Newborn screening for SCID (Severe Combined Immunodeficiency) to prevent the death of infants in the first year of life
Updates
September 14, 2012
I honestly cannot stop staring at the screen and thinking about how many families might finally get the answers they deserve because of this groundswell. It is wild to see this gaining such real momentum when I started off just hoping for a few friends to notice the risk to these newborns. Now we have to keep pushing until that heel prick test actually changes.
7 Comments
if it saves lives for such a low cost there shouldn't even be a debate about this.
SO IMPORTANT. lets get this done.
my nephew had this. it was such a scary time for my sister. they need to test for this immediately across the board.
SCARY. just cant imagine losing a baby because of a test that should have been done at birth.
It makes no sense to wait until they get sick to find out. test them all at the hospital right away.
This is so sad, more needs to be done to help prevent this.
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Newborn screening for SCID (Severe Combined Immunodeficiency) to prevent the death of infants in the first year of life
Updates
September 14, 2012
I honestly cannot stop staring at the screen and thinking about how many families might finally get the answers they deserve because of this groundswell. It is wild to see this gaining such real momentum when I started off just hoping for a few friends to notice the risk to these newborns. Now we have to keep pushing until that heel prick test actually changes.
7 Comments
How is this not already a thing? Every baby deserves a fair start. Please fix this.
if it saves lives for such a low cost there shouldn't even be a debate about this.
SO IMPORTANT. lets get this done.
my nephew had this. it was such a scary time for my sister. they need to test for this immediately across the board.
SCARY. just cant imagine losing a baby because of a test that should have been done at birth.
It makes no sense to wait until they get sick to find out. test them all at the hospital right away.
This is so sad, more needs to be done to help prevent this.
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How is this not already a thing? Every baby deserves a fair start. Please fix this.