PETITION MAJOR MEDIA OUTLETS TO DO A FEATURE ON ME/CFS
316 Comments
P
Pearce Patrick McGrogan
5 years ago
#InvisibleNoMore #MillionsMissing
T
Tasha mansfield
5 years ago
Please inform the public about this disease
V
Veronica Souza
5 years ago
It is appalling that Anderson Cooper stated in the opening of that segment “Doctors tell us they have never seen anything like this.”
I love you Anderson, but you have to speak with the doctors who know better, which includes Dr. Fauci, who has spoken on the similarity between long covid19 and ME/CFS..
R
Rachael Dowling
5 years ago
Thank you for talking about this.
T
Tessa keys
5 years ago
I agree with the above
E
Eileen McDonald-Sayer
5 years ago
I have “lived” this nightmare for over 40 years. I had four miscarriages. I have lost my career, friends, self worth. My life has been in lockdown for 40 years. It is a disgrace how we have been treated
A
Andrea Connors
5 years ago
Please help bring awareness to this
V
Valerie Keenan
5 years ago
ME symptoms also need recognition!
C
Cathy Steuber
5 years ago
Please bring awareness.
J
Jacqui Gray
5 years ago
My life has been destroyed by me/cfs. I've lost my career, my marriage, all quality of life and almost all hope. Please show the world our suffering.
D
Debra Ann Wenzel
5 years ago
10 years is how long it took for me to diagnosed. Another 10 years and I am still looking for a doctor in my state who is knowledgeable about M.E. PLEASE bring this slow death disease to light.
M
Merete Hauge
5 years ago
Thanks for bring this up. Impotent to all post viral fatigue patients around the world.
L
Lurdes López
5 years ago
Soy Enferma de Encefalomielitis mialgica y llevo años sufriendo, sin poder salir de mi casa, aunque tengo la gran suerte, no todos lo tienen, que tengo la ayuda de mi familia, pero no tengo ayuda de los médicos. Necesitamos que se acabe el maltrato médico e institucional hacia nosotros. Llevamos décadas sin que haya un reconocimiento hacia nosotros y el sufrimiento es tremendo.
K
Karen Radde
5 years ago
12 years and counting for me watching the world go by... The best cartoon shows 2 patients with the exact same symptoms and viral-based onset problem is the one called “COVID long haulers” have media, doctors and researchers around her after suffering for 3 months while NO ONE is around the ME/CFS patient who has suffered for many years. PLEASE look into this disease!!!
K
Kathy Riley
5 years ago
I could not agree more with this petitioner! I spent 33 years, struggling to support myself and expecting to become a bag lady at any time. I was fortunate to have one MD support my disability claim, but using a different diagnosis. I pray that the Covid Long Haulers won't be affected for the rest of their lives as so many of us have been.
L
L Koenig
5 years ago
Caregiver for a ME patient of 30 years, I hold no hope that these patients who have been neglected and dismissed by the medical community will be given the attention they deserve. In my lifetime not likely that would take an interest in real patient care of those who have had their lives stolen by this rotten illness.
N
Nancy Wood
5 years ago
My husband and I noticed the lack of mention of the people who have faced these symptoms for decades.
We were disappointed in 60 minutes for leaving out such a vital part of the story.
L
Loree Ciarkowski
5 years ago
I'm so sick and no answers. I've been bed bound and can't walk at all now. Can't remember anything anymore.
K
Kelly Storr
5 years ago
100% support this petition. We are the millions who are forgotten. As a sufferer of 28 years, something needs to be done here. It is not fake or made up. The suffering is real. All over the world. I have recently been granted cppd, which is Canada Pension Plan Disability in Canada. It is time for a cure and to be listened to and taken seriously.
M
Matina
5 years ago
I have #mecfs for 24 years mostly bedbound. Long before Covid many of got sick with MECFS after different viruses but no one wanted to help us raise awareness. We been gravely ill for many decades
#InvisibleNoMore #MillionsMissing
Please inform the public about this disease
It is appalling that Anderson Cooper stated in the opening of that segment “Doctors tell us they have never seen anything like this.” I love you Anderson, but you have to speak with the doctors who know better, which includes Dr. Fauci, who has spoken on the similarity between long covid19 and ME/CFS..
Thank you for talking about this.
I agree with the above
I have “lived” this nightmare for over 40 years. I had four miscarriages. I have lost my career, friends, self worth. My life has been in lockdown for 40 years. It is a disgrace how we have been treated
Please help bring awareness to this
ME symptoms also need recognition!
Please bring awareness.
My life has been destroyed by me/cfs. I've lost my career, my marriage, all quality of life and almost all hope. Please show the world our suffering.
10 years is how long it took for me to diagnosed. Another 10 years and I am still looking for a doctor in my state who is knowledgeable about M.E. PLEASE bring this slow death disease to light.
Thanks for bring this up. Impotent to all post viral fatigue patients around the world.
Soy Enferma de Encefalomielitis mialgica y llevo años sufriendo, sin poder salir de mi casa, aunque tengo la gran suerte, no todos lo tienen, que tengo la ayuda de mi familia, pero no tengo ayuda de los médicos. Necesitamos que se acabe el maltrato médico e institucional hacia nosotros. Llevamos décadas sin que haya un reconocimiento hacia nosotros y el sufrimiento es tremendo.
12 years and counting for me watching the world go by... The best cartoon shows 2 patients with the exact same symptoms and viral-based onset problem is the one called “COVID long haulers” have media, doctors and researchers around her after suffering for 3 months while NO ONE is around the ME/CFS patient who has suffered for many years. PLEASE look into this disease!!!
I could not agree more with this petitioner! I spent 33 years, struggling to support myself and expecting to become a bag lady at any time. I was fortunate to have one MD support my disability claim, but using a different diagnosis. I pray that the Covid Long Haulers won't be affected for the rest of their lives as so many of us have been.
Caregiver for a ME patient of 30 years, I hold no hope that these patients who have been neglected and dismissed by the medical community will be given the attention they deserve. In my lifetime not likely that would take an interest in real patient care of those who have had their lives stolen by this rotten illness.
My husband and I noticed the lack of mention of the people who have faced these symptoms for decades. We were disappointed in 60 minutes for leaving out such a vital part of the story.
I'm so sick and no answers. I've been bed bound and can't walk at all now. Can't remember anything anymore.
100% support this petition. We are the millions who are forgotten. As a sufferer of 28 years, something needs to be done here. It is not fake or made up. The suffering is real. All over the world. I have recently been granted cppd, which is Canada Pension Plan Disability in Canada. It is time for a cure and to be listened to and taken seriously.
I have #mecfs for 24 years mostly bedbound. Long before Covid many of got sick with MECFS after different viruses but no one wanted to help us raise awareness. We been gravely ill for many decades