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Newborn screening for cystic fibrosis in Nova Scotia

Newborn screening for cystic fibrosis in Nova Scotia

2,276 signatures 224 to reach 2,500
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Taiba K. signed
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Lorena G. signed
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Valentin P. signed
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Valentin P. signed
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Started by Anonymous 13 years, 6 months ago

UPDATE - Thursday, April 4, 2013

Thank you Premier Darrell Dexter, Finance Minister Maureen MacDonald and Health Minister David Wilson!

Cystic Fibrosis Canada applauds today's announcement by Nova Scotia Finance Minister Maureen MacDonald to adopt cystic fibrosis newborn screening in the province. Nova Scotia becomes the sixth province in Canada to implement CF newborn screening, joining British Columbia, Alberta, Saskatchewan, Manitoba and Ontario.

Cystic Fibrosis Canada is grateful for the support from legislators on all sides of the Nova Scotia House of Assembly. We also extend our gratitude to the volunteers who have helped successfully advocate for CF newborn screening in Nova Scotia.

Early diagnosis of cystic fibrosis through newborn screening provides identified children with a better start in life. Without CF newborn screening, irreversible lung damage, impediments to physical growth, and digestive problems may have already occurred when the child is finally diagnosed. To slow progression of the disease, early intervention is critical.

Newborn screening for cystic fibrosis is now the standard of care in all 50 states in the U.S., Australia, New Zealand, the U.K. and much of the European Union. Every Canadian province west of Quebec screens newborns for cystic fibrosis, yet families in Quebec and the Atlantic provinces, other than Nova Scotia, have no access to early detection for this fatal genetic disease.

Updates

January 18, 2013

We just hit 1,000 signatures and the government can no longer pretend this issue does not exist. They have been stalling for too long while families suffer the consequences of their neglect. This number proves they are officially on notice.

Reached 1,000 supporters

January 17, 2013

January 15, 2013

We are grinding toward 1,000 signatures but the Nova Scotia government is still dragging its feet on this fatal oversight. Blast this link to your entire contact list right now so we can force them to stop ignoring our children.

Reached 100 supporters

January 14, 2013

January 12, 2013

The government is ignoring us because they think they can wait this out. We are almost at one hundred signatures and I need you to push this link everywhere right now to force them to look at our demands.

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