I attended I was then able to go into communities in my area and pay it forward for other Tourette Syndrome families.
I spent time educating the local police on how to handle TS clients when their encountered in traffic stops. I set up an education seminar for local social & educational services that dealt with children. Plus so much more the Tourette’s association out of Gettysburg main goal has always been in my estimation education and support. My husband stayed in the home, (many times the father leave due to stress) and my son got his Masters in Fine Arts (he lives with us but he is happy).
Please support the Tourette Syndrome Alliance they help save our family inturn they help society.
L
Lesley Homer
7 years ago
My son has Tourette syndrome. Please do not eliminate state funding for the PA Tourette Syndrome Alliance in your next budget.
C
Cheryl Ann Roode
7 years ago
I have 3 children with Tourette Syndrome. The Pennsylvainia Tourette Syndrome Alliance has been a lifesaver for family over the last 10 years. Without them our quality of life would have been affected severely. They are a tremendous resource for struggling families. Please restore funding to this organization which serves an underserved and misunderstood population.
S
Susan Lutz
7 years ago
TSA is a great organization which helps children and adults.
J
Jake Hudgeons
7 years ago
THIS ORGANIZATION HAS HELPED ME AND MY FAMILY GET THROUGH LIFE- PLEASE!
L
Lindsay Glass
7 years ago
I am an individual with TS who has volunteered with PA-TSA for years now. I am a graduate student and understand how important it is to advocate not only for one's own needs but others. Unfortunately, I didn't receive PA-TSA's support in school because I wasn't aware of them. By the time I knew of them- I was out of school and started volunteering with them because the cause is near and dear to my heart. I see so many children at camp each year that feel accepted and have fun despite their tics, and this is wonderful considering how tough it is when the real world doesn't accept them at home or in school. This camp wouldn't be possible without the funding from PA. Please fund the cause, as it is important for young children to feel accepted and a part of something bigger than themselves. Potentially, these kids may grow up and want to help out as much as I do and volunteer with PA-TSA. That is my hope for those that want to give back. Please support our cause and provide the funding we need to service the families in PA.
M
Marilyn Tocci
7 years ago
It is imperative that the legislature support the alliance's advocacy for children and adults who face the daily struggles of living with Tourette Syndrome.
A
Ann Ficke
7 years ago
My 9 yo son has Tourette Syndrome, an often misunderstood diagnosis. His pediatrician and teachers both benefited from this organization's educational information, retreat and advocacy in the school. I would feel alone and lost without their support, interventions and education. Please provide this wonderful organization with the funding they need.
S
Sharon Rubbo
7 years ago
This funding could not be more important. Please fully fund.
C
Christina MacLean
7 years ago
My son was diagnosed with TS in 2008. We found PATSA in 2012 and have been with them since. My son went from a shy boy who felt like an alien & didn't want anyone knowing that he had TS to now he is a camp counselor at camp, loves being a mentor for the younger kids and he embraces that he has TS. PATSA did this for him and they have done so much for our family and other families. Please reinstate their funding! It is greatly needed across PA!
T
Thomas D Lehmer
7 years ago
Tourette Syndrome can ruin young lives. This disease causes otherwise normal children to be bullied, harassed and made to live in isolation. We need to fund research for this disease to help these children. It is our obligation as a society to protect our children and to give them every opportunity. Please support this research.
Please restore funding without the supports at age 5 my son would not be the independent young man at 18 he has become.
Funny how nothing is ever important until their family needs it
PATSA does so much with so little. Please continue our funding.
Finding is needed to support the PA Tourette Syndrome Alliance...the community outreach programs that they are able to offer have been invaluable in our lives. My 15 year old son has battled Tourette’s syndrome since he has been 2 years old. The training and education PATSA gave my son’s teachers and peers have enabled him to be successful both academically and socially in school and the community.
I would love to see what is included in the budget and the funding that was eliminated.
During my childhood many years ago TS was unknown to doctors, teachers, and the general public. Today, thanks to TS Symptoms Alliance, the tics are recognized by most, but not all. Don't defund this needed organization.
PATSA has meant so much to my family. They are an amazing resource and support that help so many who have Tourette Syndrome. Please reinstate funding for this important organization.
Mother of 43 Year old who has ongoing problems because of Tourette Syndrome. The disorder does not go away because the person becomes an adult. It is life long! PA TSA needs continued funding to help these people.
If it weren't for the caring and compassion for the people at PATSA my son would not have gotten the help he needed for school, and my husband and I gained so much knowledge from them to help our family live with Tourettes. Please keep funding this amazing program so more families can benefit from their program.
My son is going to be 40 years old this year and I found the people working for the TS Alliance when he was diagnosed at 11. Their assistant is beyond words- the hours they spent reassuring and educating about Tourette Syndrome were life-lines keeping me on an even plane. With everything they taught me and the seminars that I attended I was then able to go into communities in my area and pay it forward for other Tourette Syndrome families. I spent time educating the local police on how to handle TS clients when their encountered in traffic stops. I set up an education seminar for local social & educational services that dealt with children. Plus so much more the Tourette’s association out of Gettysburg main goal has always been in my estimation education and support. My husband stayed in the home, (many times the father leave due to stress) and my son got his Masters in Fine Arts (he lives with us but he is happy). Please support the Tourette Syndrome Alliance they help save our family inturn they help society.
My son has Tourette syndrome. Please do not eliminate state funding for the PA Tourette Syndrome Alliance in your next budget.
I have 3 children with Tourette Syndrome. The Pennsylvainia Tourette Syndrome Alliance has been a lifesaver for family over the last 10 years. Without them our quality of life would have been affected severely. They are a tremendous resource for struggling families. Please restore funding to this organization which serves an underserved and misunderstood population.
TSA is a great organization which helps children and adults.
THIS ORGANIZATION HAS HELPED ME AND MY FAMILY GET THROUGH LIFE- PLEASE!
I am an individual with TS who has volunteered with PA-TSA for years now. I am a graduate student and understand how important it is to advocate not only for one's own needs but others. Unfortunately, I didn't receive PA-TSA's support in school because I wasn't aware of them. By the time I knew of them- I was out of school and started volunteering with them because the cause is near and dear to my heart. I see so many children at camp each year that feel accepted and have fun despite their tics, and this is wonderful considering how tough it is when the real world doesn't accept them at home or in school. This camp wouldn't be possible without the funding from PA. Please fund the cause, as it is important for young children to feel accepted and a part of something bigger than themselves. Potentially, these kids may grow up and want to help out as much as I do and volunteer with PA-TSA. That is my hope for those that want to give back. Please support our cause and provide the funding we need to service the families in PA.
It is imperative that the legislature support the alliance's advocacy for children and adults who face the daily struggles of living with Tourette Syndrome.
My 9 yo son has Tourette Syndrome, an often misunderstood diagnosis. His pediatrician and teachers both benefited from this organization's educational information, retreat and advocacy in the school. I would feel alone and lost without their support, interventions and education. Please provide this wonderful organization with the funding they need.
This funding could not be more important. Please fully fund.
My son was diagnosed with TS in 2008. We found PATSA in 2012 and have been with them since. My son went from a shy boy who felt like an alien & didn't want anyone knowing that he had TS to now he is a camp counselor at camp, loves being a mentor for the younger kids and he embraces that he has TS. PATSA did this for him and they have done so much for our family and other families. Please reinstate their funding! It is greatly needed across PA!
Tourette Syndrome can ruin young lives. This disease causes otherwise normal children to be bullied, harassed and made to live in isolation. We need to fund research for this disease to help these children. It is our obligation as a society to protect our children and to give them every opportunity. Please support this research.