I suffered with this disease for several years. I have only one kidney and was producing kidney stones daily. The muscle and bone, along with a host of other horrible symptoms, made my life very difficult to enjoy and turned me into a hermit. I wasted precious time and money seeking help from many doctors. All of them told me it was NOT a parathyroid tumor, causing my declining health, but could offer no other explanation. After doing my own research and with the help of a great Facebook forum, I contacted an expert in the field and flew to California, to have a tumor removed. It was life changing and I am regaining what I lost and rebuilding my health. Education about this disease is desperately needed, worldwide! No one should have to suffer the way thousands do each day, while trying to find a doctor that would help them.
C
Carmen Minovski
12 years ago
So over doctors testing and retesting , you show them an ultrasound but they want it done again . Just to prove you wrong . Why ? Why are doctors so adamant to want to prove you wrong ... You get an abnormal test and they retest it until it goes normal. How many years of suffering and being very symptomatic do we have to wait until the numbers match how Ill we are.
A
Andréa Mallon
12 years ago
The sooner the world wakes up to this terrible disease the better
S
Shannon Benavidez
12 years ago
My mother is dying from primary HPT. Surgery is scheduled for 6/24. She was just diagnosed in mid-May... We found out she's had the disease at least 20 years!!! AND she's been symptomatic for at least 15 years with consistently high CA levels for 2 decades! A RESIDENT diagnosed her during a recent hospital stay for kidney failure! I trust one Dr only, the surgeon who will operate on my mom.
S
Sue Wheeler
12 years ago
more awareness of this condition required
M
Michelle O'Rourke
12 years ago
United States
S
Shirley List
12 years ago
I was diagnosed in 2007. Tests were done and the wait and see approach. I had surgery in 2012 but the doctors were unable to find the bad gland. I am waiting again and my symptoms are really interfering with my life.
C
Carol Hale
12 years ago
Surgery June 2011
J
Jessica
12 years ago
Spread the awareness
R
Robin O'Leary
12 years ago
Hyperparathyroid disease knocked me for a loop. It took over seven months to finally be diagnosed and I know i have been dealing with the symptoms for over two years, I am starting a blog at parathryoidblog.com for anyone to share their stories on how hyperparathryoidism has effected them. You are so right...it is so important that the population become cognizant of this disease and the impact it has on peoples lives.
C
Carol Rice
12 years ago
I really didn't enjoy losing yrs. of my life from this. From the pain to the fatigue to the insomnia and having to force feed because I didn't want to eat. Too many doctors told me I didn't have it so I ended up on uppers and downers and pain pills. Now it seems I can't get good post surgery treatment, just "no"'s and cold shoulders!
J
Judith Schaefer
12 years ago
I have been suffering for years with this. All I get us let's try this and the vitiman D thing! Lost one kidney already!!! Drs need to learn more about this! Plzzzz
J
judy Prachnau
12 years ago
Have successfully been treated, after having had hundreds of kidney stones, enduring excruciating pain, many emergent visits and lithotripsy. Investigation all done by a urologist.
A
Anonymous
12 years ago
Come on drs....get educated and help us that are suffering
N
Neisha
12 years ago
Too many Dr's are incapable of listening to symtoms, are too quick to fob you off, give you a script for something unrelated, whilst your condition worsens.
Bedside manner, compassion, listening skills and a willingness to help seems a thing of the past with most Standard GP's. This needs to change.
Listen! Don't ignore! Patients know their body better than you ever will.
R
Ria Montauban
12 years ago
2 of my grandchildren have thyroid problems, I want them to be helped.
R
Ruth Parkin
12 years ago
Definitely needs bringing to more people's attention, I am sick of feeling like I have to explain myself to people just because it's not a visible illness.
A
Audrey Schrecengost
12 years ago
I have said it often. They should rename this disease and simply call it Hell. Doctors are not taught how to correctly diagnose this disease, and they refuse to learn when we try to teach them. This needs to change! They need to be taught differently from the start. So much suffering could be prevented!!
