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Petition for a Course in Rare Diseases

153 Comments

R
Roberta
11 years ago

Help...from Italy..

N
nuala o donnell
11 years ago

need to know more about this conditition as i am being investigated at present

S
Susie Ratledge
11 years ago

I have a friend who was just diagnosed with CADASIL. Had never heard of it and am now trying to gather information to help him.

A
Andrea Skelly
11 years ago

Showing Support for Tiffany Barati. Go Girl!

F
Frederica M Schillling
11 years ago

It would be wonderful to have doctors who know what you are talking about when you tell them you have a rare disease. We as patients are very frustrated when constantly hearing "You have what? I've never heard of that." How can we have conficendence in the medical field if they are not even interested in learning a little about those of us who are rare.

M
Marjorie Luppens
11 years ago

I have 2 rare disorders and doctors do not know how to treat me.

C
Cheong Yee Ling
12 years ago

Please help find a cure ASAP

C
Connie Querec
12 years ago

Lets help get the word out..

J
Jessica Milford
12 years ago

Good luck!

L
Lizbeth Giha
12 years ago

When did this petition started?

K
Kevin Wright
12 years ago

We need to do more to help people that struggle with this! My prayers go out to the people and for a natural cure!

T
Tiffany Barati
12 years ago

Thankyou Shannon for your support

T
Tiffany Barati
12 years ago

Thankyou to all my friends and family for taking the time to sign our petition.. Yes I have CADASIL but Cadasil doesn't have me!!! We will find a cure and we will spread awareness to everyone..

S
Shannon K. Conley
12 years ago

for my dear friend Tiffany

T
Taryn Fox
12 years ago

My sister had Cadasil! Would love to see a cure!!!

M
Michele Grogan
12 years ago

Please help SIGN

J
Jess
12 years ago

For Tiff

J
julie hilligoss
12 years ago

this is a horrible thing and i pray more awareness is brought to cadasil.... i refuse to let my friend go through this alone.

L
Lorenda Bourke
12 years ago

K
Kathy Maloney
12 years ago

Doctors need to know!!