Hyper PARAThyroid Disease-Alert the media!

I’ve been suffering of Hpt for 10 years without knowing it.,I had surgery 9 months ago and I’m still going through it..it’s important to inform people about this unknown desease.

I have this disease and know from personal experience how underveducated the medical profession is in this area. We need urgent investigation and further research to combat the misery many experience trying to get help from the medical profession.

A friend finally got this diagnosis recently and has just had the surgery. The only time I have come across parathyroid disease before was in recovering anorexics (I was a dietitian).

It took 6 mths n 3 admissions to get a diagnosis which should have taken a couple of blood tests! The lask of training among Doctors and even Consultants is staggering.

I have been battling parathyroid disease the past 10yrs and now it may be returning

This disease is not rare. Many people spend years getting diagnosed mostly because the lack of education in physicians and the labs not breaking down calcium levels by age.

I am waiting diagnosis but have elevated PTH and calcium levels

I have suffered for at least 4 years with this beastly disease. I think some GPS thought that I was a melodramatic menopausal woman. I KNEW something was wrong but it took the surgery 2 yrs to do a simple serum calcium test.

I have had documented elevated calcium levels from 2013 but this was not considered to be an issue by my NHS medical practice. Fast forward to 2017 and I've now been diagnosed with having this disease. Why does it take so long to be taken seriously and why do the general public, as well as most GPs, not know about this?

I am battling to get a diagnosis at the moment it's a very slow and frustrating struggle. Doctors do not know or recognise the disease and tend to have a "wait and see" attitude which is no help when you are suffering any of the symptoms. A better understanding of the disease is desperately needed within the medical profession along with a swifter attitude towards curing it with the relevant surgery.

I was told I had high blood calcium 7 years before I was finally told what it meant....that I had a parathyroid adenoma. My calcium was only slightly raised...but it still indicated the adenoma that needed to be surgically removed. 7 years of unexplained symptoms, when the sign was there all the time.

More awareness would save lives and save NHS budgets.

I have been diagnosed for 3 years now and have probable been suffering much longer from bone pain, digestive problems depression and difficulty concentrating amongst my symptoms. I am soon to have my parathyroid operation and am hoping for a complete recovery or at least greatly improved quality of life.

This illness destroys lives, doctors need to be shown this is a serious disease and not trivial as my doctor thinks it is.

And I feel so much better since I had one removed.

I thoroughly endorse this petition.

This is am awful disease - more research and public awareness would help. It ruins lives, careers and relationships. Please take it seriously when dealing with people who have it.

Hyperparathytiodism has had such a big impact on my work and home life, I, like many others have had the operation but it has only cured one of my symptoms and I seem to be a medical mystery to my doctor. Thank God for the support groups I've found, I'm now trying to question things with my GP but in a more informed way thanks to these groups. The 'brain fog' which has significantly affected my memory, focus and concentration has had such an impact that I may still lose my job due to a decrease in my performance. Please sign to spread awareness.

terrible painful killer disease,,need leaflets in doctors surgeries..

This is long overdue and has become an urgent matter requiring attention. I am meeting more and more folk who have spent way too long trying to get help and this disease can be life threatening and surgery is the only cure.