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Hypopara patients deserve better quality of life - make it easier for Hypopara patients to access Forteo

70 Comments

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Jennifer Ryan
7 years ago

Yes its far too expensive for the average me especially since I am 77 years old and on a service pension

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Wanda Graham
10 years ago

This medication is way too expensive. Also after being on it 6 months I am now diabetic

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Sal Sixmilliondollar
10 years ago

Can you get this in NZ???

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June Mangano
10 years ago

Please make this drug available on the pbs for these rare sufferers. All illness should be treated equitably and fairly for all human being, all Australians. Have compassion for those that suffer life changing illness everyday, for the rest if their lives. Consider their quality of life, the time they may not have remaining. Consider yourself lucky that you do not have it. Help .

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Glenys
10 years ago

Good idea

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Anonymous
10 years ago

For my daughter

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Kerrie gray
10 years ago

I have hypopara and i was shocked that i was not even aware there was another drug available for my condition number one but my goodness who could afford it. it could give so many people a better quality of life and be able to deal.with syptoms so much better.

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Raziq
10 years ago

The medication cost is too expensive. We need more support from the government to subsidise the medication and invest more in research for rare disease like hypoparathyroidism.

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Daniel kelly
10 years ago

Glad to help

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Lisa
10 years ago

Everyone needing this just to try and have a normal life should have help accessing it. Imagine if it was one of your lived ones.

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Nadine Eelman
10 years ago

Pease put om PBS - help to save lives

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Riagan Morrissey
10 years ago

Please add it to the PBS, makes a change to someones life

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Nicole Stevenson
10 years ago

Just give them the medication cheaper they need it to live a better quality life!

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Shannon kelly
10 years ago

Mother in law needs this. Please put on pbs

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Kelly cordeiro
10 years ago

Helping a friend see better days

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Lisa Loevendahl
10 years ago

A signature for me and my son. both living with hypopara!

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Andrea Dominy
10 years ago

As a Hypoparathyroidism patient I would pray you make this accessible for all.

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Kath Kelly
10 years ago Featured

I worked with a clinical nurse, who has had to give up her profession because of this condition, please listen to the pleas and assist with the funding and help these suffering this condition to have some quality

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Tia Trueman
10 years ago

Please help people with this terrible disease live a better life

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Anonymous
10 years ago

My husband, and 2 sons both have hypoparathyroidism due to a genetic fault. We pay hundreds a month for their scripts, and then add 'over the counter' meds which don't count to the Pbs safety net. I have never even heard of this medication, presumably because it's so expensive! Just because not many people suffer from this shouldn't mean they miss out on opportunities for better health.