I suffer with fibromyalgia but my partner had m E. He suffers daily and i think it should be investigated.
D
Dorothy Bridge
10 years ago
This is a real condition, if you or your family had this you would want an investigation into it and it's cures.
J
j v griffin
10 years ago
this illness needs to be brought to the attention of others so they can understand the problems people suffer on a daily basis.
B
Beverly Scrowther
10 years ago
Research into ME/CFS/CPS/Fibro As they are all have elements of each other. Its long overdue
L
Lydia Vassallo
10 years ago
Please investigate this disease....
M
Maureen reid
10 years ago
Any research into this will be greatly welcomed
A
Anonymous
10 years ago
The UK government and medical profession should be ashamed of themselves for the neglect of M.E sufferers.
B
Barbara Domer-Hostetler
10 years ago
I've had this since 1980, and can't find a doctor that actually takes it seriously enough to try to make me feel better. How long do we have to wait?
V
Valerie Pedrick
10 years ago
My relief at eventually getting a diagnosis for my sudden onset illness turned to dismay and anger when the 'treatment' of GET made me measurably worse.
B
Bernadette Urmston
10 years ago
For far too long patient voices have been ignored. Medical professionals have become arrogant - it is not uncommon for them to right the outcomes and then push patients to fit the criteria. When patients share concerns, they are denigrated and accused of not wanting to get better. The whole story needs to be told. This really is too good an opportunity to at least not be given careful consideration to help millions of people. I sincerely hope the Panorama Team do take up this request.
D
Dorothy Radley
10 years ago
ME is a serious neurological/autoimmune diseases and not a Psychiatric one. It's not depression that has cause my ill health, it's the severe pain and disability that causes me to become depressed. The medical profession just don't want to know because, like MS before it, ME is little understood and is difficult for doctors to treat. It serves them well to stick us all under the Psyciatric label. They can then treat us in an off hand and cruel way, yes, cruel, and I can tell you several horror stories at the hands of so called professional people who are in the 'caring' profession. No one cares about ME people struck down in our prime to suffer untold agonies of pain and illness on a daily basis. Please refer to NICE and WHO guidelines on what ME is and how ME people should be treated.
J
J Lonton
10 years ago
M.E is a serious debilitating illness which affects all ages to varying degrees
We need this to be recognised
J
jade butler
10 years ago
I suffer fibromyalgia and c.f.. Aswell as coping with a damaged spine.
L
Lorraine Everitt
10 years ago
So much misunderstanding and ignorance around this complex condition.
S
sue marsden
10 years ago
something needs to be done about this terrible complaint , the pain and tiredness is unbearable at times
S
Suzanne Daines
10 years ago
Let's work together and find out exactly why myalgic encephalomyelitis has 'chosen' so many. Actually listen to those who suffer, often without the respect and support they deserve.
I have had me for nearly two years and had a very busy life before I became ill. I worked full time and looked after four children. Now I have to rely on them to look after me. More research needs to be done and a better attitude from the medical profession. My gp is great but most don't see it as a real condition.
L
Louise Ramage
10 years ago
Have severe myalgic encephalomyelitis and we have been fighting the psychiatric lobby for years. We have known that dangerous GET harms. We have fought for years , on our own, and we finally have been noticed & now the truth is out. Dangerous GET treatment started by the psychiatric lobby by White et al & of course Simmon Wessley needs to be stopped. In my opinion they need to pay for harming those with ME knowing this treatment will not help but also makes ME more debilitating. I also am home bound even though I have no been subjected to this form of torturous treatment.
I suffer with fibromyalgia but my partner had m E. He suffers daily and i think it should be investigated.
This is a real condition, if you or your family had this you would want an investigation into it and it's cures.
this illness needs to be brought to the attention of others so they can understand the problems people suffer on a daily basis.
Research into ME/CFS/CPS/Fibro As they are all have elements of each other. Its long overdue
Please investigate this disease....
Any research into this will be greatly welcomed
The UK government and medical profession should be ashamed of themselves for the neglect of M.E sufferers.
I've had this since 1980, and can't find a doctor that actually takes it seriously enough to try to make me feel better. How long do we have to wait?
My relief at eventually getting a diagnosis for my sudden onset illness turned to dismay and anger when the 'treatment' of GET made me measurably worse.
For far too long patient voices have been ignored. Medical professionals have become arrogant - it is not uncommon for them to right the outcomes and then push patients to fit the criteria. When patients share concerns, they are denigrated and accused of not wanting to get better. The whole story needs to be told. This really is too good an opportunity to at least not be given careful consideration to help millions of people. I sincerely hope the Panorama Team do take up this request.
ME is a serious neurological/autoimmune diseases and not a Psychiatric one. It's not depression that has cause my ill health, it's the severe pain and disability that causes me to become depressed. The medical profession just don't want to know because, like MS before it, ME is little understood and is difficult for doctors to treat. It serves them well to stick us all under the Psyciatric label. They can then treat us in an off hand and cruel way, yes, cruel, and I can tell you several horror stories at the hands of so called professional people who are in the 'caring' profession. No one cares about ME people struck down in our prime to suffer untold agonies of pain and illness on a daily basis. Please refer to NICE and WHO guidelines on what ME is and how ME people should be treated.
M.E is a serious debilitating illness which affects all ages to varying degrees We need this to be recognised
I suffer fibromyalgia and c.f.. Aswell as coping with a damaged spine.
So much misunderstanding and ignorance around this complex condition.
something needs to be done about this terrible complaint , the pain and tiredness is unbearable at times
Let's work together and find out exactly why myalgic encephalomyelitis has 'chosen' so many. Actually listen to those who suffer, often without the respect and support they deserve.
http://blogs.plos.org/mindthebrain/2015/11/11/why-the-scientific-community-needs-the-pace-trial-data-to-be-released/
Dear Panorama - please help us!
I have had me for nearly two years and had a very busy life before I became ill. I worked full time and looked after four children. Now I have to rely on them to look after me. More research needs to be done and a better attitude from the medical profession. My gp is great but most don't see it as a real condition.
Have severe myalgic encephalomyelitis and we have been fighting the psychiatric lobby for years. We have known that dangerous GET harms. We have fought for years , on our own, and we finally have been noticed & now the truth is out. Dangerous GET treatment started by the psychiatric lobby by White et al & of course Simmon Wessley needs to be stopped. In my opinion they need to pay for harming those with ME knowing this treatment will not help but also makes ME more debilitating. I also am home bound even though I have no been subjected to this form of torturous treatment.