my daughter was diagnosed months ago and has still to find a doctor that knows enough to help her.m
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Diane
12 years ago
I was diagnosed with cadasil in 2011.
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Wanda Johnson
12 years ago
Diagnosed in 2004 symptoms since 1997
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Anonymous
12 years ago
Featured
My grandmother suffered for 20 years and no doctor could figure out why she was having repeated strokes. It wasn't until my mother spent weeks being transferred from one hospital to another before she was finally diagnosed with CADASIL. I no longer want it to take 20 years or doctors from many different hospitals to be able to make this diagnosis.
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Terence white
12 years ago
I have Cadasil
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Emily Tyler
12 years ago
My friend was misdiagnosed with MS because Cadasil mimics it in several ways. She was going in circles for months b/c doctors were not educated enough about this disease. She has yet to find a doctor who can help her properly manage her symptoms. This is unfair to her & her family. Please help people receive the knowledge to help patients with this horrible disease.
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Lori Rolovich
12 years ago
Let's find a cure!
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Joseph kingston
12 years ago
Someone help me with rare and crippling disease with I been suffering since 2000! My first stroke was at forty then I had my second 5months later
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Ann Marie Kingston
12 years ago
Hope to find a cure for cadasil!
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Janice Ragazzo
12 years ago
It is so important that new medical practitioners are aware of the different rare diseases that exist so that they will be able to make more correct diagnosis.
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Stavroula Pafitou
12 years ago
The medicine companies should reasearch more about rare diseases. Surprisngly, rare diseases can often be found around one's environment (friends, family, neighbours). If rare situations get faced as one idnividual condition (as one market branch), the opportunities are endless for both: the companies and the patients!
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Theodoros Kixem
12 years ago
Featured
I am a medical student and i havent seen CADASIL to neurology book! So if you havent heart the disease you will not think about it when it comes! ISo you will also think CADASIL when a 40yrs old person comes with migraine, TIA, mood disorders, dementia +- pseudobulbar palsy. And family history is very IMPORTANT!
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Stavroula Pafitou
12 years ago
Featured
Greeting from Cyprus. My mother was diagnosed with CADASIL a few years ago. She is now 56, carrying a record of several TIAs. Rare disieases shall be faced as one condition in the medicine industry and education. I strongly believe that all together we can achieve much more. Hope is still there. Wishing the best to everyone..!
my daughter was diagnosed months ago and has still to find a doctor that knows enough to help her.m
I was diagnosed with cadasil in 2011.
Diagnosed in 2004 symptoms since 1997
My grandmother suffered for 20 years and no doctor could figure out why she was having repeated strokes. It wasn't until my mother spent weeks being transferred from one hospital to another before she was finally diagnosed with CADASIL. I no longer want it to take 20 years or doctors from many different hospitals to be able to make this diagnosis.
I have Cadasil
My friend was misdiagnosed with MS because Cadasil mimics it in several ways. She was going in circles for months b/c doctors were not educated enough about this disease. She has yet to find a doctor who can help her properly manage her symptoms. This is unfair to her & her family. Please help people receive the knowledge to help patients with this horrible disease.
Let's find a cure!
Someone help me with rare and crippling disease with I been suffering since 2000! My first stroke was at forty then I had my second 5months later
Hope to find a cure for cadasil!
It is so important that new medical practitioners are aware of the different rare diseases that exist so that they will be able to make more correct diagnosis.
The medicine companies should reasearch more about rare diseases. Surprisngly, rare diseases can often be found around one's environment (friends, family, neighbours). If rare situations get faced as one idnividual condition (as one market branch), the opportunities are endless for both: the companies and the patients!
I am a medical student and i havent seen CADASIL to neurology book! So if you havent heart the disease you will not think about it when it comes! ISo you will also think CADASIL when a 40yrs old person comes with migraine, TIA, mood disorders, dementia +- pseudobulbar palsy. And family history is very IMPORTANT!
Greeting from Cyprus. My mother was diagnosed with CADASIL a few years ago. She is now 56, carrying a record of several TIAs. Rare disieases shall be faced as one condition in the medicine industry and education. I strongly believe that all together we can achieve much more. Hope is still there. Wishing the best to everyone..!