My nephew has this and dealing with the tumors is so hard especially when nobody at his school seems to get what he is going through.
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Leslie Carneiro
11 years ago
I have NF. NF does not have me.
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Michael Shearer
· petition starter
11 years ago
Featured
Exactly, and for me especially here in New Zealand, as there are literally, no special support groups for those who have it, and hardly anyone knows about it, which is quite sad.
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Michael Shearer
· petition starter
11 years ago
Featured
Thats unfortunate to hear, only some of my close friends know about it and even an old classmate of mine has it as well. One thing I have done to explain to people how it affects me, is by making a 'Living with NF1' and putting it up on youtube.
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Louise
11 years ago
I have NF1, but none of my friends even know what that is.
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Melissa Marrero
11 years ago
My son lives with this condition we need more awareness!
Good cause.
Raise awareness
For my sister my amazing daughter and myself
For my cousins little girl
For my son.
My nephew has this and dealing with the tumors is so hard especially when nobody at his school seems to get what he is going through.
I have NF. NF does not have me.
Exactly, and for me especially here in New Zealand, as there are literally, no special support groups for those who have it, and hardly anyone knows about it, which is quite sad.
Thats unfortunate to hear, only some of my close friends know about it and even an old classmate of mine has it as well. One thing I have done to explain to people how it affects me, is by making a 'Living with NF1' and putting it up on youtube.
I have NF1, but none of my friends even know what that is.
My son lives with this condition we need more awareness!
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