CHRONIC PAIN PATIENT REGISTRY

Although I disagree with the government needing to keep a list of the chronically ill suffering pain, in order for treatment. I will sign because we need to start somewhere. Also, most harassment and difficultry in receiving treatment is the small number of addicts. Addiction is also a medical problem, and thus should be handled that way. Not as a moral and criminal way via police which has shown us over the last thirty years, has failed miserably!

Fibromyalgia

I would submit to any tests and any procedure the Govt. wants to prove I deserve the right not to suffer in unbearable agony. but once registered, every doctor needs to be required to prescribe pain meds and fined if refuse also immune to any action by govt. for prescribing. If prescripton monitoring is mandatory now, then a nationwide chronic pain patient registry should be added providing protection to patient & Doctor as well as Guarantee Right to Pain Management. If Govt. had a clue they would KNOW people in chronic pain do NOT SELL their Drugs. They are the ones who have difficult time getting meds because they are in pain, fed up with abuse and not a doctors favorite person. The ones selling drugs are the people doctors don't look at twice. Its a lot easier to deal with the BS when your not in agony & NOT depending on some judgemental doctor to survive.

We suffer enough! We need our medications! The pain we feel is REAL & DEBILITATING!

I suffer from severe nerve damage and live with constant pain day and night. Please allow my specialist to do his job by helping me live some quality of life. Walk in my shoes before you judge please.

So tired of being in pain. Im supposed to have cancer surgery in one week, but after just having leg surgery and told it will get better, now debating whether to go ahead, so afraid to have more pain induced with given any treatment for it, and let to suffer, now dont know if id be willing to have surgery and be in excrutiating pain. Thank you Prop!

I am asking that you help the chronic pain patient access the so much needed medication that allows us to functio in day to day life. As it is now, Drs are so afraid of the powers that control these things, that they will not rx them at all, even for legitimate chronic pain! So we are left to suffer, or go on the streets, or wherever they can find them : Or turn to heroin or suicide when all other otions are taken away. They get tired, so tired, of fighting the pain that it can overwhelm them to the point , they feel they can do nothing to stop the pain, so they commit suicide. Its a damn shame thet in this wonderful country that so many people are suffering many older citizens, who now need the medication . We are suffering every day that this goes on. I realize you have many situations that call for your help or action on, but, how long would you wait if you were in pain from the time you got up till you went to be, and then only snatches of sleep, because of course, pain has no clock, it rings all day all night, no difference to it. We have not asked for it. Who in their right mind would? Would you? Maybe im just writing to myself, as Im sure no one cares enough to read these things anyway.But on the smallest chance that someone does, dont we count ; or just the addicts you say are abusing the drugs, because so much more money can be made from rehab, which you know is costly, then of course, you still have the honest citizens in pain still suffering? Dont we coundt at all?

My pain is mild generally but can suddenly become severe and those are the time I need the meds and usually time for spinal injections which usually allows me not to take them. I have had to take very expensive and unneeded urine drug screenings. It isn't fair to patients or doctors.

As a legitimate and innocent chronic pain patient and sufferer, I have been maligned, disrespected, abused, and discriminated against, even though I have broken no laws and harmed no one. The current climate has had catastrophic effects on pain patients and THEY bear the brunt of the anti pain patient/medication disaster this is currently strangling America.

Treating chronic pain sufferers who are responsible citizens, who take their pain medications as prescribed, are not "wanting" are being treated like addicts who abuse all kinds of medications, breaking laws and being very irresponsible. Harrassing the law abiding individuals who have done nothing wrong but be in pain ...is undignified, insulting and totally uncalled for! How many struggles to you expect a class of people to overcome...humiliation of any class is what's criminal. Help those addicted...but do not do it at our expense & make chronic pain people hurt more!!!! thank you.

