Ehlers Danlos Syndrome and access to necessary health care
176 Comments
C
Caroline Perlmutter
9 years ago
I am petitioning your government to grant Dr. Andrea Gutstein's request so that she and others suffering from this condition unnessearily can be treated and resume their lives. This is their right as Ontario residents. Please uphold their rights.
R
Ron Dragushan
9 years ago
This is an important matter that demands attention. Either appropriate medical resources must be provided in Ontario, or access to foreign resources (with government financial assistance) must be provided.
M
Marilyn Novack
9 years ago
This is unconscionable. The government has a responsibility to care for its citizens.
K
Karen Kay
9 years ago
Please do help Adena get the proper care she requires as well as any other victims of EDS.
M
Mike Rand
9 years ago
The neurosurgery treatment was accessible under OHIP until the arrest of Dr. Shamji. It should not be dependent on the availability of one surgeon!
A
Anonymous
9 years ago
This is so typical of our Canadian Government and our medical system. What a shame that Dr. Gutstein and others have to suffer at the hands of a few who are closed minded and bogged down by bureaucracy and pettiness. Minister why don't you step up to the plate and fix this problem. You have the power and capabilities to do so.
C
C Goldberg
9 years ago
The medical system is here to look after us, and not disregard those who are sick, dying and in need of medical care. You need to go above and beyond to care for our citizens well being.
D
Dionisio and Annunziata Barba
9 years ago
even though it is a small group they are entitled to the best care possible
D
Diane Belanger
9 years ago
My sister-in-law, her sister, and their father Have EDS and although they are the only ones I know who have this disease I would like to sign this petition to give my support
A
Annick Guibert
9 years ago
We need good care and Doctor who won't dismiss us as soon they hear EDS since they have no idea what to do with us.
C
Carol Morrison
9 years ago
My daughter had this surgery, without it, she was totally disabled and constantly choking. After it, she is a functioning member of society.
D
David Latner
9 years ago
Please find a way so that people suffering EDS can access medically available treatments.
N
Nancy kernaghan
9 years ago
Pl Ashe help those affected by Ehlers da low s syndrome They did not choose this life problem like those using drugs that we help out
Give quality of life to these people
L
Lori
9 years ago
Equality is a right! No one should be denied assistance.
J
Julie Alain-Haines
9 years ago
We need action now - not more empty promises or studies.
Surgeries need to be provided to Canadians when their quality of life is severely hampered and leaving them deteriorating not only ìf it is a life or death situation.
ALL Canadians are entitled to quality of life and should have those services made available to them, be it in Canada, or elsewhere.
It costs the healthcare system more in the long run to care for people that continue to decline and deteriorate than to provide care that helps them to become more independent and mobile again.
EDS needs to be recognized as the serious disease that it is.
D
Deborah Reid
9 years ago
Hang in there Michele.
D
Deborah Reid
9 years ago
Our taxes are supposed to pay for the health care that we need. We need specialists for patients with Ehlers-Danlos Syndrome, trained to do surgery on the delicate tissues EDS patients have. Or health care Canada needs to foot the bill for patients to travel to countries with more advances in EDS. EDS runs in my family.
M
Mary Elizabeth Lecours
9 years ago
Please help all patients suffering from EDS. You can make their daily lives better and every life is valuable.
M
Michelle Winterburn
9 years ago
My niece and nephew live with EDS and have both travelled to the USA for surgeries that they should be able to access here in Ontario, if adequate funding and development were available.
A
Anonymous
9 years ago
I have undiagnosed EDS and Canada is better than this.
I am petitioning your government to grant Dr. Andrea Gutstein's request so that she and others suffering from this condition unnessearily can be treated and resume their lives. This is their right as Ontario residents. Please uphold their rights.
This is an important matter that demands attention. Either appropriate medical resources must be provided in Ontario, or access to foreign resources (with government financial assistance) must be provided.
This is unconscionable. The government has a responsibility to care for its citizens.
Please do help Adena get the proper care she requires as well as any other victims of EDS.
The neurosurgery treatment was accessible under OHIP until the arrest of Dr. Shamji. It should not be dependent on the availability of one surgeon!
This is so typical of our Canadian Government and our medical system. What a shame that Dr. Gutstein and others have to suffer at the hands of a few who are closed minded and bogged down by bureaucracy and pettiness. Minister why don't you step up to the plate and fix this problem. You have the power and capabilities to do so.
The medical system is here to look after us, and not disregard those who are sick, dying and in need of medical care. You need to go above and beyond to care for our citizens well being.
even though it is a small group they are entitled to the best care possible
My sister-in-law, her sister, and their father Have EDS and although they are the only ones I know who have this disease I would like to sign this petition to give my support
We need good care and Doctor who won't dismiss us as soon they hear EDS since they have no idea what to do with us.
My daughter had this surgery, without it, she was totally disabled and constantly choking. After it, she is a functioning member of society.
Please find a way so that people suffering EDS can access medically available treatments.
Pl Ashe help those affected by Ehlers da low s syndrome They did not choose this life problem like those using drugs that we help out Give quality of life to these people
Equality is a right! No one should be denied assistance.
We need action now - not more empty promises or studies. Surgeries need to be provided to Canadians when their quality of life is severely hampered and leaving them deteriorating not only ìf it is a life or death situation. ALL Canadians are entitled to quality of life and should have those services made available to them, be it in Canada, or elsewhere. It costs the healthcare system more in the long run to care for people that continue to decline and deteriorate than to provide care that helps them to become more independent and mobile again. EDS needs to be recognized as the serious disease that it is.
Hang in there Michele.
Our taxes are supposed to pay for the health care that we need. We need specialists for patients with Ehlers-Danlos Syndrome, trained to do surgery on the delicate tissues EDS patients have. Or health care Canada needs to foot the bill for patients to travel to countries with more advances in EDS. EDS runs in my family.
Please help all patients suffering from EDS. You can make their daily lives better and every life is valuable.
My niece and nephew live with EDS and have both travelled to the USA for surgeries that they should be able to access here in Ontario, if adequate funding and development were available.
I have undiagnosed EDS and Canada is better than this.