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Psoriasis patients urge support for a safe, cost-saving solution

Psoriasis patients urge support for a safe, cost-saving solution

152 signatures 98 to reach 250
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SK
Started by Sara Kofman 15 years, 10 months ago
As someone affected by psoriasis living in Illinois, I urge you to work with State Senator Maggie Crotty and State Representative Lou Lang, and other members of the General Assembly in the next session to pass legislation to reduce copayments for phototherapy treatment of psoriasis. Psoriasis, the most prevalent autoimmune disease in the country, is a non-contagious, chronic, inflammatory, painful, often disfiguring and disabling disease for which there is no cure. It requires steadfast treatment and lifelong attention.

Phototherapy is a relatively inexpensive form of psoriasis treatment and the substantial copayments often associated with phototherapy are a barrier to accessing care for patients who need this safe, effective and economical option to treat their disease and live a normal life. Copayments for phototherapy continue to rise while the burden of that cost has shifted to us, the patients.

As a result, many psoriasis patients are faced with hefty payments of $50 or more per treatment. With patients usually following a regimen of three treatments a week, out-of-pocket cost can amount to $600 dollars a month. I am concerned that these high copayments are keeping patients from using phototherapy, and as a result, they either opt out of treatment entirely or prematurely move to other therapies that may bring greater risk and/or expense.

It is our sincere hope that you will work toward a solution that will ensure patients the access to this safe, effective, first-line treatment.  Thank you.  

Updates

October 7, 2010

I have been reading your stories about the struggle to afford phototherapy and it reminds me exactly why I started this. While the General Assembly remains silent on these costs, your experiences are helping me prepare for the upcoming meetings with legislators.

October 7, 2010

Seeing this level of support reminds me that I am not fighting for my health alone. Knowing that so many of you understand the physical and financial toll of this condition gives me the strength to keep pushing for changes in the General Assembly.

Reached 100 supporters

October 7, 2010

6 Comments

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Mike Jensen
15 years ago Featured

$600 a month is insane. how are people supposed to afford rent and food when they have to pay that much just to have clear skin? RIDICULOUS.

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Jessica Sutton
15 years ago Featured

my husband needs this treatment but the cost is just too much right now. it feels like we are being forced to give up.

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David Henderson
15 years ago Featured

600 bucks a month is a car payment. fix this state legislature!!

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Sarah Greer
15 years ago Featured

Living with this pain is already hard enough without being punished by my insurance company for actually trying to get better. please help us.

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Brenda Ellis
15 years ago Featured

so tired of insurance companies treating us like dollar signs. phototherapy works for me and it should be accessible to everyone.

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Tom Morales
15 years ago Featured

do the right thing and lower these costs for people who are just trying to live their lives.

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