As a patient that suffers from the debilitating condition that is chronic pain I find it appealing that the government is trying to dictate how a doctor treats each individual patient. I suffer along with millions that take their medication, as prescribed, in order for them to live their life normally and to the fullest. I suffer from chronic pain as a result of Lyme disease and fibromyalgia and had it not been my doctor putting me on my regimend of medication I would become unable to get up, be an active individual and work. This insane notion would cause millions of people to become incapable of living their lives therefore becoming disabled and it is not the right of th government to dictate how a doctor treats their paitents. The problem is the black market providing the drugs to the addicts of this country. Not chronic pain patients that follow legally their doctors opinions and ability to assist the millions affected by chronic pain due to illnesses such as what I have had to endure. I would not be able to live my life and be part of society had it not been my doctor providing me with the treatment plan that enables me to be an active member of society. Therefore I sign this petition to protest the notion that would take away a doctors right to treat their patients as required for their conditions. I would lose my ability to be a human that has endured so much medically and am finally because of my doctor been able to pay my rent and bills as a result of improving my health and deal with the chronic pain I suffer from.

I'm a chronic pain patient due to brain surgery on my Thalamus,which caused me to be medically retired. Why not ask me how strict laws impact me? I couldn't get my prescription filled today because of the new federal guidelines. Do you have any idea how hard to make life for the disabled like me? Perhaps you should.

Stop the misinformation by CDC/FDA and other about chronic pain patients. Drug addiction's # 1 problem is youth. Youth are stealing and taking and selling stolen medications. It is not the legitimate chronic pain patient that is the problem. It is the criminals.

After being permenantly disabled for 16, my Dr of 12 years is out of no where, abruptly and rapidly cutting off my pain meds. This started 4/5/16 but only gave 30 days notice. He will not, and has not, referred me any where or to any one for different treatments that may help control this constant pain. I have never failed any surprise blood or urine tests, that were done, on the spot, failed any surprise med counts, or broken any pain contracts. I have had 2 drs in 16 years. The first moved to Colorado and referred me to my current dr. Now I will be left in severe torturous pain, every minute of my life, that no one could withstand. I will lose my ability to do very simple daily tasks, getting dressed, showering, getting my own food, driving, going to the bathroom, attending a holiday dinner, or anything that others take fully for granted. I can't eat or sleep due to severe pain. I've lost 12 lbs already. Because I did absoloutely nothing wrong, I will also lose my ability to be around my grandbabies. My middle granddaughter will be devastated. I am everything to her. I won't be able to just sit through a Disney movie with them. I will never hear the words Grammy again or even be able to just hold them in my lap. There is no way I can let them watch me deteriorate this quickly. I will also lose my rescue cat and dog. Basically everything I hold dear and all my happiness will be ripped away because I never did anything wrong. I took my medication responsibly and only as directed. No other dr will take me as a patient. The Gov of Maine is ruining this state and the people in it.

Have had chronic pain since auto accident in 2002. Tried different therapies; none worked except pain meds. Had minimal problems when I lived in FL and my family doctor prescribed my pain meds. In 2015, I moved to DE and have been unable to get pain meds here. Am trying with yet another new doc on Wednesday. Don't have much hope. I've spent the last 1-1/2 years on the sofa unable to function. Am alone and have no family or friends here to help me. Seems like suicide may be only option. God help all of us!

Some people take 3 pills before breakfast, so how can you make that the limit for the whole day

Dr should know patients medical history and be able to prescribe as needed

Doctor should be able to give me the medication that I need for my pain

Please don't take away pain meds from those of us that are not abusing them and truly need them.

why should true pain patients be considered as addicts and not have their pain addressed, all the while, the DEA hold hands of the addicts that OD like little children...

I have chronic pain

The restrictions set CDC and FDA are inhumane and unconstitutional to those with Chronic Pain.

It's about quality of life or just give us a chance to try to live better. That maybe the right pain med will just once allow me to enjoy life alittle better if even for an hour; or just once maybe let me go to the parj with my kids. Is that asking to much? Please let my doctors help me.

I have been a chronic pain sufferer since 1981, and recently got sent to a pain clinic and they dropped my pain meds to about 1/3 to 1/4 of what they where, and didn't even wean me off and for the last 3 months I have been going through withdrawals and unbelievable pain in my left hip which is inoperable due to a giant cell tumor back in 1981. These last 3 months have been hell on earth. I hope that the legislators and congress have some kind of compassion and mercy and take action on the CDC an DEA guidelines because their war is not against us chronic pain sufferers it is against the heroin users and junkies on the streets. These are about the most senseless and useless recommendations I have ever witnessed. My life went from being pain managed so that I could live a somewhat reasonable life to where I don't know how long I am able to bear the pain. If this makes sense to anyone I sure would like someone to explain what seems like torture to me and has ended a tolerable life. I spend 4-5 days a week on the couch and when I do get up is only long enough to take a shower and back again. Is this any kind of a life? What cruel and inhumane punishment is this. If they had to live in pain like this they would be as we are trying to get help from someone. I guess when the suicide rates go up for chronic pain patients they will just blame it on patient OD and not look in the mirror at what they have caused. It's pitiful.

