I have m.e it impacts on my life daily ,it's about time this illness was taken seriously and treatments found
S
Suzanne Le Quesne
10 years ago
I fully agree that the Panorama Team should conduct this investigation - it is outrageous how ME suffers suffer!
T
Tina Rodwell
10 years ago
Even children are made to carry on with normal life pushing their body until like Sophia and Lynn they decline. Some will never recover some will to some extent, but it is all hidden and unknown. If their parents try to stop this from happening by letting their child rest and convalese, they are then under the big cloud of Munchausen by Proxy syndrome, Tymes Trust alone has supported over 121 families who have faced this kind of accusation. None of these families have been found in anyway holding their children back and are innocent. Due to the misinformation of the PACE trial this situation will continue until NICE is clear on ME, and he PACE trial information has been properly investigated by persons with no interest financial or for career gain.
J
Janet Armstrong
10 years ago
Please sign this petition and take this to a higher level .
R
roy
10 years ago
I have suffered from ME for 24 years.
J
Julia Johnson
10 years ago
Living with this condition is horrific and to be told there's nothing to help is soul destroying. Please please help!
J
julie wrightson
10 years ago
At last! I've suffered from this debilitating condition for 12 years and still no further forward!
A
Amanda Webster
10 years ago
Needs to be reviewed properly -
M
Mark Cunningham
10 years ago
Please help end this scandal.
M
Mandy Foulds
10 years ago
I have been diagnosed with ME
K
Karen Hickey
10 years ago
I want to know what this is, and I want my life back.
C
Chloe Otter
10 years ago
I suffer with ME myself and i want people more aware of the illness and to further my knowledge of the illness too
D
David Hayden
10 years ago
This really does need investigating
S
Sue Piercy
10 years ago
I fully endorse the need for urgent investigation into ME. Too many people have too many unanswered questions . We need to find a suitable treatment and possible cure.
E
Elizabeth Moon
10 years ago
We need proper biomedical research and biomarkers that can be used for diagnosis
N
Nicola Crane
10 years ago
This disability needs to be taken ser
A
Anonymous
10 years ago
As a sufferer of ME as well as other medical conditions I want to see ME taken seriously by not only the medical profession but also the government. I would also like to see money invested into research for treatments, a control or a cure because as a sufferer of this awful condition I can assure everyone it is real!!
I can fall asleep in my dinner, fork half way to my mouth! The next second I am asleep, too fatigued to finish my meal. I fall asleep mid conversation, standing up, driving my scooter it's almost like I have a sleep button on my bottom, when I sit down the button activates "sleep mode" and it physically hurts to fight it!!
I am sleeping my life away, I have stopped taking the pain killers for my chronic pain conditions but I still sleep, I have had to stop driving for now..... I am NOT LIVING!!!!
Something needs to be done
C
cathrine nairn
10 years ago
I have me and it is definitely physical.
D
Deborah Pleszak
10 years ago
This information will be vital in the recognition and treatment of those like me debilitated by this condition!
M
m goodger
10 years ago
I have suffered with ME severely for 20 years.There is still no help from our Government to research for a cause or treatment cause of this life changing desease.
I have m.e it impacts on my life daily ,it's about time this illness was taken seriously and treatments found
I fully agree that the Panorama Team should conduct this investigation - it is outrageous how ME suffers suffer!
Even children are made to carry on with normal life pushing their body until like Sophia and Lynn they decline. Some will never recover some will to some extent, but it is all hidden and unknown. If their parents try to stop this from happening by letting their child rest and convalese, they are then under the big cloud of Munchausen by Proxy syndrome, Tymes Trust alone has supported over 121 families who have faced this kind of accusation. None of these families have been found in anyway holding their children back and are innocent. Due to the misinformation of the PACE trial this situation will continue until NICE is clear on ME, and he PACE trial information has been properly investigated by persons with no interest financial or for career gain.
Please sign this petition and take this to a higher level .
I have suffered from ME for 24 years.
Living with this condition is horrific and to be told there's nothing to help is soul destroying. Please please help!
At last! I've suffered from this debilitating condition for 12 years and still no further forward!
Needs to be reviewed properly -
Please help end this scandal.
I have been diagnosed with ME
I want to know what this is, and I want my life back.
I suffer with ME myself and i want people more aware of the illness and to further my knowledge of the illness too
This really does need investigating
I fully endorse the need for urgent investigation into ME. Too many people have too many unanswered questions . We need to find a suitable treatment and possible cure.
We need proper biomedical research and biomarkers that can be used for diagnosis
This disability needs to be taken ser
As a sufferer of ME as well as other medical conditions I want to see ME taken seriously by not only the medical profession but also the government. I would also like to see money invested into research for treatments, a control or a cure because as a sufferer of this awful condition I can assure everyone it is real!! I can fall asleep in my dinner, fork half way to my mouth! The next second I am asleep, too fatigued to finish my meal. I fall asleep mid conversation, standing up, driving my scooter it's almost like I have a sleep button on my bottom, when I sit down the button activates "sleep mode" and it physically hurts to fight it!! I am sleeping my life away, I have stopped taking the pain killers for my chronic pain conditions but I still sleep, I have had to stop driving for now..... I am NOT LIVING!!!! Something needs to be done
I have me and it is definitely physical.
This information will be vital in the recognition and treatment of those like me debilitated by this condition!
I have suffered with ME severely for 20 years.There is still no help from our Government to research for a cause or treatment cause of this life changing desease.