Hyper PARAThyroid Disease-Alert the media!

We need Drs to be much better educated about this disease so they can offer appropriate support and referral.

To many individuals are going undiagnosed because of basic lack of knowledge. Making their lives a misery and wasting NHS funds treating symptoms and not the disease.

This is a very insidious and debilitating disease and there is far too little info and knowledge about it. Most people seem to take ages to be diagnosed when a simple calcium test can check it out.

I hope you find help .....and people will become more aware good luck...

Please stop the suffering.

I suffered for years with this disease at the hands of over 35 doctors over a span of ten years. It left me with high blood pressure, kidney stones, GERD, widespread body pain & less friends. People - including doctors - thought I was a hypochondriac.

My mother suffers from this disease. She had it for many, many years but doctors told her her symptoms were related to menopause! American doctors - including Mayo - are misdiagnosing this at alarming rates.

A well respected endocrinologist at U of C insisted I didn't have Hyperparathyroidism. Her (more respected colleague) at the same facility (at my choice) removed 3 (out of 4 glands) that were large adenomas. I'd been suffering with this disease for over 20 years (and had correctly self diagnosed 17 years before my surgery). A HUGE WAKE UP CALL IS NECESSARY HERE!

Wicked disease

Diagnosed in October 2015 yet suffered from symptoms for years, can barely walk most days. All this suffering when it could have been diagnosed much sooner if my GP's had thought to put all my symptoms ( depression, bone pain,anxiety, chronic fatigue, poor memory, brain fog,dry skin, IBS, etc),together and tested my PTH as a few years back when my calcium was high and Vitamin D low but was never informed. I feel very cheated as years of my life have been destroyed and lost to this disease

I was diagnosed at 33 years old from a urine tract infection then to find out I had kidney stones then finally I had a blood test done.

Knowledge is power!

This disease has destroyed my body and life, awareness is crucial

My daughter had this, and unfortunately had to go through two surgeries before she was cured. The first surgeon didn't know what he was doing and took out the 3 good glands but left the bad one. There really needs to be more awareness and education about this disease - for the doctors, especially.

My daughter has had Parathyroid disease for many years now. She has a battalion of doctors who all dismissed her complaints for many years. She finally ordered a urine test for Parathyroidism from an internet site. When the test came back positive and she took the results to her doctors., they were STILL skeptical. But they did finally perform a blood test which proved the results of the first test. Today's physicians seem to think it's a rare condition. Of course it's rare if they never test for it! Imagine the generations of people who were never diagnosed and lived and died with this RARE condition. It seems more convenient for physicians to put their patients on psychiatric drugs to ease their symptoms and classify them as nut cases. I'm now convinced that my mother (who passed away 2 years ago) and some of my relatives are affected by this disease. We definitely need more research and education on the symptoms and the relatively simple surgery to fix them. The first ones to need education are the doctors.

My mom suffered for a long time without being diagnosed.

My mom suffered for many, many years before doctors diagnosed her.

Suffered for many many years @ the hands of over 20 doctors in total.

I suffered in misery for almost 10 years with exhaustion, horrible joint and bone pain, loss of memory and concentration and very uncharacteristic displays of irrational anger. My doctor ignored my high calcium levels and told me I needed to accept the fact I was getting old. I knew something was very wrong and finally discovered a website on-line about Hyperparathyroidism. I had 17th of the 21 listed symptoms, and further testing showed me to have all but two of them.. My doctor told me I did not have the disease, but reluctantly performed the blood tests for me. When they proved I did have it he said the surgery would not help me. Six weeks later my Adenoma was removed by Dr. Norman at Tampa General Hospital and my 13 year old son has his mother back instead of the depressed, exhausted shrieking crazy lerson I had become. I have since discovered that my mother died of this disease because her doctors ignored her "only slightly high" calcium levels for many, many years. I now know it is NOT necessarily common to develop aches and pains, fatigue and poor memory as we grow older. I have met literally dozens of other people through Facebook, who have gone through the same process I did of being ignored by their doctors until frustration sent them to the Internet to discover what their illness was. Some of them were put on psychiatric meds or even put in mental hospitals because they had the "audacity" to insist their doctors were wrong and something truly was wrong with them! Please help us to get the word out to the public and to doctors so other people will not have to suffer needlessly as I did, and so many others have!

14 years of hell before I had the operation to remove a tumour in my neck that had destroyed my life! This is no exaggeration. The medical profession need to get a grip and save the NHS millions by dealing with it promptly. Thanks to ridiculous diagnoses such a fibromyalgia, I could have lost literally everything!