PETITION MAJOR MEDIA OUTLETS TO DO A FEATURE ON ME/CFS
316 Comments
C
Carri
5 years ago
Please give a voice to ME/CFS sufferers. Post-viral chronic illness is NOT new and we need HELP!
L
Linda Odgers
5 years ago
This disease needs to be made known to the general public! Please!
S
Sallie Rediske
5 years ago
Please report the real story behind this terrible disease!
V
valerie Evans
5 years ago
This illness is forgotten:( it’s severs debilitating and lifelong.We are left to suffer and doctors still believe it’s all in our heads which it clearly has been proven by science and research is not.
J
Jemma Lee
5 years ago
Featured
I've had ME for over three decades but only diagnosed in 2016. I'm one of 600,000 Canadians with MEcfs. We need to be heard and seen and we need research and treatment options. Our illness is real and affects more people in Canada than MS, Parkinson's and HIV combined.
J
J Johnson Barbara
5 years ago
This illness needs to be brought to the public’s. attention. A lot of people have been diagnosed with MS by mistake . Please help !
J
Jaunny Luta
5 years ago
60 Minutes, PLEASE RECOGNIZE THAT LONG COVID IS ME/CFS! IT'S BEEN AROUND FOR DECADES AND PEOPLE ARE SUFFERING BY THE MILLIONS! Thanks!
D
Debbie Stewart
5 years ago
I am 52 and from Halifax Nova Scotia. I am medically retired from a career in nursing. 'ME' has taken over my life. I no longer enjoy the simple things in life...I used to love life...and be happy -go-lucky and an active member of society...but that is all gone....Every day is filled with severe body aches and throbbing pain and pins and needles in my extremities, debilitating migraines, balance issues, unable to walk any distance without help of some kind, short term memory loss and confusion, severe brain fog that leaves me searching for words to form a basic sentence. I have isolated myself from other people and family members rather then try to explaine what is wrong...This disease has destroyed my life and I wouldn't wish it on my worst enemy....
S
Scott Johnson
5 years ago
It is time physicians start acknowledging this debilitating disease and/or stop misdiagnosing people that have it. Covid has been around for less than a year, and because people made it political, that's where the focus has been placed.
D
Donna Wright
5 years ago
After 5 years of different symptons, slowly draining the life from me a rhymotoligist at John's Hopkins in Baltimore said I had Chronic Fatigue Syndrome. "Go home,, he said, there's no treatment, no cure". 30 years now I can barely get out of bed. I would be glad to use what little energy I have to discuss my symptoms with 60 minutes to help bring attention to this disease.
M
Melinda Lipscomb
5 years ago
Post-viral onset ME/CFS from H1N1 in 2009
P
PETER JONGEMA
5 years ago
#millionsmissing
D
Deborah Windsor
5 years ago
I have had ME for 26 years, this is a real and serious disease that is ignored by society and most of the medical profession. We desperately need recognition and help, please help us to have our voices heard.
S
Susan Phillips
5 years ago
I'm one of the many millions who have been ignored. Please, please take notice!
L
Lawana Beard
5 years ago
I suffer from this and so does my mother. My grandmother had all the symptoms, but it was not a diagnosis that exist then.
PLEASE HELP US!
C
Christine G
5 years ago
Words cannot describe how "invisible" I feel having this condition. I've had it for at least the last 5 years. My daughter has had it for half of her life - she is 34 years old. To not be believed by our Doctors and society in general is heart-breaking.
A
Anonymous
5 years ago
Let ME/CFS do the job. Not vaccine, but right treatment.
R
Ria halverson
5 years ago
Featured
I have been battling with M. E AND FIBROMYALGIA for 30 years the treatment I was given made me worse (CBT and GET therapy) I am now unable to work and rely on my husband who is now my carer, this illness has ruined my once very active life. OUR VOICES NEED TO BE HEARD
S
Shirley Palmer
5 years ago
We have suffered enough it's about time we were heard.
R
robert christ
5 years ago
Yep, I've been sick for 25 years. If research dollars were put into finding a cause I'm sure one would be found. Instead government agencies fund bogus studies like pace which make us look like hypochondriacs and shirkers.
Please give a voice to ME/CFS sufferers. Post-viral chronic illness is NOT new and we need HELP!
This disease needs to be made known to the general public! Please!
Please report the real story behind this terrible disease!
This illness is forgotten:( it’s severs debilitating and lifelong.We are left to suffer and doctors still believe it’s all in our heads which it clearly has been proven by science and research is not.
I've had ME for over three decades but only diagnosed in 2016. I'm one of 600,000 Canadians with MEcfs. We need to be heard and seen and we need research and treatment options. Our illness is real and affects more people in Canada than MS, Parkinson's and HIV combined.
This illness needs to be brought to the public’s. attention. A lot of people have been diagnosed with MS by mistake . Please help !
60 Minutes, PLEASE RECOGNIZE THAT LONG COVID IS ME/CFS! IT'S BEEN AROUND FOR DECADES AND PEOPLE ARE SUFFERING BY THE MILLIONS! Thanks!
I am 52 and from Halifax Nova Scotia. I am medically retired from a career in nursing. 'ME' has taken over my life. I no longer enjoy the simple things in life...I used to love life...and be happy -go-lucky and an active member of society...but that is all gone....Every day is filled with severe body aches and throbbing pain and pins and needles in my extremities, debilitating migraines, balance issues, unable to walk any distance without help of some kind, short term memory loss and confusion, severe brain fog that leaves me searching for words to form a basic sentence. I have isolated myself from other people and family members rather then try to explaine what is wrong...This disease has destroyed my life and I wouldn't wish it on my worst enemy....
It is time physicians start acknowledging this debilitating disease and/or stop misdiagnosing people that have it. Covid has been around for less than a year, and because people made it political, that's where the focus has been placed.
After 5 years of different symptons, slowly draining the life from me a rhymotoligist at John's Hopkins in Baltimore said I had Chronic Fatigue Syndrome. "Go home,, he said, there's no treatment, no cure". 30 years now I can barely get out of bed. I would be glad to use what little energy I have to discuss my symptoms with 60 minutes to help bring attention to this disease.
Post-viral onset ME/CFS from H1N1 in 2009
#millionsmissing
I have had ME for 26 years, this is a real and serious disease that is ignored by society and most of the medical profession. We desperately need recognition and help, please help us to have our voices heard.
I'm one of the many millions who have been ignored. Please, please take notice!
I suffer from this and so does my mother. My grandmother had all the symptoms, but it was not a diagnosis that exist then. PLEASE HELP US!
Words cannot describe how "invisible" I feel having this condition. I've had it for at least the last 5 years. My daughter has had it for half of her life - she is 34 years old. To not be believed by our Doctors and society in general is heart-breaking.
Let ME/CFS do the job. Not vaccine, but right treatment.
I have been battling with M. E AND FIBROMYALGIA for 30 years the treatment I was given made me worse (CBT and GET therapy) I am now unable to work and rely on my husband who is now my carer, this illness has ruined my once very active life. OUR VOICES NEED TO BE HEARD
We have suffered enough it's about time we were heard.
Yep, I've been sick for 25 years. If research dollars were put into finding a cause I'm sure one would be found. Instead government agencies fund bogus studies like pace which make us look like hypochondriacs and shirkers.