Sign Petition

CHRONIC PAIN PATIENT REGISTRY

470 Signatures Goal: 500

To: U.S. Senate Health, Education, Labor and Pensions Committee Chairman Senator Judd Gregg and A Chronic Pain Patient Registry would serve as a qualified listing of only those who have been thoroughly evaluated and who\'s ongoing chronic pain condition has been fully documented. The Food and Drug Administration would recognize the pain medication and dosage being prescribed is that for a verified CCP. This would alleviate the need to investigate Physicians and Pain Management Specialists prescribing pain medication for possible abuse by non-chronic pain sufferers, as well as address the fear by medical professionals of losing their medical license or facing severe disciplinary action. CPP\'s would greatly benefit by receiving adequate pain medication required to help alleviate and control the high levels of pain which they endure on a daily basis. All who have signed this petition implore you to vote for, or assist in the creation of a Chronic Pain Patient Registry. Please help Chronic Pain Patients, who often needlessly and incompassionately endure intolerable levels of pain every moment of every day, obtain the help so desperately needed to improve the quality of their lives. Chronic pain doesn\'t stop with just the sufferer; it infiltrates into the lives of families and loved ones who often endure, but often times cannot endure, the devastating effect a life of pain, hopelessness and despair has on relationships and families. Jobs and income are lost, families are destroyed...lives are ended by suicide. A Chronic Pain Patient Registry will go far in greatly improving the quality of life for pain sufferers and those who surround them alike.

Sponsor

R. Zeke Fread, coordinator of Tampa Bay Coalition, http://www.tampabaycoalition.com/cppr.html , and chronic pain patient, along with other chronic pain patients, CPPs, are organizing a grassroots campaign to urge lawmakers to create a Chronic Pain Patient Registry, CPPR. With widespread abuse of pain medication by non-chronic pain patients. Physicians are reluctant to prescribe doses of medication needed to control the excruciatingly high levels of pain their CPPs endure, due to fear of FDA scrutiny and jeopardizing their license to practice medicine. This FDA scrutiny would be eliminated for registered patients physicians. Patients who suffer the devastating effects of chronic pain syndrome, will no longer be denied access to pain medication that controls their chronic pain to bearable levels. Greatly improving the quality of their and their families lives. President Bush\'s new campaign to curb abuse of pain medication by our youth, will increase restrictions on prescribing such medications. Increasing physicians fears of scrutinizing by the FDA, for prescribing required doses of pain medication for the excruciatingly high levels of pain their chronic pain syndrome patients suffer. Which will lead to an even high number of chronic pain patients, out of sheer desperation, to commit suicide. This registry will not only relieve suffering, but, save lives.

Links

Website related to chronic pain sydrome, Joey Lee, his personal life struggle with RSD Reflex Sympathetic Dystrophy and resources, http://www.joeylee.com/rsd.html. American RSDHope Group, http://www.rsdhope.org/

Is there a cause you really care about? Start a free petition like this one and make a real difference.

