Hypopara patients deserve better quality of life - make it easier for Hypopara patients to access Forteo
70 Comments
L
Lynne
10 years ago
The struggle with hypopara for many can be a matter of life and death. Please make this happen
J
Judy Badger
10 years ago
I've had hypoparathyroidism for 27 years (all glands sugically removed) and have never heard of this drug.
M
Melissa Wehrley
10 years ago
Hypoparathyroidism is a life long struggle. We need help.
A
Anonymous
10 years ago
This is important, people shouldn't have to suffer just because they can't afford medical treatment. It is not fair.
P
patricia
10 years ago
Please make this happen
E
Erin Gentile
10 years ago
Featured
Forteo has changed my sons life. His calcium/ phosphorus improved and also his urine calcium excretion improved as well. He took his doses divided into 3 times a day and has a very dedicated endocrinologist & nephrology team.
Everyone should have the chance to the same access of medical care & medication around the world especially with rare diseases.
N
Noela Laws
10 years ago
I do not have this illness myself, however I do know of someone who does and he could have a better outcome if he received this drug. He has been waiting for some time now. Please consider promptly. thankyou.
C
Carl Prentice
10 years ago
Just because it's rare doesn't mean it will stay that way.
A
Anonymous
10 years ago
hypoparas deserve a better quality of life!!!
K
Kimberly Martin
10 years ago
Make these meds cheaper for people who need them.
J
James Sanders
10 years ago
I have lived with Hypoparathyroidism for over 60 years, and have passed it on to all five of my sons. It is an insidious medical disorder few physicians really understand, let alone know how to properly treat it. Forteo, PTH 1-34, is a better choice among conventional regimes and could help avoid the potential of damage to the patient's kidneys over several years of treatment for active forms of vitamin D prescription only) and calcium supplements. Although it is not approved for the treatment of hypoparathyroidism, it can be prescribed off label so that the patients can at least have that option . James Sanders, Founder and President Hypoparathyroidism Association, Inc. https://www.hypopara.org
B
Bryna
10 years ago
This medication is life changing and should be accessible to all who are suffering from this disease.
S
Steve Compton
10 years ago
Featured
My wife has hypopara and has pth injections daily. Her life is hugely improved by this. Although it's expensive, it's far cheaper than bi weekly blood tests at hospital!
D
Debbie DOS Ramos
10 years ago
The cost is literally resulting in an endless living torture for patients and their families. Please make it affordable for these people. Thank you in advance for you consideration.
M
Mark Ryan
10 years ago
Featured
My son was born last year with idiopathic Hypopara and will in the future require forteo. Any drug that will give him a normal life is a must for us. Any help with the cost will help a lot.
A
Anonymous
10 years ago
Essential meds
A
Anne Leveridge
10 years ago
I have hypopara
C
Charo Paraga
10 years ago
I have this condition... so im very passionate about it ...
S
sarah devine
10 years ago
I am suffer of hypoparathyroidism and I've been taking Forteo since 2012 and it's done wonders for me.I can actually live my life now..
K
Kimberly Mitchell
10 years ago
I've had 21 years of hell, I've been on nat para for 2 months and found some life again . Please help us.
The struggle with hypopara for many can be a matter of life and death. Please make this happen
I've had hypoparathyroidism for 27 years (all glands sugically removed) and have never heard of this drug.
Hypoparathyroidism is a life long struggle. We need help.
This is important, people shouldn't have to suffer just because they can't afford medical treatment. It is not fair.
Please make this happen
Forteo has changed my sons life. His calcium/ phosphorus improved and also his urine calcium excretion improved as well. He took his doses divided into 3 times a day and has a very dedicated endocrinologist & nephrology team. Everyone should have the chance to the same access of medical care & medication around the world especially with rare diseases.
I do not have this illness myself, however I do know of someone who does and he could have a better outcome if he received this drug. He has been waiting for some time now. Please consider promptly. thankyou.
Just because it's rare doesn't mean it will stay that way.
hypoparas deserve a better quality of life!!!
Make these meds cheaper for people who need them.
I have lived with Hypoparathyroidism for over 60 years, and have passed it on to all five of my sons. It is an insidious medical disorder few physicians really understand, let alone know how to properly treat it. Forteo, PTH 1-34, is a better choice among conventional regimes and could help avoid the potential of damage to the patient's kidneys over several years of treatment for active forms of vitamin D prescription only) and calcium supplements. Although it is not approved for the treatment of hypoparathyroidism, it can be prescribed off label so that the patients can at least have that option . James Sanders, Founder and President Hypoparathyroidism Association, Inc. https://www.hypopara.org
This medication is life changing and should be accessible to all who are suffering from this disease.
My wife has hypopara and has pth injections daily. Her life is hugely improved by this. Although it's expensive, it's far cheaper than bi weekly blood tests at hospital!
The cost is literally resulting in an endless living torture for patients and their families. Please make it affordable for these people. Thank you in advance for you consideration.
My son was born last year with idiopathic Hypopara and will in the future require forteo. Any drug that will give him a normal life is a must for us. Any help with the cost will help a lot.
Essential meds
I have hypopara
I have this condition... so im very passionate about it ...
I am suffer of hypoparathyroidism and I've been taking Forteo since 2012 and it's done wonders for me.I can actually live my life now..
I've had 21 years of hell, I've been on nat para for 2 months and found some life again . Please help us.