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The Subcommittee finally crawled out of their silence and pushed H.Res.1037 forward after years of letting it rot in the dark. We forced them to stop ignoring this disease and acknowledge the thousands of us who deserve real attention. Keep your eyes on the next steps because we are finally …

October 10, 2012

H.Res.1037 - Hidradenitis Suppurativa Awareness Month

H.Res.1037 - Hidradenitis Suppurativa Awareness Month

🏆 Won — 148 supporters Verified

Final supporters

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Rob H.
L
Louria R.
M
Melissa F.
K
Kevin K.
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Stephanie w.
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Phyllis A.
A
Aniyah S.
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Ellen G.
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rachel c.
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DEIDRE K.
+138 more
Started by Anonymous 14 years, 10 months ago
In March, 2008, Mr. Steve Kagen presented a resolution to the House asking for June to be designated as National Hidradenitis Suppurativa Awareness Month. After his presentation, it was referred to the Subcommittee on Health on March 10, 2008. Since then, it appears to have sat collecting dust. It has now been over 3 years, and we still have no National Hidradenitis Suppurativa Awareness Month. When will the sufferers of this debilitating, incurable and often misunderstood disease be represented by our government? Its time we speak up and tell them to pull H.Res.1037 off the shelf and ask President Obama to approve it. This would be a great step towards furthering research, treatment, and most of all, widespread knowledge and understanding of this disease. Many sufferers often go years, sometimes decades, with no diagnosis because the medical community has so little information about HS. It has been too long now, that we have sat hoping for recognition, while the past three years this piece of legislation has been tucked away and forgotten. If you are an HS sufferer, or know someone who is, please sign this petition and ask congress to pick up where they left off, make June the National HS Awareness Month, and help increase understanding of HS in the medical community and the country as a whole.

The full text of the bill can be found here:
http://www.opencongress.org/bill/110-hr1037/text

Updates

September 3, 2012

The Subcommittee on Health has let H.Res.1037 rot in the dark for far too long while we suffer in silence. This surge in support proves they cannot keep ignoring us forever. We are dragging this resolution out of the trash heap and forcing them to acknowledge the pain they have dismissed for years.

Reached 100 supporters

September 3, 2012

10 Comments

K
Kevin Kearse
9 years ago Featured

This should really be addressed I have suffered from this since age 7 and I'm 36 now this disease is no joke

P
Phyllis A Braniff
10 years ago Featured

Hidradenitis Suppurativa, is an "Incurable" Disease, that we have not asked for ... It is pne of the "Most Painful Diseases," & an Extremely Complicating Disease! We Need Support, even financial!

A
Ashley Kraus
10 years ago Featured

I have suffered for almost 8 years after being diagnosed at 18. I am now only 25 years old and live a life so full of pain that some days I just don't think its worth it. There needs to be more awareness for our suffering and pain.

L
Lyntina Solomon
10 years ago Featured

I have HS and have had it since I started puberty at the age of about 12. I have had 3 surgeries in regards to Hs alone. Also i would like to see more studies and research done on this terrible disease. Please make this a priority in 2016.

L
Lola Parker
12 years ago Featured

Has this bill passed yet? I am working on a Doc about HS and this is key information to raise awareness.

S
Sarah Dixon
14 years ago Featured

I was diagnosed at 22 and it has completely ruined my confidence. Doctors act like I am making it up half the time. We really need people to start listening.

M
Melissa Focht
8 years ago

This is hell! Cause awareness so we can find a cure!

J
JJ King
11 years ago

I have HS