INTERNATIONAL DAY OF GILBERT'S SYNDROME

We should have an awareness month...a color a theme this syndrome has changed the way i have to live...#GSstrong

Just found out my 17 year old daughter has this.

I was diagnosed with Gilbert's syndrome in 2014 ,Following diagnosis I realised that little research had been carried out into this syndrome and some doctors had little knowledge into the potential symptoms and the impact these symptoms have on everyday life . My opinion is that more research is needed into this condition and it's impact on Health and normal everyday life . In the meantime I manage my symptoms by avoiding stress and fatigue #support causes

Suffering Gilbert Syndrome

This illness is underestimated and needs some real understanding from health proffessionals

I have GS and this needs awareness

I agree with more research wich will benefit us with GS disorder.

Even if this petition will not do the job, can we just connect with each other and discuss how to attract the attention to this problem? I have few ideas - write to me [email protected] or just post your contacts here. We need to work on that together

My son has GS.

I have Gilbert's Syndrome and it's not at all nice.

IT's a pity that this syndrome is overlooked in the medical community. There are a lot of people suffering greatly from it without being aware of the real cause. One of them was myself. Only after going through very severe symptoms I had managed to find out the strange condition of my liver which is due to inborn GS. Doctors were ridiculing me all the time saying that it is not a thing to worry about and it is really frustrating because they were all wrong, and still are. It is not a paranoia, we are experiencing so many annoying issues with the body without getting any other diagnosis than elevated bilirubin which draws the only conclusion - GS effects are way underrated. Hope that this petition will go far and bring some attention to the poorly researched medical field.

can you write your email or how to contact you? It sounds reasonable, would like to find out more.

I have GS and people don't understand why all of a sudden I get extreme tiredness. Some people laugh when you tell them it's because of Gilbert syndrome as they have never heard of it.

Awareness needs to be highlighted with Gp's!

Supporting my work mate who's just being diagnosed! More people should know about this!

I am diagnosed with Gilbert s Syndrome since May 2016 and suffer a lot of this syndrome. I wish that more scientific research could be done. Thank you got making this petition

This needs to become more recognised. If any illness was not being recognised as it should be then people get ill as a result. This same principle is happening with Gilbert's, we must sign to just try to be recognised.

I am sick of feeling sick and nobody wants to help somethingmust be done

I urge for some real research attention to be paid to finding a solution for managing GS symptoms.

Enough is enough, GS DOES HAVE SYMPTOMS. If you live it, ya know it.