  • Trish
    Trish United States, Portland
    Apr 25, 2017
    Apr 25, 2017
    Pancreas divisum causes me severe pain and theone surgery that sometimes relieves the pain didn't work for me. I have complied with ALL the ever-increasing restrictions, the $200 urine tests, paper prescriptions every 28 days, ID every rx pickup, and at my last pain clinic appt staff said because of the DEA continuing the regimen I've been on over 10 years isn't possible. No one in my situatio would THINK of sharing pills, but we get treated like criminals, meanwhile this prohibition is as much a failure as the 18th amendment.
  • Stan kizima
    Stan kizima United States, Pittsburgh
    Apr 25, 2017
    Apr 25, 2017
    I have deterioration of my feet, spindylytis in loewer back. Pain medication is the only way i can try to have a normal productive life. The actions of the people who are overdosing, stealing meds, are tge ones ruining it for the people on disability that need their meds for a half-way normal life.
  • Renee
    Renee United States, Atco
    Apr 14, 2017
    Apr 14, 2017
    I live in pain 24 for many years Why is this being done, what will I do now
  • Tonja
    Tonja United States, Richmond
    Feb 15, 2017
    Feb 15, 2017
    I am a 44 year old black woman and I came across the website. I am so grateful for the stories that have been shared. My decline started a year and a half before my spinal fusion surgery lumbar 4-sacral 1 transforminal lumbar interbody fusion. I knew something was wrong but I continued to work and I was prescribed oxycodone. The surgery was on 4/13/15. The surgery was necessary to prevent paralysis which was already beginning and pain to the point of crying all night in a fetal position. I can recall days where I crawled like a dog around my apartment. This is a nightmare to wake up every day in pain. I am a shell of what I once was. No social life. I am emotionally, mentally, and physically tired of this life. This new “war on drugs” that the media is pushing is insanity. It was funny when the name was “hillbilly heroin” in West Virginia because of the widespread abuse now that state has the highest rate of heroin overdose, abuse, death? The surgery did not guarantee pain relief but I could not imagine this would be my life. “Talk Therapy”4 pain? How when you can’t even drive. I did PT then got bilateral epidural steroid injections and they could not get under the rods and pins and I declined to the point where I couldn’t even take care of myself. Then they went into CYA mode because of the mistake. I have been talked to like a child. The abusers and they include members of the health care community and the rich kids that popped pills for fun have ruined it. Now they want to cater to addicts, no jail, help because they have a disease of addiction. People with serious physical impairments that just want quality of life, NOTHING!!!!Speak up and they red flag you, label you an addict and show you the door. Why do they even bother to ask you to rate your pain from 1-10 when it is better to describe it. The pain scale is when this nightmare of over prescribing began. I only take oxycodone 10mg 3 times per day with Lyrica (which cost $562 per month) if u don’t have insurance. It brings the pain down to a 6 or 7 (still ice and icy hot at least 3- 5 times a day)and that will be stopped this month. In 25 days I will be back in hell. I got a degree after leaving an abusive marriage and jobs lined up that I cannot take because of this! $34 an hour I am missing, savings gone while I sit here every day and watch my dreams fade away. THE PAIN HAS TO BE CONTROLLED SO THAT I CAN GET BACK TO EARNING AN INCOME TO HELP PAY FOR COLLEGE. EVERYBODY IS PLAYING GOD AND YOU SUFFER WHILE HEALTHY PEOPLE MAKE THE LAWS. Every month ( so they can get more money, co-pays U drag into a doctor’s office to be treated like a criminal, while the real criminals have created a black market. Pain management doctors don’t take Medicaid and really don’t exist in Richmond, Virginia unless you pay cash. Things like going to a movie, a concert I can’t do anymore. To make matters worse doctors are trying meds like Neurontin, Baclofen, Cymbalta and Ibuprofen in combination which resulted in my kidneys failing, because they don’t want to prescribe an opiate now which works better in a low dose with less side effects. I could write a book but there is a problem when we live in a country where people care more about the right to own a gun than the right of people not to suffer! People in Physcial Pain are treated like criminals. Even animals are shot and put out of their misery. I am in such pain as I write this and have no idea what to do, and my daughter just wants her old mom back. It breaks my heart, she will graduate this year and be off to college and then I will be alone still suffering.
See More
470

Signatures

  • 3 weeks ago
    John werblo United States
    3 weeks ago
  • 1 month ago
    Trish United States
    1 month ago
  • 1 month ago
    Stan kizima United States
    1 month ago
  • 1 month ago
    Renee United States
    1 month ago
  • 3 months ago
    Tonja United States
    3 months ago
  • 4 months ago
    Renee Steiger United States
    4 months ago
  • 7 months ago
    Ronald Grubb United States
    7 months ago
  • 8 months ago
    Jasmyne Blank United States
    8 months ago
  • 9 months ago
    Daniel Zash United States
    9 months ago
  • 10 months ago
    Susan Jeter United States
    10 months ago
  • 1 year ago
    GLORIA B CENDEJAS United States
    1 year ago
  • 1 year ago
    Karen brown United States
    1 year ago
  • 1 year ago
    nancy welch United States
    1 year ago
  • 1 year ago
    Kimberly Blake United States
    1 year ago
  • 1 year ago
    Tammy Williams United States
    1 year ago
See More