PETITION MAJOR MEDIA OUTLETS TO DO A FEATURE ON ME/CFS

Long covid is pretty much m. E. By another name. To get to the root of covid long haulers you need to study m. E. Both are post viral illnesses. The m. E Community has been ignored for decades until this pandemic. Check out the open medicine foundation. They are studying both m. E and it's relation to long covid

It's time ME/CFS is recognized as a debilitating and crippling disease

I have ME.

I stand with Scott to bring awareness to ME/CFS as I have been suffering from this disease for nearly a half century. I was so excited when I first started watching Cooper's 60 minute segment on how tragic the lives of the Covid long haulers are; I told my husband I hope he ties the work of Ron Davis at Stanford and The Open Medicine Foundation as they are currently conducting Covid/ME-CFS research and other NIH research projects - but so disappointed when Cooper gave no mention of the post viral tie between the long haulers and the ME/CFS community of millions. It's time to produce a segment update.

Mine was triggered by a viral infection 13 years ago. I never recuperated full functioning. I feel invisible. I am often disbelieved. I could no longer work full time. Why would l fake loss of income and quality of life?

I am now housebound due to me/cfs the world will have to wake up to the millions of people that their life's have been take from them.

It’s unfair and cruel to keep ignoring a disease that has taken autonomy from millions of people!

Changed my life forever

This is so important and shines a light on how our medical community fails us.

We just don’t want to be invisible any longer....

Help

I have ME/CFS and have suffered with it 7 years now. I would not wish it upon anyone. I had a high level career and now practically housebound. Took a long time to adjust to the realities of this condition.

My 19 year old son is bedridden and completely disabled with ME/CFS. He had a respiratory virus when he was 17 that triggered his current condition.

I have not been able to work for five years due to ME/CFS, but have been denied SSDI due to lack of research. Quit abusing those with ME/CFS, you believe Covid Long Haulers, now you need to believe us!!!

Hope my vote helps! There are a lot of such people among my friends!

My symptoms began 49yrs ago aged 11 following a Bornholms disease like virus and the begining of my Endometriosis journey it developed into full blown ME/CFS,/ FMS following a bout of Mononucleosis age 28. It's a lifetime of waiting.

I have struggled with this for 35 years witn no interest and often disdain and disbelief from medics . Insubstantial psychological studies diverted researchers from doing real scientific research. It has taken my life away.

HELP US!

The stories are there to be told, millions of them. You simply need to want to listen.

As an M.E./C.F.S. fighter, just doing this message takes a lot out of me, but the drive to have our stories heard is so strong that the "missing" will use every last bit of strength to help our brothers and sisters around the globe. We do this not just to get a cure but to inform, teach, advocate for the truth to be told and support the fighting "missing" and their carers. Please understand we don't want people to think we want to steal the focus off of post-Covid sufferers but to join with them to get answers and support for us all.