The government just caved and officially recognized September as Chiari Awareness Month. They finally stopped ignoring us and gave this disease the acknowledgment it deserves. Keep your eyes open to ensure they actually follow through on this promise.
November 12, 2011
Final supporters
Updates
September 19, 2011
The government continues to ignore the thousands of us suffering daily while they pretend Chiari does not exist. I am sick of the silence and will keep forcing this issue onto their desks until they finally pay attention.
September 19, 2011
The government continues to ignore the thousands of us suffering from Chiari while they look the other way. This momentum proves they cannot pretend we do not exist anymore.
Reached 100 supporters
September 19, 2011
7 Comments
Shared this on my fb page. We need way more people to know about this stuff.
YES. About time someone did this. Dealing with this pain every single day is no joke.
chiari warrior right here!! lets get this done.
finally. sick of people thinking im just lazy because they dont understand the decompression surgery recovery.
My son has chiari and we need more info out there. Tired of explaining what it is to every doctor we see.
I have chiari! Lets educate people!
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The government just caved and officially recognized September as Chiari Awareness Month. They finally stopped ignoring us and gave this disease the acknowledgment it deserves. Keep your eyes open to ensure they actually follow through on this promise.
November 12, 2011
Final supporters
Updates
September 19, 2011
The government continues to ignore the thousands of us suffering daily while they pretend Chiari does not exist. I am sick of the silence and will keep forcing this issue onto their desks until they finally pay attention.
September 19, 2011
The government continues to ignore the thousands of us suffering from Chiari while they look the other way. This momentum proves they cannot pretend we do not exist anymore.
Reached 100 supporters
September 19, 2011
7 Comments
This is a great idea! I have been in contact with my local government in Missouri trying to get the same law for Chiari!
Shared this on my fb page. We need way more people to know about this stuff.
YES. About time someone did this. Dealing with this pain every single day is no joke.
chiari warrior right here!! lets get this done.
finally. sick of people thinking im just lazy because they dont understand the decompression surgery recovery.
My son has chiari and we need more info out there. Tired of explaining what it is to every doctor we see.
I have chiari! Lets educate people!
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This is a great idea! I have been in contact with my local government in Missouri trying to get the same law for Chiari!