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Hyper PARAThyroid Disease-Alert the media!

547 Comments

K
Kathy fisher
11 years ago

I'm more than happy to share my story any time...

J
Jill Brooks
11 years ago

I don't want others to have to suffer as I did while my doctor ignored my high calcium and told me my complaints of exhaustion, joint pain and memory loss were symptoms of "old age". Thank God I was searching on-line for help and discovered www.parathyroid.com I've had my tumorous gland removed and am looking forward to a life again . I want other people to have the same opportunity to be cured. But the disease has to become more widely known about or people will continue to suffer as I did for so many years! PLEASE help spread the word!

J
Jill Brooks
11 years ago

I don't want others to have to suffer as I did while my doctor ignored my high calcium and told me my complaints of exhaustion, joint pain and memory loss were symptoms of "old age". Thank God I was searching on-line for help and discovered www.parathyroid.com I've had my tumorous gland removed and am looking forward to a life again . I want other people to have the same opportunity to be cured. But the disease has to become more widely known about or people will continue to suffer as I did for so many years! PLEASE help spread the word!

V
Virginia
11 years ago

I'm looking forward to the success of your interest in this disease. I was diagnosed with HPTD 10 years ago, ENT Dr. Did surgery in the hopes of finding the "hot" parathyroid gland but did not find it. He removed my thyroid gland and now, lucky me, I get to take a pill every morning. I have had repeated nuclear scans, ultra sounds, ct scans and still no hot spot. My calcium levels have remained high and still are in all these years.

V
Virginia
11 years ago

I'm looking forward to the success of your interest in this disease. I was diagnosed with HPTD 10 years ago, ENT Dr. Did surgery in the hopes of finding the "hot" parathyroid gland but did not find it. He removed my thyroid gland and now, lucky me, I get to take a pill every morning. I have had repeated nuclear scans, ultra sounds, ct scans and still no hot spot. My calcium levels have remained high and still are in all these years.

S
Susan J Caine
11 years ago

The medical community is scary stupid and we are suffering because of it ... the medically employed need to be accountable for their ignorance to encourage them to want to learn ... media, please help us!

S
Susan J Caine
11 years ago

The medical community is scary stupid and we are suffering because of it ... the medically employed need to be accountable for their ignorance to encourage them to want to learn ... media, please help us!

D
Deborah Lee Ganzi
11 years ago

Common undiagnosed disease AWARENESS

D
Deborah Lee Ganzi
11 years ago

Common undiagnosed disease AWARENESS

S
Susan Vanhinsbergh
11 years ago

Here in England we do not routinely have blood tests done unlike in the USA where insurance demands it. Consequently the doctors are not being alerted and the common symptoms of Hyperparathyroidism are often trivialized.

S
Susan Vanhinsbergh
11 years ago

Here in England we do not routinely have blood tests done unlike in the USA where insurance demands it. Consequently the doctors are not being alerted and the common symptoms of Hyperparathyroidism are often trivialized.

E
Emilia Porto
11 years ago

i was so sick! It took a very good GP in London, UK suspect and after let down by 2 top specialist in London - the GP suggested I went private. So I did! I found Dr Normal and after a simple operation I am my normal self! So much pain and suffering I went through could be avoid if all doctors were properly aware of the disease and how simple it is too cure it!! Education education education

E
Emilia Porto
11 years ago

i was so sick! It took a very good GP in London, UK suspect and after let down by 2 top specialist in London - the GP suggested I went private. So I did! I found Dr Normal and after a simple operation I am my normal self! So much pain and suffering I went through could be avoid if all doctors were properly aware of the disease and how simple it is too cure it!! Education education education

C
Cathy Baptista
11 years ago

Started with symptoms in 1999. Got a diagnosis of parathyroid tumor 2014 after cardiac ablation, two kidney surgeries, osteoporosis. Only symptom I didn't have was headache. Saw 6 rheumatologists with elevated calcium above 10. Change lab values and education. Thank you dr Norman.

C
Cathy Baptista
11 years ago

Started with symptoms in 1999. Got a diagnosis of parathyroid tumor 2014 after cardiac ablation, two kidney surgeries, osteoporosis. Only symptom I didn't have was headache. Saw 6 rheumatologists with elevated calcium above 10. Change lab values and education. Thank you dr Norman.

N
Nicola Mott
11 years ago

I remember going to the doctors at 23, 7 years ago complaining of the awful aches I had, only to be laughed at and told, what problems could someone your age have with their back. By this time I'd already had 2 kidney stones and high calcium levels. All symptoms were "something I'd have to live with." Now I'm 30, just 30 and feel like my nan, a 70 year old woman with dementia. I've had to close my business. My life would be so different now if doctors were better educated. It's not as rare as people think, I have it, my mum has it, and my mums next door neighbour has.

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Nicola Mott
11 years ago

I remember going to the doctors at 23, 7 years ago complaining of the awful aches I had, only to be laughed at and told, what problems could someone your age have with their back. By this time I'd already had 2 kidney stones and high calcium levels. All symptoms were "something I'd have to live with." Now I'm 30, just 30 and feel like my nan, a 70 year old woman with dementia. I've had to close my business. My life would be so different now if doctors were better educated. It's not as rare as people think, I have it, my mum has it, and my mums next door neighbour has.

R
ronnie chapman
11 years ago

Dont wait until your body is ruined, two simple blood tests can,diagnose this awful disease, a calcium and parathyroid taken at the same time. Would save the NHS millions spent on expensive scans.

R
ronnie chapman
11 years ago

Dont wait until your body is ruined, two simple blood tests can,diagnose this awful disease, a calcium and parathyroid taken at the same time. Would save the NHS millions spent on expensive scans.

R
ronnie chapman
11 years ago

Dont wait until your body is ruined, two simple blood tests can,diagnose this awful disease, a calcium and parathyroid taken at the same time. Would save the NHS millions spent on expensive scans.