You have helped to increase awareness about this. I agree with the work you are doing in making people aware of the need.
J
John Redmond
12 years ago
I agree with this
K
Kathy Montgomery
12 years ago
With all the technology out there, we need to find a way to stop these rare diseases. My brother died from CADASIL. I don't want to see this happen to anyone else.
M
Michelle
12 years ago
CADASIL killed my dad and robbed him of so much of life
A
Anonymous
12 years ago
My husband suffered from CADASIL, was misdiagnosed and treated for MS for several years before a MS neurologist determined immediately upon seeing him, that he probably had CADASIL, definitely not MS. Most doctors still are unaware of this disease. It is time to raise awareness and teach doctors about it. IO believe it may not be as rare as they think, due to them not being aware of the disease. We are certain my husband's mother had it, but at that time no one knew of it.
J
Jennifer Costner
12 years ago
we need to raise awareness, educate the medical professionals and the general public. With this we will closer to findimg a treatment or cure.
D
Donna Martin
12 years ago
Physicians need to work with patients and caregivers as a team.
A
Anne Wignall
12 years ago
Those who are suffering the most end up having to become their own best and most informed advocates.
B
Barbara Hunt
12 years ago
Drs. need training to look beyond the obvious so people with rare diseases do not spend years trying to get a diagnosis.
B
Bethany Taylor
12 years ago
my husband was misdiagnosed for 5years
A
Anonymous
12 years ago
I believe that many more cases would be discovered if the medical community were better informed and equipped to diagnose these so called"rare" diseases.
F
Frederica M Schillling
12 years ago
Featured
The earlier the diagnosis the better the prognosis. Please teach doctors to recognize rare diseases. No one likes to go to a doctor and have to educate them about the disease they have, like I have to do all the time, as do many others with Rare Diseases.
Please sign and share
This is so important in so many lives......
yes let's find a cure
I just went to my G.P. Dr. And told her that they need to learn about CADASIL before commenting on something they no nothing about.
Let's find a cure !
[email protected]
husband to a sufferer of CADASIL
I definitely support this cause
You have helped to increase awareness about this. I agree with the work you are doing in making people aware of the need.
I agree with this
With all the technology out there, we need to find a way to stop these rare diseases. My brother died from CADASIL. I don't want to see this happen to anyone else.
CADASIL killed my dad and robbed him of so much of life
My husband suffered from CADASIL, was misdiagnosed and treated for MS for several years before a MS neurologist determined immediately upon seeing him, that he probably had CADASIL, definitely not MS. Most doctors still are unaware of this disease. It is time to raise awareness and teach doctors about it. IO believe it may not be as rare as they think, due to them not being aware of the disease. We are certain my husband's mother had it, but at that time no one knew of it.
we need to raise awareness, educate the medical professionals and the general public. With this we will closer to findimg a treatment or cure.
Physicians need to work with patients and caregivers as a team.
Those who are suffering the most end up having to become their own best and most informed advocates.
Drs. need training to look beyond the obvious so people with rare diseases do not spend years trying to get a diagnosis.
my husband was misdiagnosed for 5years
I believe that many more cases would be discovered if the medical community were better informed and equipped to diagnose these so called"rare" diseases.
The earlier the diagnosis the better the prognosis. Please teach doctors to recognize rare diseases. No one likes to go to a doctor and have to educate them about the disease they have, like I have to do all the time, as do many others with Rare Diseases.