Updates
Reached 500 supporters
April 30, 2011
March 28, 2011
The momentum is incredible. This is clearly a priority for so many families.
December 21, 2010
100 signatures reached. This shows families are tired of being ignored.
Reached 100 supporters
December 20, 2010
December 17, 2010
We are approaching the first hundred signatures. Push this out now to cross that threshold.
12 Comments
My LG at 6 months has been measured as having severe plagiocephaly combined with brachiocephaly at 88% and 15mm but my GP laughed me out her office today when I asked if I'd ever get to see a paediatrician about it (been waiting since she was 4 months old and haven't even an appointment). Luckily a Sleepcurve mattress is helping the brach a bit with rounding at the back of her head but the asymmetric slant on the top left is still there and her right ear is forward from her left. I've considered paying for a helmet but without enough evidence that it will definitely work for my LG's specific issues, I feel it is a stab in the dark. The NHS should be helping with the option of funding helmets at least and more studies need doing.
we just starting our journey and think its unfair we have to pay, when you can get boob jobs and gastric surgery on nhs
My son has a severe flat head and is having a helmet fitted in 2 weeks time. The NHS are very dismissive, clearly because they do not want to fund this 'cosmetic' procedure, they are unwilling to recognise the potential long term effects. More should be done to raise awareness to prevent so many cases. Health visitors should be better trained on the condition and it should be part of the babies assessment/ growth tracking from 6 weeks old.
My daughter has severe flat head and needs a helmet. It should be available on nhs
My child suffers with this and I find it hard to repostion him especially at night no way can I stay up all night to change his position nhs need to do something about it.. They never tild me about this when I had him which tgey should.
No help from GP or Health visitor about my baby's head.
I want to help these babies have a better chance in life.
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Updates
Reached 500 supporters
April 30, 2011
March 28, 2011
The momentum is incredible. This is clearly a priority for so many families.
December 21, 2010
100 signatures reached. This shows families are tired of being ignored.
Reached 100 supporters
December 20, 2010
December 17, 2010
We are approaching the first hundred signatures. Push this out now to cross that threshold.
12 Comments
I am in exactly the same position, no recognition or help whatsoever. Expected to leave my boy to be deformed and bullied or pay out £2000.
My LG at 6 months has been measured as having severe plagiocephaly combined with brachiocephaly at 88% and 15mm but my GP laughed me out her office today when I asked if I'd ever get to see a paediatrician about it (been waiting since she was 4 months old and haven't even an appointment). Luckily a Sleepcurve mattress is helping the brach a bit with rounding at the back of her head but the asymmetric slant on the top left is still there and her right ear is forward from her left. I've considered paying for a helmet but without enough evidence that it will definitely work for my LG's specific issues, I feel it is a stab in the dark. The NHS should be helping with the option of funding helmets at least and more studies need doing.
we just starting our journey and think its unfair we have to pay, when you can get boob jobs and gastric surgery on nhs
My son has a severe flat head and is having a helmet fitted in 2 weeks time. The NHS are very dismissive, clearly because they do not want to fund this 'cosmetic' procedure, they are unwilling to recognise the potential long term effects. More should be done to raise awareness to prevent so many cases. Health visitors should be better trained on the condition and it should be part of the babies assessment/ growth tracking from 6 weeks old.
My daughter has severe flat head and needs a helmet. It should be available on nhs
My child suffers with this and I find it hard to repostion him especially at night no way can I stay up all night to change his position nhs need to do something about it.. They never tild me about this when I had him which tgey should.
No help from GP or Health visitor about my baby's head.
I want to help these babies have a better chance in life.
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I am in exactly the same position, no recognition or help whatsoever. Expected to leave my boy to be deformed and bullied or pay out £2000.