Hyper PARAThyroid Disease-Alert the media!

I was lucky to find the Norman Parathyroid webpage during my first internet search on parathyroid disease. I read ALL of their information in 3 days and submitted to be a patient, although my doctors had never tested me for the disease. My urologist mentioned it due to a diagnosis of multiple kidney stones. NPC removed 2 adenomas. I "fired" my endocrinologist due to his failure to pursue a condition that should have been diagnosed by my labs, nevermind the multiple symptoms.

I have this disease. It is life affecting.

Awareness of this awful, debilitating illness needs to be brought forward. It is hell to live with.

My daughter has this. It’s stealing her life away.

I was diagnosed with PHPT in 2015, my blood levels are still being monitored and I have just this week had an Ultrasound scan which shows an Adenoma, and a Dexa scan which I have to wait for six weeks for the results.

I have pth @168. Calcium only 8.6 I have most of the symptoms of pt diesease. But I have medicaid. Waiting to see an endocrinologist. I have researched, it needs more coverage in the media. Thank you

We need Australia more education.

My daughter has had this for 10 years or so , she is now 20

This is a terrible disease that needs to be put in the eye of the nhs more. This is serious and deadly. With th ehelpnof the NHL’s it can save many lives and help families. People are suffering in silence for no reason and are often mis-diagnosed, they live in pain and feel worthless. Let’s put a stop to something that is a straightforward procedure and allow people to be heard and live freely once again.

I have Hyper Parathyroid Disease and nothing is done about it except I am given vitamin D to absorb the calcium.

This disease has changed my life for the worse. The constant pain, my emotions and my mind. People need to be made more aware about this as it's a lonely place to be when no one understands how much it affects someone's life

I would like a cause & cure like yesterday.... we are in the 21stC hence this common disease should have been funded years ago and results found by know

I had never heard of this —that is until I put the pieces of the puzzle together while researching high calcium, and then finding all my many symptoms that came with search results!

I had this dreadful disease for at least 6 years. Nearly killed me

my mum is going through this right now

Had this for 15 years but only got diagnosed last year! It has been a15 years and now I've over 50 and finding myself increasingly unable to work even though I'm battling through at the moment. Endocrinologist is following the script on this one so unlikely to get the op even though I've finally been diagnosed. How frustrating!

Please sign and share. I have this disease and have had it for years I believe. After countless tests and emergency room visits and now no gallbladder which when biopsies was healthy, heart Wall now has some buildup plus days and years gone to suffering all due to “ watch and wait” philosophy of docs. All they needed to do was put the puzzle together and take a PTH blood test that would have tied it all together. This is not acceptable! Took charge found the best surgeon for me and now I am feeling so much better!!

8 years ago Featured

Anyone with this disease should be sorted as soon as possible it would save the NHS MILLIONS OF POUNDS A YEAR. It's a destructive disease so instead of letting it destroy a body by doing a wait and see that won't go away. Remove the problem .

this should be treated right away and more people should be aware of it and doctors should be testing calcium levels

this should be treated right away and more people should be aware of it and doctors should be testing calcium levels