A
Anke Catesby
12 years ago
Two years now I have been searching for a diagnosis. Five specialists and much speculation later, and I am no closer to resolving my crippling illness.
P
pat szacik
12 years ago
This is a nasty disease and needs to be taken seriously. There are good Drs. out there that know what should be done. If yours won't listen find one that will. Your life depends on it.
I suffered with this disease for several years. I have only one kidney and was producing kidney stones daily. The muscle and bone, along with a host of other horrible symptoms, made my life very difficult to enjoy and turned me into a hermit. I wasted precious time and money seeking help from many doctors. All of them told me it was NOT a parathyroid tumor, causing my declining health, but could offer no other explanation. After doing my own research and with the help of a great Facebook forum, I contacted an expert in the field and flew to California, to have a tumor removed. It was life changing and I am regaining what I lost and rebuilding my health. Education about this disease is desperately needed, worldwide! No one should have to suffer the way thousands do each day, while trying to find a doctor that would help them.
So over doctors testing and retesting , you show them an ultrasound but they want it done again . Just to prove you wrong . Why ? Why are doctors so adamant to want to prove you wrong ... You get an abnormal test and they retest it until it goes normal. How many years of suffering and being very symptomatic do we have to wait until the numbers match how Ill we are.
The sooner the world wakes up to this terrible disease the better
My mother is dying from primary HPT. Surgery is scheduled for 6/24. She was just diagnosed in mid-May... We found out she's had the disease at least 20 years!!! AND she's been symptomatic for at least 15 years with consistently high CA levels for 2 decades! A RESIDENT diagnosed her during a recent hospital stay for kidney failure! I trust one Dr only, the surgeon who will operate on my mom.
more awareness of this condition required
United States
I was diagnosed in 2007. Tests were done and the wait and see approach. I had surgery in 2012 but the doctors were unable to find the bad gland. I am waiting again and my symptoms are really interfering with my life.
Surgery June 2011
Spread the awareness
Hyperparathyroid disease knocked me for a loop. It took over seven months to finally be diagnosed and I know i have been dealing with the symptoms for over two years, I am starting a blog at parathryoidblog.com for anyone to share their stories on how hyperparathryoidism has effected them. You are so right...it is so important that the population become cognizant of this disease and the impact it has on peoples lives.
I really didn't enjoy losing yrs. of my life from this. From the pain to the fatigue to the insomnia and having to force feed because I didn't want to eat. Too many doctors told me I didn't have it so I ended up on uppers and downers and pain pills. Now it seems I can't get good post surgery treatment, just "no"'s and cold shoulders!
I have been suffering for years with this. All I get us let's try this and the vitiman D thing! Lost one kidney already!!! Drs need to learn more about this! Plzzzz
Have successfully been treated, after having had hundreds of kidney stones, enduring excruciating pain, many emergent visits and lithotripsy. Investigation all done by a urologist.
Come on drs....get educated and help us that are suffering
Too many Dr's are incapable of listening to symtoms, are too quick to fob you off, give you a script for something unrelated, whilst your condition worsens. Bedside manner, compassion, listening skills and a willingness to help seems a thing of the past with most Standard GP's. This needs to change. Listen! Don't ignore! Patients know their body better than you ever will.
2 of my grandchildren have thyroid problems, I want them to be helped.
Definitely needs bringing to more people's attention, I am sick of feeling like I have to explain myself to people just because it's not a visible illness.
I have said it often. They should rename this disease and simply call it Hell. Doctors are not taught how to correctly diagnose this disease, and they refuse to learn when we try to teach them. This needs to change! They need to be taught differently from the start. So much suffering could be prevented!!
Two years now I have been searching for a diagnosis. Five specialists and much speculation later, and I am no closer to resolving my crippling illness.
This is a nasty disease and needs to be taken seriously. There are good Drs. out there that know what should be done. If yours won't listen find one that will. Your life depends on it.