I ended up in er cardio team called why because I can't get my pain meds I've taken for 25 yrs! Dea back off American citizens are dying because h go after drs it's not the drs are you afraid to go after the gangs and drug cartels that are selling heroine ???? Oh no don't do that we the people who can't get our prescribed medince may need those street drugs. Stopping cronic pain meds is so wrong. Why do the cops drink ??? Because of pain

Chronic Pain, I just can't go back to that hell pain. Is there help? do you think ! Thank You 1 Renee Steiger

I would love to sit well bearable to sit, for long! I would love to meet you all I know the hell your in I feel for you all ! The D.E.A. was in my Doc's office , they where coming the day I was there. I asked the next time I was there and he said yes !

Taking chronic pain meds is so wrong

I'm sorry The Doc. said yes I need to worry can't even post I'm so beside myself! sorry!

I am a 44 year old black woman and I came across the website. I am so grateful for the stories that have been shared. My decline started a year and a half before my spinal fusion surgery lumbar 4-sacral 1 transforminal lumbar interbody fusion. I knew something was wrong but I continued to work and I was prescribed oxycodone. The surgery was on 4/13/15. The surgery was necessary to prevent paralysis which was already beginning and pain to the point of crying all night in a fetal position. I can recall days where I crawled like a dog around my apartment. This is a nightmare to wake up every day in pain. I am a shell of what I once was. No social life. I am emotionally, mentally, and physically tired of this life. This new “war on drugs” that the media is pushing is insanity. It was funny when the name was “hillbilly heroin” in West Virginia because of the widespread abuse now that state has the highest rate of heroin overdose, abuse, death? The surgery did not guarantee pain relief but I could not imagine this would be my life. “Talk Therapy”4 pain? How when you can’t even drive. I did PT then got bilateral epidural steroid injections and they could not get under the rods and pins and I declined to the point where I couldn’t even take care of myself. Then they went into CYA mode because of the mistake. I have been talked to like a child. The abusers and they include members of the health care community and the rich kids that popped pills for fun have ruined it. Now they want to cater to addicts, no jail, help because they have a disease of addiction. People with serious physical impairments that just want quality of life, NOTHING!!!!Speak up and they red flag you, label you an addict and show you the door. Why do they even bother to ask you to rate your pain from 1-10 when it is better to describe it. The pain scale is when this nightmare of over prescribing began. I only take oxycodone 10mg 3 times per day with Lyrica (which cost $562 per month) if u don’t have insu

I live in pain 24 for many years Why is this being done, what will I do now

I have deterioration of my feet, spindylytis in loewer back. Pain medication is the only way i can try to have a normal productive life. The actions of the people who are overdosing, stealing meds, are tge ones ruining it for the people on disability that need their meds for a half-way normal life.

Pancreas divisum causes me severe pain and theone surgery that sometimes relieves the pain didn't work for me. I have complied with ALL the ever-increasing restrictions, the $200 urine tests, paper prescriptions every 28 days, ID every rx pickup, and at my last pain clinic appt staff said because of the DEA continuing the regimen I've been on over 10 years isn't possible. No one in my situatio would THINK of sharing pills, but we get treated like criminals, meanwhile this prohibition is as much a failure as the 18th amendment.

I am a disabled veteran that suffers from chronic pain. The pain meds are needed to have a functional life.

