Sign Petition

CHRONIC PAIN PATIENT REGISTRY

466 Signatures Goal: 500

To: U.S. Senate Health, Education, Labor and Pensions Committee Chairman Senator Judd Gregg and A Chronic Pain Patient Registry would serve as a qualified listing of only those who have been thoroughly evaluated and who\'s ongoing chronic pain condition has been fully documented. The Food and Drug Administration would recognize the pain medication and dosage being prescribed is that for a verified CCP. This would alleviate the need to investigate Physicians and Pain Management Specialists prescribing pain medication for possible abuse by non-chronic pain sufferers, as well as address the fear by medical professionals of losing their medical license or facing severe disciplinary action. CPP\'s would greatly benefit by receiving adequate pain medication required to help alleviate and control the high levels of pain which they endure on a daily basis. All who have signed this petition implore you to vote for, or assist in the creation of a Chronic Pain Patient Registry. Please help Chronic Pain Patients, who often needlessly and incompassionately endure intolerable levels of pain every moment of every day, obtain the help so desperately needed to improve the quality of their lives. Chronic pain doesn\'t stop with just the sufferer; it infiltrates into the lives of families and loved ones who often endure, but often times cannot endure, the devastating effect a life of pain, hopelessness and despair has on relationships and families. Jobs and income are lost, families are destroyed...lives are ended by suicide. A Chronic Pain Patient Registry will go far in greatly improving the quality of life for pain sufferers and those who surround them alike.

Sponsor

R. Zeke Fread, coordinator of Tampa Bay Coalition, http://www.tampabaycoalition.com/cppr.html , and chronic pain patient, along with other chronic pain patients, CPPs, are organizing a grassroots campaign to urge lawmakers to create a Chronic Pain Patient Registry, CPPR. With widespread abuse of pain medication by non-chronic pain patients. Physicians are reluctant to prescribe doses of medication needed to control the excruciatingly high levels of pain their CPPs endure, due to fear of FDA scrutiny and jeopardizing their license to practice medicine. This FDA scrutiny would be eliminated for registered patients physicians. Patients who suffer the devastating effects of chronic pain syndrome, will no longer be denied access to pain medication that controls their chronic pain to bearable levels. Greatly improving the quality of their and their families lives. President Bush\'s new campaign to curb abuse of pain medication by our youth, will increase restrictions on prescribing such medications. Increasing physicians fears of scrutinizing by the FDA, for prescribing required doses of pain medication for the excruciatingly high levels of pain their chronic pain syndrome patients suffer. Which will lead to an even high number of chronic pain patients, out of sheer desperation, to commit suicide. This registry will not only relieve suffering, but, save lives.

Links

Website related to chronic pain sydrome, Joey Lee, his personal life struggle with RSD Reflex Sympathetic Dystrophy and resources, http://www.joeylee.com/rsd.html. American RSDHope Group, http://www.rsdhope.org/

Is there a cause you really care about? Start a free petition like this one and make a real difference.

