PETITION MAJOR MEDIA OUTLETS TO DO A FEATURE ON ME/CFS
316 Comments
M
Meredith Beil
5 years ago
Please stop ignoring ME/CFS
A
A Jansen
5 years ago
Millions of people worldwide are severely ill with ME/cfs. It is typical and sad we get no mention. After all, we are the #MillionsMissing
C
Carol Goss
5 years ago
I wish I could sign it 100 times over. I hope it makes a difference
J
Jayne Powell
5 years ago
While the medics are talking about long covid they should bare in mind us people who have been suffering ME for years .
M
Michael Palmer
5 years ago
I almost committed suicide just over 2 months ago now because of this. I'm completely over this day in day out.
M
Marilynne Rowland
5 years ago
Please give our ME/CFS community the attention you have given post Covid 19. It is the same from other infections. I have suffered for 15 years.
K
kaye kaiser
5 years ago
30+yrs. CFS/ME. We need to be heard & seen!! TY
B
Barb Roberts
5 years ago
United States
J
Jayson Gentle
5 years ago
A
Angela Everitt
5 years ago
It would mean so much to those of us who have had their lives on pause, missing out and in pain for someone to highlight how this condition effects so many.
E
Emma
5 years ago
I have ME/CFS, and I believe it should be featured when discussing COVID-19 long-haulers.
U
Ursula Hehir
5 years ago
Millions of people around the world have been suffering silently for years, abandoned by society. It is time now for recognition and help. Researchers need to find a cure... fast !!
B
Barbara
5 years ago
I am still on my journey of getting a diagnosis but knowing of the ME/CFS community who use their voices to explain who they are and what they feel and what helps them means I can pick up on tips and try not to be categorised in the moderate to severe band. I am grateful that they are the ones who give me hope - not the medical professions. Any programme that can spread the word on this disease is doing the right thing.
K
Kathryn Hawes
5 years ago
Please take note, I am in the UK, I have been diagnosed for 23 years, my Mother for 19 years, my 18 year old daughter for 4.5 years & has spent that time bedbound & out of education & in extreme pain & now my 15 year old son has been diagnosed in March this year but has missed huge chunks of education over the last 2 years whilst brining diagnosed & not being supported by his school. This has to stop! Will you ignore desperately sick children??
T
Terry Gibbens
5 years ago
My 22 year old son has had ME/CFS since his Junior year of High School after contracting Espstein-Barr virus. Derailed his college experience and the last 5 years of his life.
N
Nicole Wapner
5 years ago
I so so hopeful awareness, education, and $ for research will come out of this!!! All ME / CFS sufferers want is HELP!!!!! We’ve been dealing w this for too long, it’s crippling!!! The name gives the impression a joke!!! ITS VERY REAL!!!
R
Rhonda Naff
5 years ago
Undiagnosed sufferer of CFS for 20+ years
E
Eileen Hutson
5 years ago
Please give the Millions Missing a voice with Covid long-haulers
E
Eric Galoob
5 years ago
https://vimeo.com/285584964
G
Gloria Baca
5 years ago
Members of the ME/cfs community are literally dying while awaiting for 60 Minutes to respond.
Please stop ignoring ME/CFS
Millions of people worldwide are severely ill with ME/cfs. It is typical and sad we get no mention. After all, we are the #MillionsMissing
I wish I could sign it 100 times over. I hope it makes a difference
While the medics are talking about long covid they should bare in mind us people who have been suffering ME for years .
I almost committed suicide just over 2 months ago now because of this. I'm completely over this day in day out.
Please give our ME/CFS community the attention you have given post Covid 19. It is the same from other infections. I have suffered for 15 years.
30+yrs. CFS/ME. We need to be heard & seen!! TY
United States
It would mean so much to those of us who have had their lives on pause, missing out and in pain for someone to highlight how this condition effects so many.
I have ME/CFS, and I believe it should be featured when discussing COVID-19 long-haulers.
Millions of people around the world have been suffering silently for years, abandoned by society. It is time now for recognition and help. Researchers need to find a cure... fast !!
I am still on my journey of getting a diagnosis but knowing of the ME/CFS community who use their voices to explain who they are and what they feel and what helps them means I can pick up on tips and try not to be categorised in the moderate to severe band. I am grateful that they are the ones who give me hope - not the medical professions. Any programme that can spread the word on this disease is doing the right thing.
Please take note, I am in the UK, I have been diagnosed for 23 years, my Mother for 19 years, my 18 year old daughter for 4.5 years & has spent that time bedbound & out of education & in extreme pain & now my 15 year old son has been diagnosed in March this year but has missed huge chunks of education over the last 2 years whilst brining diagnosed & not being supported by his school. This has to stop! Will you ignore desperately sick children??
My 22 year old son has had ME/CFS since his Junior year of High School after contracting Espstein-Barr virus. Derailed his college experience and the last 5 years of his life.
I so so hopeful awareness, education, and $ for research will come out of this!!! All ME / CFS sufferers want is HELP!!!!! We’ve been dealing w this for too long, it’s crippling!!! The name gives the impression a joke!!! ITS VERY REAL!!!
Undiagnosed sufferer of CFS for 20+ years
Please give the Millions Missing a voice with Covid long-haulers
https://vimeo.com/285584964
Members of the ME/cfs community are literally dying while awaiting for 60 Minutes to respond.