Skip to main content

LDN Petition to the European Parliament

889 Comments

A
Amanda Lewis
11 years ago

I'm signing because this drug seems to offer hope in conditions where there is little or none.

A
Amanda Lewis
11 years ago

I'm signing because this drug seems to offer hope in conditions where there is little or none.

J
Joanne Andrew
11 years ago

NHS / EU must do the trials. Too many people are suffering, taking disease modifying drugs that can cost upwards of £ 15,000 per year per person!!! Evidence from people already taking LDN shows that it is more effective than DMDs and peoples symptoms improve. It may even help people get back into paid employment, where previously they have not felt well enough & claimed benefits. The UK government must demand drug trials for LDN , they have nothing to lose (unlike those with MS, fybromalgia etc & their families who have to watch their loved ones gradually declining). Grow a pair & get the trials started!!!!!!!

J
Joanne Andrew
11 years ago

NHS / EU must do the trials. Too many people are suffering, taking disease modifying drugs that can cost upwards of £ 15,000 per year per person!!! Evidence from people already taking LDN shows that it is more effective than DMDs and peoples symptoms improve. It may even help people get back into paid employment, where previously they have not felt well enough & claimed benefits. The UK government must demand drug trials for LDN , they have nothing to lose (unlike those with MS, fybromalgia etc & their families who have to watch their loved ones gradually declining). Grow a pair & get the trials started!!!!!!!

L
Lesley Horsfall
11 years ago

CFS for 19 years. I would like to try this drug my condition worsens with any viral infection that stimulates the immune system. I also have antibodies to several thyroid antigens and read that LDN can help reduce the amount of thyroxine needed as I now have osteoporosis.

L
Lesley Horsfall
11 years ago

CFS for 19 years. I would like to try this drug my condition worsens with any viral infection that stimulates the immune system. I also have antibodies to several thyroid antigens and read that LDN can help reduce the amount of thyroxine needed as I now have osteoporosis.

J
Joanne Andrew
11 years ago

It is ludicrous that the NHS pay thousands of pounds per person per year on disease modifying drugs for MS, which may have more side effects than visible benefits, when LDN costs less than £1 per day!!?? There is overwhelming evidence to suggest that LDN actually improves peoples symptoms and trials should be encouraged. LDN may make the difference between someone living on benefits & feeling well enough to work. Give people the choice, not enough people know about it let alone know how to go about getting it on a private prescription.

J
Joanne Andrew
11 years ago

It is ludicrous that the NHS pay thousands of pounds per person per year on disease modifying drugs for MS, which may have more side effects than visible benefits, when LDN costs less than £1 per day!!?? There is overwhelming evidence to suggest that LDN actually improves peoples symptoms and trials should be encouraged. LDN may make the difference between someone living on benefits & feeling well enough to work. Give people the choice, not enough people know about it let alone know how to go about getting it on a private prescription.

M
Michelle McClelland
11 years ago

Please licence LDN for sufferers of fibromyalgia and other conditions

M
Michelle McClelland
11 years ago

Please licence LDN for sufferers of fibromyalgia and other conditions

J
Jennifer Davies
11 years ago

Chronic Fibro & BAM sufferer

J
Jennifer Davies
11 years ago

Chronic Fibro & BAM sufferer

L
Linda french
11 years ago

Possible relief from chronic Fibromyalgia pain.

L
Linda french
11 years ago

Possible relief from chronic Fibromyalgia pain.

D
Dee Penny
11 years ago

People with Fibromyalgia and ME/CFS are suffering dreadful pain and extreme unnatural exhaustion to the point where they have to be supported in most ways. Very often bedridden or house-bound. Their lives are a dreadful existence, Anything that would improve their lives and maybe bring them back to some normality, should be tested. This is urgent for these very sick people. D P

D
Dee Penny
11 years ago

People with Fibromyalgia and ME/CFS are suffering dreadful pain and extreme unnatural exhaustion to the point where they have to be supported in most ways. Very often bedridden or house-bound. Their lives are a dreadful existence, Anything that would improve their lives and maybe bring them back to some normality, should be tested. This is urgent for these very sick people. D P

M
Mrs M Jackson
11 years ago

My Daughter could benefit from this - please make it available.

M
Mrs M Jackson
11 years ago

My Daughter could benefit from this - please make it available.

J
Joan Maginn
11 years ago

Sounds like a wonder drug which treats so many conditions.

J
Joan Maginn
11 years ago

Sounds like a wonder drug which treats so many conditions.