Hyper PARAThyroid Disease-Alert the media!

6 months since initial diagnosis I'm still waiting to see an endocrinologist. Meanwhile, my symptoms worsen. Knowing a quick operation will cure it, the wait is ridiculous!

Medical practitioners need educating about their ‘watch and wait’ approach destroys lives. The lack of knowledge on what symptoms should prompt a simple blood test needs evaluating. STOP telling people that they are depressed or have fibromyalgia and get to the cause of the suffering

I have been diagnosed with this and am now awaiting to have surgery but I'm one of the lucky ones. Most medical professionals, including GPs, endocrinologists and endocrine surgeons, are woefully educated about this illness. They either adopt the 'wait and see' approach - which they shouldn't as it's a progressive condition - or they treat or misdiagnose the separate symptoms; depression, bone pain, gastro intestinal problems, hair loss, kidney stones, panic attacks, etc., without looking for the cause of the symptoms by simply checking the calcium, parathyroid and vitamin D levels from the one blood draw. It's not good medical practice and it leaves people undiagnosed and suffering for years.

I have been diagnosed with this and am now awaiting to have surgery but I'm one of the lucky ones. Most medical professionals, including GPs, endocrinologists and endocrine surgeons, are woefully educated about this illness. They either adopt the 'wait and see' approach - which they shouldn't as it's a progressive condition - or they treat or misdiagnose the separate symptoms; depression, bone pain, gastro intestinal problems, hair loss, kidney stones, panic attacks, etc., without looking for the cause of the symptoms by simply checking the calcium, parathyroid and vitamin D levels from the one blood draw. It's not good medical practice and it leaves people undiagnosed and suffering for years.

Education, education, education is required by medical staff on this very poorly diagnosed debilitating illness urgently.

People need too be aware of this life changing disease. And doctor s need to stop fobbing us off and playing it down. It's a living nightmare !

A serious and very underplayed disease that causes long term and irreversible damage to the body. The cure is straightforward but so many people are suffering everyday needlessly. Raise awareness.

I have this disease and I wouldn’t wish it on anyone’ I wish doctors would listen to us a lot of them are ignorant

Ten years of my life with no doctor having a clue as to my Hyperparathyroidism .. thankfully I found one last year .. just one!!! It was killing me and I am in recovery now after annop to remove a tumour. Much more needs to be done!!! Thank you

Ten years of my life with no doctor having a clue as to my Hyperparathyroidism .. thankfully I found one last year .. just one!!! It was killing me and I am in recovery now after annop to remove a tumour. Much more needs to be done!!! Thank you

I have hyper parathyroidism

My daughter is still young and has undergone surgery for this debilitating disease. Raising awareness is vital to ensure early diagnosis and treatment.

having 2 adenomas removed, I know the destruction this disease can cause

Having been diagnosed with phpt, I don’t want anyone else to have to fight for diagnosis and surgery. Raising awareness is key!

I was only diagnosed after suffering a heart attack. My calcium level was 3.6

Dehabilitating disease

Dreadful disease that can be overlooked for years, yet can be cured by a small operation.

I had surgery in August 3017 after years of bone pain, confusion and struggling on a daily basis. I lost my job and it did more than destroyed my health.

I am also a sufferer.

I am pre op after being diagnosed with this terrible disease 3 years ago. It is so debilitating and sucks all the joy out of ones life.