Pls investigate how we have been ignored completely by the medical profession because of a report from a psychiatrist who didn't even speak to a single patient in the 1950's.
A
Anonymous
10 years ago
This is soooo important
Please raise correct m.e awareness publically
V
Vivienne
10 years ago
We need our illness sympathetically publicised
N
nicola lavin
10 years ago
ME is a horrible neurological condition affecting so many lives each year. Support is low from both the public and medical community because of the lack of education and people need to be made aware of how debilitating this illness is.
P
Paula Logan
10 years ago
Money needs to be spent on helping people with CFS/ME. The modern day diseases are being ignored and people are being labelled due to medical laziness. We all deserve to be understood, to be treated with regard to humanity.
A
Anonymous
10 years ago
Only do if portrayed fairly and accurately with real patients
B
Beryl Collins
10 years ago
It is about time a sincere genuine investigation into our horrid physical illness is conducted by respected programme makers.....
A
Angela Funnell
10 years ago
ME is ruining peoples lives just as much as MS is. Yet more funding is spent on FLU research than on ME and the symptoms of this disease classed as a neurological disorder by the WHO since 1969 is much the same as MS. Yet despite being classed as a neurological disease neurologists are not the ones to treat it. Just like MS used to be treated prior to the 1950's we are told there is nothing that can be done, stuck on pain relief and refferred to psychiatrists for a physical condition not a mental health one. This is a disease that people are dying from and it needs a thorough investigation. The only time something will change is if someone like a royal such as Prince William got this disease and then rose the profile of it. Until then nothing will happen
D
Dr Chris Dooks
10 years ago
Featured
CBT is a slight of hand diverting tactic which would never be offered to cancer patients, those with severe MS and so on. Yet patients with CFS/ME are treated with contempt and suspicion by the UK government with this destructive and woeful focus on CBT.
L
Lynsey Alexander
10 years ago
Featured
This and the scandal of the PACE trial has a hugely negative impact on people's lifes. There are barely any research projects, government guidelines or charities that aren't in some way under instruction from the Psych community.
F
Frances Hall
10 years ago
Sufferer for 26 years 20 of which I attempted to keep working through with little support, no info and and assistance from the medical profession. Gradually getting worse to the point when working became impossible and health continues to deteriorate. We, previously active and productive people who want to continue to be so in our communities are left to rot. It's a national/global disgrace.
D
Diàne Gallagher
10 years ago
We need lots more research to be done.
L
Louis jones
10 years ago
I have ME and wouldn't wish it on my worst enemy ...well perhaps Ian Duncan Smith
L
laura Burnett
10 years ago
I was diagnosed with ME/ CFS after suffering from meningitis, this is very real!!
C
Caroline McLeod
10 years ago
Had this condition for 8 yrs and also been treated so unfairly by the so called professionals.
V
Vickie Reeves
10 years ago
The neglect of this serious neuro/immune illness is unforgiveable. The suffering is equal to and beyond almost ANY other condition
K
Kim Sullivan
10 years ago
Myself and my son both suffer with ME. At the moment there is no real help available as the condition is still little understood. I was diagnosed 11 years ago and it seems nothing has changed within this time. There seems to be a cloud surrounding information and there is still no diagnostic criteria other than the process of elimination.
H
Hazel Gault
10 years ago
My daughter's life ruined by this illness..it is heartbreaking to see her suffering so much with no medical helps whatsoever... It's shameful and in humane.
P
phil
10 years ago
the bbc need to get behind the push to find the real cause behind ME and GWS and to expose the shrinks and their shoddy work at kings college london. if you dig deep enough youll see why prof simon wesseley should have his KBE removed !
H
Helen Asquith
10 years ago
I have had this terrible illness for 20 years and my daughter for 7 years.
Research needs to be done and a cure found.
Pls investigate how we have been ignored completely by the medical profession because of a report from a psychiatrist who didn't even speak to a single patient in the 1950's.
This is soooo important Please raise correct m.e awareness publically
We need our illness sympathetically publicised
ME is a horrible neurological condition affecting so many lives each year. Support is low from both the public and medical community because of the lack of education and people need to be made aware of how debilitating this illness is.
Money needs to be spent on helping people with CFS/ME. The modern day diseases are being ignored and people are being labelled due to medical laziness. We all deserve to be understood, to be treated with regard to humanity.
Only do if portrayed fairly and accurately with real patients
It is about time a sincere genuine investigation into our horrid physical illness is conducted by respected programme makers.....
ME is ruining peoples lives just as much as MS is. Yet more funding is spent on FLU research than on ME and the symptoms of this disease classed as a neurological disorder by the WHO since 1969 is much the same as MS. Yet despite being classed as a neurological disease neurologists are not the ones to treat it. Just like MS used to be treated prior to the 1950's we are told there is nothing that can be done, stuck on pain relief and refferred to psychiatrists for a physical condition not a mental health one. This is a disease that people are dying from and it needs a thorough investigation. The only time something will change is if someone like a royal such as Prince William got this disease and then rose the profile of it. Until then nothing will happen
CBT is a slight of hand diverting tactic which would never be offered to cancer patients, those with severe MS and so on. Yet patients with CFS/ME are treated with contempt and suspicion by the UK government with this destructive and woeful focus on CBT.
This and the scandal of the PACE trial has a hugely negative impact on people's lifes. There are barely any research projects, government guidelines or charities that aren't in some way under instruction from the Psych community.
Sufferer for 26 years 20 of which I attempted to keep working through with little support, no info and and assistance from the medical profession. Gradually getting worse to the point when working became impossible and health continues to deteriorate. We, previously active and productive people who want to continue to be so in our communities are left to rot. It's a national/global disgrace.
We need lots more research to be done.
I have ME and wouldn't wish it on my worst enemy ...well perhaps Ian Duncan Smith
I was diagnosed with ME/ CFS after suffering from meningitis, this is very real!!
Had this condition for 8 yrs and also been treated so unfairly by the so called professionals.
The neglect of this serious neuro/immune illness is unforgiveable. The suffering is equal to and beyond almost ANY other condition
Myself and my son both suffer with ME. At the moment there is no real help available as the condition is still little understood. I was diagnosed 11 years ago and it seems nothing has changed within this time. There seems to be a cloud surrounding information and there is still no diagnostic criteria other than the process of elimination.
My daughter's life ruined by this illness..it is heartbreaking to see her suffering so much with no medical helps whatsoever... It's shameful and in humane.
the bbc need to get behind the push to find the real cause behind ME and GWS and to expose the shrinks and their shoddy work at kings college london. if you dig deep enough youll see why prof simon wesseley should have his KBE removed !
I have had this terrible illness for 20 years and my daughter for 7 years. Research needs to be done and a cure found.