I have been in chronic pain for 13 years now and spend most of it laying on a couch. I have lost everything because of it. I can't sit or walk without pain medication, I've been humiliated by Drs, treated like a drug addict and when I tried to tell them it was getting worse I was punished or they would refuse to treat me any longer. Took them almost 13 years to find out my l5 disk had drilled through and been squirting acid on the nerves causing permanent nerve damage in both my legs. Among that I have fibromyalgia, deteriorating bone, rheumatoid arthritis among nerve neuropathy etc. I don't know how many times I thought of suicide laying on the couch only reason I havnt is my kids and grand kids and I keep having hope that a Dr will fix me or give medicine so I can do normal stuff that people take for granted like doing dishes or being able to sit up and watch tv. I've always take as prescribed but it's like pulling teeth. I would give anything for one of the Dr I've had to go through one day of what I have to. It gets harder every day to try to stay positive and not think of ending it . I think anyone with chronic pain not treated it has crossed there mind. All they have done is make people like me suffer then I see those that sell them a full script and I wonder how someone that don't need them gets them and that just burns my bottom. Something has to change or the tougher the regulation get the more suicides there going to be of chronic pain people that just wanted something of a life.

I live in pain 94 till now did not take pain meds till I could not get out of bed. I have tried everything before meds. did not want to go on them . I take them like I should they did give me life back !

I have had over 14 surgries on my neck, ankle, knee, ulnar nerve transposition, I have had two spontaneous pneumothorax and and scheduled for surgery in December for my right wrist because of torn tendons. It's not right to limit or trump what my doctor prescribes. If it wasn't for the pills I wouldn't be able to work. Then I would have to collect disability. Its not fair to people who need them. The abusers will always find ways to abuse even with all the regulations. Focus on getting this country back in order and leave the medications to our doctors please!

I live in chronic pain there could have been a better way !

People who take medicine correctly and for medical reasons get nothing from pain medicine except a lessening of pain. Most of us have tried all the alternatives, with no relief from chronic pain. Punish drug abusers. But please have compassion for people whose lives are a daily agony. I am 70 years old. I have both RA and osteoarthritis. There are millions of stories like mine. Please don't punish us for our disabilities.

I am a chronic pain patient, and this is a good idea! We are becoming collateral damage in the “war on opioids” - how many more will we lose to suicide before Action is taken to help us? Many of us need these medications - I would be bedbound and in horrible pain without the current dose that I take. Please stop making us suffer for the wrongdoings of addicts!

The govt should not interfere with my medical care.

It's not fair to people who suffer to take away their live giving medications. No different than taking insulin from a diabetic. This opioid insanity needs to stop! Go after the real drug dealers who are bringing illicit fentanyl into the US. That's what's killing people! Not pain medicine. The DEA is out of control and needs to be held accountable for hurting thousands of pain patients. Stop throwing our good doctors in jail!

We NEED this to protect the REAL pain patients and doctors from the stupidity of the DEA, CDC and FDA! ENOUGH suicides!

I am a daily chronic pain suffer and have been now for 11 years... I suffer from chronic pancreatitis which is a incurable disease unless you have a total pancroectomy, and I'm not able to have one done at this time due to financial reasons... But daily medication (pain medication) is the only thing that controls my daily and break through pain and makes my life half way livable... I'm currently not even in a pain management clinic due to the DEA's new regulations Bc of a new medication they tried me on didn't work the doctor told me there was nothing else he could do for me... So now I'm left to suffer daily again... It's not the chronic pain patients that have caused the opiate contravecy it's the street drugs that have made it such a large issue... The only thing your doing is going to make the suicide rate increase and the street drug usage increase as well Bc people will have no other alternatives... Don't make chronic pain sufferers like me suffer more then we already do!!

I'm a chronic pain sufferer,who's afraid my life will be ripped from me next,by taking away the medication(which isn't that strong to start with,but helps better than OTC)that helps me have some form of a life,so I'm not confined to my bed daily AGAIN,just trying,and hoping for some relief of pain.I have fibromyalgia,which just seems to get worse every year,and arthritis on my spine.I have done physically therapy many times,and use alternatives,including exercise,ems/emf & ultrasound machines,ointments,herbs,OTC pills,I take antidepressants,and I get 20 injections throughout my body bimonthly. Guess what, I'm still in pain,without pain meds,I can't function most days.So who wants to tell my young children why I can't take care of them?What are my alternatives,street drugs,alcohol, and suicide? What are a junkies alternatives,treatment,help that if they want,they can get!Why don't chronic pain patients matter?I sign contracts,jump through hoops and take urine tests,just to be able to have some form of a life,People making these laws against us, better hope one day they don't get pain like we do,many of us have NO CURE!

