Petition for a Course in Rare Diseases

The progresison of rare diseases are often influenced by secondary, downstream issues related to mitochondrial dysfunction. Dr Kathi Maschhoff, MD, PhD and I have formed Mitergy, LLC to address hos to slow progression when mitochondrial dysfunction takes a more dominant role during disease progression..

I was diagnosed with CADASIL last year after a TIA. I'm doing well, but it's frustrating not being able to find doctors who know of this. Hope this petition helps.

I have not been tested for cadasil, however we have recently found out that my father had cadasil. we found this out when my brother was diagnosed. As I said I have not been tested because I see no need. I have the same symptoms and have been told by my neurologist that given the family history and the symptoms it is almost positive that I have cadasil. From what little I have found out it appears that many of these rare diseases are somewhat similar and I feel that when one is cured it will be like a domino effect. The cure for one will hasten the cure for others.

My mother was diagnosed with cadasil. Because of dna it might also pass to me and my simblings as well. It is a need that everyone be aware and concerned in raising constant research over rare diseases.

Im from Brazil and almost 20 years was detected that my mom has this disease.

My husband and both daughters have it.

I have been diaignosed with this rare disease

I am a cadasil patient and so are my three children

Husband diagnosed with Cadasil after over 40 years of pain, strokes etc

Everyone should know what Cadasil is - I have spoken to health professionals who have never heard of it!!

I have signed

The more people that sign, the more awareness it raises

research needed asap

I have CADASIL

Let's get this disease identified NOW

Awareness and research is urgently needed!

I have CADASIL

Wife diagnosed with Cadasil

Something that affects so many people should be included in the curriculum.

Please let's get something done to help