Dear Representative
The Functional Gastrointestinal and Motility Disorders Research Enhancement Act, H.R. 2311 was introduced into the 114th Congress in 2015. This is an extremely important piece of legislation for individuals affected by digestive diseases.
This bill amends the Public Health Service Act August 29, 2016
to require the National Institutes of Health to expand, intensify, and coordinate its activities with respect to functional gastrointestinal and motility disorders (FGIMDs), including by:
• expanding basic and clinical research into FGIMDs by implementing the research recommendations of the National Commission on Digestive Diseases,
• providing support for the establishment of centers of excellence on FGIMDs,
• supporting innovative approaches to educating health care providers and patients regarding strategies that improve patient-provider relationships and care,
• directing the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) to provide the necessary funding for the continued expansion and advancement of the FGIMDs research portfolio, and
• directing NIDDK and the Eunice Kennedy Shriver National Institute of Child Health and Human Development to expand research into FGIMDs that impact children.
The Department of Health and Human Services may engage in public awareness and education activities to increase understanding and recognition of FGIMDs.
Billie Sweeney, a wife, mother, daughter, sister, aunt, niece, cousin, coach, teacher, and friend passed away June 5, 2016, after a 21 year battle with Gastroparesis (paralysis of the stomach). During the 21 years of her fight against Gastroparesis, she also fought for Gastroparesis Awareness. She did not want one more person to not be able to eat and digest his/her food, puke and feel nauseated, and be in pain 24 hours each day like she was. Currently, there is no cure and few viable or effective treatment options for Gastroparesis and several other digestive diseases.
The H.R. 2311 Bill would eliminate the lack of education, awareness, and help that those suffering with digestive diseases are begging for. It is in her memory and all the other Americans that continue to suffer with digestive diseases that we ask you to continue to support this important legislation as a co-sponsor. We are also asking that when you go back in to session that you do everything in your realm to get this bill passed. Please help the millions of Americans who suffer every day from these debilitating diseases.
Thank you.
Updates
September 9, 2016
just saw we hit 500 signatures on this. honestly didnt think hed get this much traction when i started but im really glad people are taking notice.
Reached 500 supporters
September 7, 2016
September 5, 2016
i honestly cant believe how much momentum this has picked up lately. its amazing to see so many people who actually care about getting h.r. 2311 passed and i am so glad we are all moving forward together.
September 5, 2016
we are almost at 500 names and the momentum is finally picking up. if you can send this link to a few people today we can hit that goal by tonight.
Reached 100 supporters
September 1, 2016
86 Comments
As a nurse watching this dibiliating disease slowly take away family members, everyone feeling hopeless and knowing what to do. I fight for Billie!
Please Help to better manage and to find a cure for this disorder that devastates victims, family and friends who love them. Thank You
I have gastroparesis and there is no known cure! Little information is available and even the doctors have different opinions on the cause and treatment for the different stages. We need more studies, more grants, more coverage of this awful disease.
I suffer from gastroparesis. I feel sick or in pain every single day! I cannot eat most foods which makes a person want to be unsocial. EVERY event seems to evolve around food...food that I cannot eat. I pray every day that a cure or some sort of relief is found for those of us suffering from this horrible disease, gastroparesis.
In memory of Billie and all those suffering with this disease, please look long and hard at the bill and pass it.
I am respecting the locations like this for 10 years almost. I have had a very good friend who is a Vietnam veteran you have been feeling like this for well over 10 years, as long as I'm not I am respecting the locations like this for 10 years almost. I have had a very good friend who is a Vietnam veteran you have been feeling like this for well over 10 years, as long as i've known him.
There are fellow Americans that need our help. Please do the right thing, please!
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Dear Representative
The Functional Gastrointestinal and Motility Disorders Research Enhancement Act, H.R. 2311 was introduced into the 114th Congress in 2015. This is an extremely important piece of legislation for individuals affected by digestive diseases.
This bill amends the Public Health Service Act August 29, 2016
to require the National Institutes of Health to expand, intensify, and coordinate its activities with respect to functional gastrointestinal and motility disorders (FGIMDs), including by:
• expanding basic and clinical research into FGIMDs by implementing the research recommendations of the National Commission on Digestive Diseases,
• providing support for the establishment of centers of excellence on FGIMDs,
• supporting innovative approaches to educating health care providers and patients regarding strategies that improve patient-provider relationships and care,
• directing the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) to provide the necessary funding for the continued expansion and advancement of the FGIMDs research portfolio, and
• directing NIDDK and the Eunice Kennedy Shriver National Institute of Child Health and Human Development to expand research into FGIMDs that impact children.
The Department of Health and Human Services may engage in public awareness and education activities to increase understanding and recognition of FGIMDs.
Billie Sweeney, a wife, mother, daughter, sister, aunt, niece, cousin, coach, teacher, and friend passed away June 5, 2016, after a 21 year battle with Gastroparesis (paralysis of the stomach). During the 21 years of her fight against Gastroparesis, she also fought for Gastroparesis Awareness. She did not want one more person to not be able to eat and digest his/her food, puke and feel nauseated, and be in pain 24 hours each day like she was. Currently, there is no cure and few viable or effective treatment options for Gastroparesis and several other digestive diseases.
The H.R. 2311 Bill would eliminate the lack of education, awareness, and help that those suffering with digestive diseases are begging for. It is in her memory and all the other Americans that continue to suffer with digestive diseases that we ask you to continue to support this important legislation as a co-sponsor. We are also asking that when you go back in to session that you do everything in your realm to get this bill passed. Please help the millions of Americans who suffer every day from these debilitating diseases.
Thank you.
Updates
September 9, 2016
just saw we hit 500 signatures on this. honestly didnt think hed get this much traction when i started but im really glad people are taking notice.
Reached 500 supporters
September 7, 2016
September 5, 2016
i honestly cant believe how much momentum this has picked up lately. its amazing to see so many people who actually care about getting h.r. 2311 passed and i am so glad we are all moving forward together.
September 5, 2016
we are almost at 500 names and the momentum is finally picking up. if you can send this link to a few people today we can hit that goal by tonight.
Reached 100 supporters
September 1, 2016
86 Comments
Any disease that can kill needs to have funding to help prevent it. We have to much technology to let even less deadly diseases go unnoticed.
As a nurse watching this dibiliating disease slowly take away family members, everyone feeling hopeless and knowing what to do. I fight for Billie!
Please Help to better manage and to find a cure for this disorder that devastates victims, family and friends who love them. Thank You
I have gastroparesis and there is no known cure! Little information is available and even the doctors have different opinions on the cause and treatment for the different stages. We need more studies, more grants, more coverage of this awful disease.
I suffer from gastroparesis. I feel sick or in pain every single day! I cannot eat most foods which makes a person want to be unsocial. EVERY event seems to evolve around food...food that I cannot eat. I pray every day that a cure or some sort of relief is found for those of us suffering from this horrible disease, gastroparesis.
In memory of Billie and all those suffering with this disease, please look long and hard at the bill and pass it.
I am respecting the locations like this for 10 years almost. I have had a very good friend who is a Vietnam veteran you have been feeling like this for well over 10 years, as long as I'm not I am respecting the locations like this for 10 years almost. I have had a very good friend who is a Vietnam veteran you have been feeling like this for well over 10 years, as long as i've known him.
There are fellow Americans that need our help. Please do the right thing, please!
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Any disease that can kill needs to have funding to help prevent it. We have to much technology to let even less deadly diseases go unnoticed.