PLEASE DO NOT TAKE AWAY THE VERY THING THAT HELPS US FUNCTION AND GET OUT OF BED FROM ABSOLUTE CHRONIC PAIN, SOME OF US CAN NOT TAKE ANYTHING ELSE!!! SOME OF US HAVE CONDITIONS THAT THE HOLISTIC, ACUPUNCTURE, MASSAGE....ETC. AREAS WILL NOT EFFECT. ALL CHRONIC PAIN PATIENTS MUST BE RESPECTED AND TREATED SOLEY ON THEIR SPECIFIC CONDITIONS!!!! THIS ONE SIZE FITS ALL IS WRONG ON ALL LEVELS!!!!!! THIS IS ONLY GOING TO CAUSE MORE ISSUES YOU ARE NOT GOING ABOUT IT THE RIGHT WAY!!!!

Go after the people and doctors that abuse this medication. Not the responsible people that need it.

I am tired of having my pain medication cut because a junkie over doses from heroin. I have had RSD/CRPS for 22 years. And in all that time I have been drug screened every 3 to 6 months to make sure that I had only the medicine prescribed to me in my system at the levels prescribed to me. That I never had anything in my system that wasn't prescribed to me. I've never failed a drug screening in 22 years. Yet these new MME laws are forcing my Dr to reduce my pain medication to a level that does not cover the total body RSD that I have. My pain is staying at a 9 and 10 making my blood pressure so extremely high that I am at stroke and heart attack level. Why punish Des that are only trying to treat their patients. In place of junkies who are most of the time buying their drugs illegally on the streets. I've never had a Pain Management Physician that made getting opiods a easy task. All of my pain doctors followed all of the laws closely and always made sure I had the right amount of pain medication left over at the end of the month. In which case I always had more left over then I should have had then less. So why are we being punished for getting horribly rare painful diseases in place of people that are not taking prescribed drugs. Please listen to those who suffer. Ok I'm off my soap box now!

Two weeks ago I had to talk my chronic pain friend out of suicide as he held a gun to his head. He had lost all hope of his pain ever being fully treated due to his doctor being limited by the law and in fear of the law.

suffer from severe back pain treated with narcos at V.A. works ok nothing else does.Couldnt live with pain

Please.help those millions of Americans who are suffering with severe undertreated and untreated pain. We are being driven to suicide and illegal drugs because we are suffering without proper,edical treatment for our pain. All alternatives to opioids have failed to help us and we are not drug addicts or abusers, yet we are being treated worse than criminals and just abandoned to suffering and death. The overdoses will only get worse if you continue to refuse to accept reality. Pain patients did not cause this crisis and taking away ourmedical care will do nothing to help. Destroying our doctors is hurting as well. You have been told lies and half truths about the opioid crisis. Innocent patients and innocent doctors are being unjustly blamed and made to suffer needlessly due to unfounded predjudice. Please stop this abuse and help us!

I am a pain patient that has had my medications reduced by congress not letting my doctor help me with the right doe.

65 yrs old, 3.5 years with severe foot trauma. rebuilt calcaneus, fusion 2 rods.. daily chronic pain suffer, I am tired of having my pain medication cut because a junkie over doses from heroin.

Why should I have to suffer in this much pain? I was a good patient on morphine for 7 years. How am I suppose to function without pain medicine? What kind of life will I live now?

My doctor is closing his practice because he’s being harassed by the DEA! He’s the ONLY pain doctor left in my area. I lost my last pain dr at a clinic I’ve been going to for 25 years. I was literally abandoned by all doctors there, so I felt extremely fortunate to have found my new dr. He’s now going to close his practice because of threats by the DEA. While the REAL PROBLEM is illicit drug use of fentanyl and heroin. Those of us with REAL pain issues are the easiest targets—like shooting fish in a barrel. It makes “them” look like they are doing “something” about the alleged opioid crisis, when in fact major harm is being experienced by LEGITIMATE PAIN PATIENTS. While the real problem—fentanyl and heroin— goes on unchecked. Barbaric! Be ashamed. You all have blood on your hands.

Being told my Meds are out of stock from Kaiser but they refuse to give me option to take the RX to somewhere else to have it filled.