Panorama ME Investigation Campaign

10 years ago Featured

My daughter is a severe sufferer who was diagnosed 3 years ago. This a serious and debilitating illness that has taken her teenage years away from her and isolated her from any social interaction. More needs to be done rather than allowing sufferers to languish.

I had three jobs worked 76 hours a week I was mum of three earned alot of money paid Mt dues. Got flesh eating bug and my health seriously declined I was diagnosed with m.e through blood tests, my life has changed and now on benefits which is terrible, before I was so active parachuted wing walked assailed, now I suffering with many symptoms of m.e I be happy to talk to panorama and give honest account of this terrible illness. It's not in the mind absolute rubbish the pains are real x

My girlfriend is suffering and has done for the last 15 years . I couldn't imagine going through what she has to on a daily basis .

I have been ill for 5 years now. Please help me get my life back.

I'm a suffer of ME and more research needs to be done

Lets hope for loads of support

Having a child with this changes your whole world.

Proper research needed into a serious medical problem affecting thousands of people.

I am a sufferer ME/ Fibromalgia

Please sign this petition...it is so very VERY important to all who suffer with M.E/CFS

Please research into this debilitating disease . My sister has MS I have ME and our symptoms are very similar . Her illness is re of used and mine isn't !!

please do a programme investigating ME/CFC and Fibromyalgia

My sister is a sufferer

More awareness needed desperately for all of us suffering x

10 years ago Featured

I suffer with ME/CFS and sick of being neglected by medical profession and made to feel like this illness is all in my head. A once hard working, full of life social person, I'm not housebound most of the time. But do I look ill! Invisible illness is a life robber

The recent report produced, under the auspices of the US NIH, by the Institute of Medicine, 'Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness' (https://iom.nationalacademies.org/~/media/Files/Report%20Files/2015/MECFS/MECFS_ReportBrief.pdf states: 'The Institute of Medicine (IOM) committee recommends the name systemic exertion intolerance disease (SEID)for this disease. This new name captures a central characteristic of this disease—the fact that exertion of any sort (physical, cognitive, or emotional)—can adversely affect patients in many organ systems and in many aspects of their lives.'

I have MEcfs/Fibro it has taken a heavy toll on our family. I was once the main breadwinner unfortunately it takes me all day to do the simplest of tasks. My memory has been affected and along with ongoing Fibro pain and spasms it is difficult to get much done. I read about various 'cures' and what to eat to 'cure' it too. It is very confusing --can you do an investigation into it for us please

I have had ME since 2003 after having a virus in November 2002 then coming down with flu on Hogmanay 2002. I long for my life before ME when I was fit and healthy and had a zest for life and loved cycling, walking and gardening and Latin American dancing. Each year of this illness strips away a part of me and everything become more of a life challenge for even the basics in life.

There's far too many suffering, just like myself, with not much hope of ever recovering....its a life changing illness, which can never be under estimated at the impact on ones existence....Please Help !!!!

As a person diagnosed 20 years ago this is important to me