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Bill No S06867A

Bill No S06867A

49 signatures 1 to reach 50
D
Don S. signed
D
Delaney signed
H
Hannah M. signed
S
Sharon M. signed
A
Antonio D. signed
S
shelby w. signed
P
Preston P. signed
J
Jerry M. signed
H
Haley F. signed
M
Maddie signed
JM
Started by Justina Mendes 4 years, 9 months ago

Bill No S06867A, “requires health care practitioners to provide up-to-date and evidence-based information on Down Syndrome to pregnant women and parents of infants who test positive for Down Syndrome in a written or alternative format at the time of a Down Syndrome screening test has been ordered” (New York State Assembly Bill Search and Legislative Information, n.d).

Bill No S06867A proposes an addition to the Mental Hygiene law to provide mothers and parents of Down syndrome with evidence-based information at the time of a down syndrome screen. The bill implies that mothers and parents are currently not being provided with an accurate amount of evidenced based information when their child is being tested for down syndrome. This information will provide parents on how their child can still live a fulfilling life regardless of their diagnosis. It is important for practitioners to educated parents on all the resources and professionals that can help their child to be successful in life. The major intended outcome of the bill is to educate parents on the potential that their child with down syndrome can have with the anticipated outcome that mothers will not terminate their pregnancy based on the positive down syndrome screen. If this bill does not become a law, parents may be terminating their pregnancy on a positive down syndrome screen based on false information or an ill knowledge of the services and resources out there to support their child with down syndrome.

Updates

November 22, 2021

The medical establishment keeps failing to provide expectant parents with accurate information and this silence is dangerous. I am pushing these legislators to stop ignoring the reality that families need support instead of outdated biases. Do not let them pretend this bill is not a priority.

November 22, 2021

The momentum we have built makes it clear that people are fed up with the medical establishment withholding the truth from parents. We are forcing these gatekeepers to acknowledge that families deserve accurate information rather than biased fear mongering.

5 Comments

S
Sarah Patel
4 years ago Featured

My nephew has down syndrome and he is the best thing that ever happened to our family. No parent should have to make those choices without knowing the truth about how happy these kids really are.

M
Mike Abbott
4 years ago Featured

About time this happened. Doctors need to stop giving out bad info and start helping parents see the potential.

G
Gloria Long
4 years ago Featured

Down Syndrome children are some of the most loving and kind hearted people in the world. Please banish the days when they were locked away, or not even allowed to have a life at all. Protect these families.

J
Jerry Mendes
4 years ago

Great Cause

D
Dolores Silva
4 years ago

Hope this bill gets passed!

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