As you may be aware there have been reports in the media of late of the decision made by the NICE (National Institute for Clinical Excellence) to block the funding and availability to the NHS of Sorafenib (Nexavar) as an effective life extending treatment for sufferers of primary Liver cancer. This treatment is beyond the financial means of the vast majority of sufferers.
Andrew Dillon, chief executive of NICE, said: "The price being asked by [the manufacturer] Bayer is simply too high to justify using NHS money which could be spent on better value cancer treatments." [Source: www.bbc.co.uk/news]
For those sufferers who have limited or no other options available regarding treatment, other than the short term use but painful ordeal of chemotherapy and distressing surgical procedures, they will, without this drug stand little or no chance at all of increasing and furthering their lives. This not only has an impact on the sufferer but causes great frustration for their families who have to stand by and watch the effects of this terrible disease when they know there is a way to improve and extend the lives of their loved ones.
This is an appeal for you to join us to publicise this travesty of NHS funding by signing this online petition. It is our hope that with enough support the NICE and the pharmaceutical company would come together to help provide patients, not just across the rest of Europe - where this treatment is widely available and funded â
Reaching five hundred signatures marks a somber but necessary milestone in our effort to secure access to this treatment. It is heartening to see so many people acknowledge that the current funding decision creates an impossible situation for families facing this diagnosis.
Reached 500 supporters
December 18, 2009
December 13, 2009
Seeing the growing momentum behind this call for access to care shows how many people recognize the humanity at the heart of this issue. This collective resolve confirms that the current situation cannot go unchallenged.
December 7, 2009
One hundred people have now indicated that they believe this treatment outcome is unacceptable. This number serves as a reminder that the frustration felt by those affected by liver cancer is shared by many who recognize the human cost of these funding decisions.
Reached 100 supporters
December 7, 2009
6 Comments
M
Mark Jackson
16 years ago
Featured
Ridiculous that the UK is behind the rest of Europe on this. People are dying while they argue over costs. Shame on NICE.
D
David Jordan
16 years ago
Featured
Bayer needs to drop the price and the government needs to stop being so cheap with patient lives. Sick of seeing this happen.
S
Sarah Okafor
16 years ago
Featured
My dad was denied this. Its heart breaking to watch them deteriorate when a drug is right there but they say its too pricey. Give them a chance.
P
Paul Henderson
16 years ago
Featured
Let them have the meds. Simple as that.
E
Emma Reid
16 years ago
Featured
This is disgusting. My friend has liver cancer and there is literally nothing else for her. Why is the NHS failing patients like this?
J
Julie Chopra
16 years ago
Featured
PLEASE make this available. How can a price tag be put on someone's life? My uncle deserves a fighting chance.
Help this petition grow
Share it with friends to help reach
750 signatures.
Sign Petition
We never post to your account. Social sign-in is used only to verify your signature.
or sign with Email
Add a comment?
Your signature will be added via
.
Tell others why you're signing — it's optional.
As you may be aware there have been reports in the media of late of the decision made by the NICE (National Institute for Clinical Excellence) to block the funding and availability to the NHS of Sorafenib (Nexavar) as an effective life extending treatment for sufferers of primary Liver cancer. This treatment is beyond the financial means of the vast majority of sufferers.
Andrew Dillon, chief executive of NICE, said: "The price being asked by [the manufacturer] Bayer is simply too high to justify using NHS money which could be spent on better value cancer treatments." [Source: www.bbc.co.uk/news]
For those sufferers who have limited or no other options available regarding treatment, other than the short term use but painful ordeal of chemotherapy and distressing surgical procedures, they will, without this drug stand little or no chance at all of increasing and furthering their lives. This not only has an impact on the sufferer but causes great frustration for their families who have to stand by and watch the effects of this terrible disease when they know there is a way to improve and extend the lives of their loved ones.
This is an appeal for you to join us to publicise this travesty of NHS funding by signing this online petition. It is our hope that with enough support the NICE and the pharmaceutical company would come together to help provide patients, not just across the rest of Europe - where this treatment is widely available and funded â
Reaching five hundred signatures marks a somber but necessary milestone in our effort to secure access to this treatment. It is heartening to see so many people acknowledge that the current funding decision creates an impossible situation for families facing this diagnosis.
Reached 500 supporters
December 18, 2009
December 13, 2009
Seeing the growing momentum behind this call for access to care shows how many people recognize the humanity at the heart of this issue. This collective resolve confirms that the current situation cannot go unchallenged.
December 7, 2009
One hundred people have now indicated that they believe this treatment outcome is unacceptable. This number serves as a reminder that the frustration felt by those affected by liver cancer is shared by many who recognize the human cost of these funding decisions.
Reached 100 supporters
December 7, 2009
6 Comments
M
Mark Jackson
16 years ago
Featured
Ridiculous that the UK is behind the rest of Europe on this. People are dying while they argue over costs. Shame on NICE.
D
David Jordan
16 years ago
Featured
Bayer needs to drop the price and the government needs to stop being so cheap with patient lives. Sick of seeing this happen.
S
Sarah Okafor
16 years ago
Featured
My dad was denied this. Its heart breaking to watch them deteriorate when a drug is right there but they say its too pricey. Give them a chance.
P
Paul Henderson
16 years ago
Featured
Let them have the meds. Simple as that.
E
Emma Reid
16 years ago
Featured
This is disgusting. My friend has liver cancer and there is literally nothing else for her. Why is the NHS failing patients like this?
J
Julie Chopra
16 years ago
Featured
PLEASE make this available. How can a price tag be put on someone's life? My uncle deserves a fighting chance.
Help this petition grow
Share it with friends to help reach
750 signatures.
Sign Petition
We never post to your account. Social sign-in is used only to verify your signature.
or sign with Email
Add a comment?
Your signature will be added via . Tell others why you're signing — it's optional.
Signing with Google or Facebook verifies your signature instantly — no email needed.
Ridiculous that the UK is behind the rest of Europe on this. People are dying while they argue over costs. Shame on NICE.