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PETITION MAJOR MEDIA OUTLETS TO DO A FEATURE ON ME/CFS

316 Comments

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Lara Weinheimer
5 years ago

ME/CFS has been long ignored. And when given notice, media seems to focus on the errors people made in diagnosing or dealing with this disease. Some one needs to show the real science behind the disease, not focus on the weird pseudoscience put out by quacks. We need help. And if Long Covid is ME as many scientists suspect, this disease is going to become a national problem.

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Heather Wilkinson
5 years ago

I've suffered with this illness for 9 years and counting following an infection. I wouldn't wish this illness on my worst enemy!

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Anonymous
5 years ago

Please raise the awareness to the public about this cruel and mysterious illness. I have suffered from CFS for 10 years. I went from a thriving young woman to a violently ill shell of a human being. Doctors just shrugged and acted like it was my fault this happened. No one I knew had even heard of CFS. How can so many sick people go unseen for decades?!?! It is so unfair it is that so very little research has been done. My life is just over because this happened to me? What about my life? I had goals and dreams and now I can barely sit up in bed. I have not even been able to get Disability benefits because CFS is not seen as a valid illness. We are human beings that got very sick and every day we fight for our lives. I urge you to take us seriously. It's the humane thing to do. Cases will continue to rise with Covid-19. What is being done to prepare the aftermath? Please spread the message and be an advocate for those who are going unheard.

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Lori schuster
5 years ago

My daughter has suffered with this disease for many years. I would love for someone to address it on National TV.

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Bill tram
5 years ago

Please look into this !!!!! So many more people have me/cos then anyone can imagine.. they need a voice !

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MIKA ROWAN
5 years ago

shocking so long media has missed highlighting this and many plugging in fatigue and ill health to try push in non-response... so badly stigmatised still - it is real, it does kill and its out there.. x

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Reez Aikawa
5 years ago

60 Minutes, please help bridge the gap between Covid Long Haulers and the existing ME/CFS community and research. It could make all the difference in the trajectory and timeline for helping millions who suffer from chronic illness brought on by a viral infection. We are everywhere and begging for your help to bring a spotlight to this horrible injustice of ignorance.

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Heather Watts
5 years ago

I have shown debilitating signs of post viral fatigue for years with no help from anti virals or the proper medical care. 10s of millions have this across the world long before the current pandemic and needs to be recognized as it is a devastating, life changing illness that is not discussed or recognized as it should be.

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Michele Boback
5 years ago

Start the conversation! Be a journalist again!

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Eileen Ellis
5 years ago

ME needs funding to find a cure. It takes over the person’s entire body. Totally disabling.

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Allison McLean
5 years ago

Needs to be recognised!!!

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Caroline Jacques
5 years ago

I'm signing this because I suffer with M.E and fibromyalgia

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K kim
5 years ago

This disease needs more visibility, funding, research for diagnosis and treatment and hopefully a cure one day. Millions more will be affected with the onslaught of new viruses.

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Deborah Argyle
5 years ago

I have had this for the last 10 years and can no longer work.

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Joan Neithardt
5 years ago

We are signing this petition for our daughter who suffers from ME/CFS. She has been sick for 10 years & is still suffering. She is not giving up on her dream of becoming a doctor someday so she can help others. Please tell the world about this devastating illness that robs so many from the life they were meant to live. Thank you.

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Christina Drott
5 years ago

I suffer from ME/CFS as well

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Christine De La Garza
5 years ago

ME/CFS matters to

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Connie Faast
5 years ago

Please enlighten the world as about Myalgic Encephalomyelitis, also called Chronic Fatigue syndrome. You get sick and never get well. Usually comes after a viral infection. There are over 2 million people with ME. Research could help those and long term covid patients.

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Jennifer Pelter
5 years ago

I would love to see this featured in the media for those if us who have been living years with this illness and are misunderstood or not believed.

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Mollie Givan
5 years ago

My son has been ill for 10 years. He’s 24.