  • Tonja
    Tonja United States, Richmond
    Feb 15, 2017
    Feb 15, 2017
    I am a 44 year old black woman and I came across the website. I am so grateful for the stories that have been shared. My decline started a year and a half before my spinal fusion surgery lumbar 4-sacral 1 transforminal lumbar interbody fusion. I knew something was wrong but I continued to work and I was prescribed oxycodone. The surgery was on 4/13/15. The surgery was necessary to prevent paralysis which was already beginning and pain to the point of crying all night in a fetal position. I can recall days where I crawled like a dog around my apartment. This is a nightmare to wake up every day in pain. I am a shell of what I once was. No social life. I am emotionally, mentally, and physically tired of this life. This new “war on drugs” that the media is pushing is insanity. It was funny when the name was “hillbilly heroin” in West Virginia because of the widespread abuse now that state has the highest rate of heroin overdose, abuse, death? The surgery did not guarantee pain relief but I could not imagine this would be my life. “Talk Therapy”4 pain? How when you can’t even drive. I did PT then got bilateral epidural steroid injections and they could not get under the rods and pins and I declined to the point where I couldn’t even take care of myself. Then they went into CYA mode because of the mistake. I have been talked to like a child. The abusers and they include members of the health care community and the rich kids that popped pills for fun have ruined it. Now they want to cater to addicts, no jail, help because they have a disease of addiction. People with serious physical impairments that just want quality of life, NOTHING!!!!Speak up and they red flag you, label you an addict and show you the door. Why do they even bother to ask you to rate your pain from 1-10 when it is better to describe it. The pain scale is when this nightmare of over prescribing began. I only take oxycodone 10mg 3 times per day with Lyrica (which cost $562 per month) if u don’t have insurance. It brings the pain down to a 6 or 7 (still ice and icy hot at least 3- 5 times a day)and that will be stopped this month. In 25 days I will be back in hell. I got a degree after leaving an abusive marriage and jobs lined up that I cannot take because of this! $34 an hour I am missing, savings gone while I sit here every day and watch my dreams fade away. THE PAIN HAS TO BE CONTROLLED SO THAT I CAN GET BACK TO EARNING AN INCOME TO HELP PAY FOR COLLEGE. EVERYBODY IS PLAYING GOD AND YOU SUFFER WHILE HEALTHY PEOPLE MAKE THE LAWS. Every month ( so they can get more money, co-pays U drag into a doctor’s office to be treated like a criminal, while the real criminals have created a black market. Pain management doctors don’t take Medicaid and really don’t exist in Richmond, Virginia unless you pay cash. Things like going to a movie, a concert I can’t do anymore. To make matters worse doctors are trying meds like Neurontin, Baclofen, Cymbalta and Ibuprofen in combination which resulted in my kidneys failing, because they don’t want to prescribe an opiate now which works better in a low dose with less side effects. I could write a book but there is a problem when we live in a country where people care more about the right to own a gun than the right of people not to suffer! People in Physcial Pain are treated like criminals. Even animals are shot and put out of their misery. I am in such pain as I write this and have no idea what to do, and my daughter just wants her old mom back. It breaks my heart, she will graduate this year and be off to college and then I will be alone still suffering.
  • Renee Steiger
    Renee Steiger United States, Sicklerville
    Feb 11, 2017
    Feb 11, 2017
    I'm sorry The Doc. said yes I need to worry can't even post I'm so beside myself! sorry!
  • Renee Steiger
    Renee Steiger United States, Sicklerville
    Feb 11, 2017
    Feb 11, 2017
    Taking chronic pain meds is so wrong
  • Renee Steiger
    Renee Steiger United States, Sicklerville
    Feb 11, 2017
    Feb 11, 2017
    I would love to sit well bearable to sit, for long! I would love to meet you all I know the hell your in I feel for you all !
    The D.E.A. was in my Doc's office , they where coming the day I was there. I asked the next time I was there and he said yes !
See More
466

Signatures

  • 1 month ago
    Tonja United States
    1 month ago
  • 1 month ago
    Renee Steiger United States
    1 month ago
  • 5 months ago
    Ronald Grubb United States
    5 months ago
  • 6 months ago
    Jasmyne Blank United States
    6 months ago
  • 7 months ago
    Daniel Zash United States
    7 months ago
  • 8 months ago
    Susan Jeter United States
    8 months ago
  • 10 months ago
    GLORIA B CENDEJAS United States
    10 months ago
  • 10 months ago
    Karen brown United States
    10 months ago
  • 10 months ago
    nancy welch United States
    10 months ago
  • 10 months ago
    Kimberly Blake United States
    10 months ago
  • 10 months ago
    Tammy Williams United States
    10 months ago
  • 10 months ago
    Mark a crick United States
    10 months ago
  • 10 months ago
    Joseph werblo United States
    10 months ago
  • 10 months ago
    Billie jeffries United States
    10 months ago
  • 10 months ago
    Vivian Alexander United States
    10 months ago
See More