INTERNATIONAL DAY OF GILBERT'S SYNDROME

For my son xx who knows all these symptoms we understand and support him- need GS to be a recognised medical condition that DOES causes symptoms

This touches my heart for everyone who has this disease. My son was finally diagnosed about a year ago after suffering for many years. I so agree that there needs to be alot of research done so that there will be help and relief for those who suffer with this. We need a cure!

My 14 year old son has missed the last 6 months of school. The only diagnosis is Gilbert's Syndrome and even our paediatrician admits she's never seen someone so debilitated by GS. Originally she said it is symptomless (despite all his symptoms).

My son has GS

Struggling With symptoms of Gilbert daily.

Please do as much research as possible to find treatment and a cure for this health issue. Thank You

My daughter has this and doctors can't give much info, at least we have a diagnosis

Please do as much research as possible to find treatment and a cure for this health issue. Thank You

I am suffering from Gilbert syndrome and every time I visit doctor with some problem like tiredness, hunger craving, tinnitus but they tell me Gilbert syndrome does not create problem ! I wish more research should be done in this !

I was diagnosed about a year ago.

Adding my support for an international day for Gilbert's Syndrome.

I know two kids with this.

Think sideways and find a cure.

Tired of drs telling me my kids have a benign condition... We need more research done to find out why they have these awful symptoms.

Just been told diagnosis but apparently dr's knew I've had it for over 3 years from previous blood test but never told me until now.

Needs to be more research into this to help those who have it have a better quality of life.

I am fed up of being told this condition is symptomless and to get on with my life. I'm tired of being tired!!

This disease is not known about by most people unless it effects yourself or a family member and it can be very life changing

It's a hidden illness that few recognise with debilitating fatigue, abdominal pain and severe itchy skin.

Please let the medical profession understand how we feel. It's not all in our heads!!