No help from GP or Health visitor about my baby's head.
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Oleander
7 years ago
I want to help these babies have a better chance in life.
H
Heather William
7 years ago
This should definitely be funded by the NHS
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Chloe Nunn
10 years ago
Featured
I am in exactly the same position, no recognition or help whatsoever. Expected to leave my boy to be deformed and bullied or pay out £2000.
A
Anonymous
10 years ago
Featured
My LG at 6 months has been measured as having severe plagiocephaly combined with brachiocephaly at 88% and 15mm but my GP laughed me out her office today when I asked if I'd ever get to see a paediatrician about it (been waiting since she was 4 months old and haven't even an appointment). Luckily a Sleepcurve mattress is helping the brach a bit with rounding at the back of her head but the asymmetric slant on the top left is still there and her right ear is forward from her left. I've considered paying for a helmet but without enough evidence that it will definitely work for my LG's specific issues, I feel it is a stab in the dark. The NHS should be helping with the option of funding helmets at least and more studies need doing.
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alison taylor
10 years ago
Featured
we just starting our journey and think its unfair we have to pay, when you can get boob jobs and gastric surgery on nhs
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Wiselivingmama .com
11 years ago
My son suffered from this, but I caught it early after terrible advice given by the health visitor. I have written an article on what worked and what didnt work, which you can see here> http://www.wiselivingmama.com/#!Plagiocehaly-Brachycephaly-Flat-Head-SyndromeFind-out-What-Works/c1a1n/C6116F9A-30FE-4E80-B073-2044B83FC7AF I also explain how I reversed it. I used a product called the Mimos Pillow. I am going to be giving away a pillow and pillow case around August ( worth 70 pound or more) on my website, so please do sign up and get the weekly alerts. It is always better to prevent this problem from day 1 than have to fix it after the fact!
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Carey Pullin
11 years ago
Featured
My son has a severe flat head and is having a helmet fitted in 2 weeks time. The NHS are very dismissive, clearly because they do not want to fund this 'cosmetic' procedure, they are unwilling to recognise the potential long term effects. More should be done to raise awareness to prevent so many cases. Health visitors should be better trained on the condition and it should be part of the babies assessment/ growth tracking from 6 weeks old.
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Faye chan
12 years ago
Featured
My daughter has severe flat head and needs a helmet. It should be available on nhs
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maxine illingworth
12 years ago
Featured
My child suffers with this and I find it hard to repostion him especially at night no way can I stay up all night to change his position nhs need to do something about it.. They never tild me about this when I had him which tgey should.
M
Maryelizabeth Shaw
12 years ago
My grandson sufferers with this syndrome
C
Carley moss
12 years ago
How can the NHS justify breast enlargements but not treatment to help our babies ????
No help from GP or Health visitor about my baby's head.
I want to help these babies have a better chance in life.
This should definitely be funded by the NHS
I am in exactly the same position, no recognition or help whatsoever. Expected to leave my boy to be deformed and bullied or pay out £2000.
My LG at 6 months has been measured as having severe plagiocephaly combined with brachiocephaly at 88% and 15mm but my GP laughed me out her office today when I asked if I'd ever get to see a paediatrician about it (been waiting since she was 4 months old and haven't even an appointment). Luckily a Sleepcurve mattress is helping the brach a bit with rounding at the back of her head but the asymmetric slant on the top left is still there and her right ear is forward from her left. I've considered paying for a helmet but without enough evidence that it will definitely work for my LG's specific issues, I feel it is a stab in the dark. The NHS should be helping with the option of funding helmets at least and more studies need doing.
we just starting our journey and think its unfair we have to pay, when you can get boob jobs and gastric surgery on nhs
My son suffered from this, but I caught it early after terrible advice given by the health visitor. I have written an article on what worked and what didnt work, which you can see here> http://www.wiselivingmama.com/#!Plagiocehaly-Brachycephaly-Flat-Head-SyndromeFind-out-What-Works/c1a1n/C6116F9A-30FE-4E80-B073-2044B83FC7AF I also explain how I reversed it. I used a product called the Mimos Pillow. I am going to be giving away a pillow and pillow case around August ( worth 70 pound or more) on my website, so please do sign up and get the weekly alerts. It is always better to prevent this problem from day 1 than have to fix it after the fact!
My son has a severe flat head and is having a helmet fitted in 2 weeks time. The NHS are very dismissive, clearly because they do not want to fund this 'cosmetic' procedure, they are unwilling to recognise the potential long term effects. More should be done to raise awareness to prevent so many cases. Health visitors should be better trained on the condition and it should be part of the babies assessment/ growth tracking from 6 weeks old.
My daughter has severe flat head and needs a helmet. It should be available on nhs
My child suffers with this and I find it hard to repostion him especially at night no way can I stay up all night to change his position nhs need to do something about it.. They never tild me about this when I had him which tgey should.
My grandson sufferers with this syndrome
How can the NHS justify breast enlargements but not treatment to help our babies ????