An Urgent Call for Integrative Neuroimmune Clinics

For the Nolan Boys and all others that need thr additional support

PLEASE PROVIDE YOUR SUPPORT AS SOON AS POSSI LE.

This is so scary & serious !

These kids and families are suffering for years, Please make the needed changes.

We have struggled with my daughter and almost lost her several times to mental health issues related to PANS. We have spent close to $100k out of pocket for treatments that have brought her back. It is unimaginable what families have to go through in order to get our children better. Please make necessary changes to help those dealing with watching their child decline sometimes overnight.

My niece's son is afflicted by this terrible disorder and has suffered enormously. He is an extremely intelligent and remarkable child, and is struggling to be his normal self once again.

Please help these patients and families. I too am willing to share my son’s story. His story is still a road to healing with a new request for IVIG pre authorization required in January. It’s a frightening time due to a required change in insurance carrier.

Seeing what this has done to a child is heartbreaking, and made so much worse when insurance won’t cover treatment. PANS/ PANDA needs to be recognized as a disease that can be covered under insurance and the families struggling this unfortunate diagnosis need to be better supported.

Please help the children

My granddaughter suffers PANS this horrible disease that is so terrible for children and the families

My son has autism and PANS. The autism is not nearly as devastating and horrific as trying to treat this immune system disorder! Please help!

Very important cause, please help

Please give this serious consideration.

Please help these children & their families!

My 12 year old son has been diagnosed with Pandas since July 2024 with onset being August 2023. It has been the darkest season we have ever walked through as a family and is eating us up financially. Please help spread the word!

My 25-year-old daughter has pandas and she has sorely missed out on treatment because she was already handicapped. Doctors was just dismissed, but our entire family has altered their life and as I grow old constantly concerned about how my children will manage her there’s so many families that are hurting and this is so important.

My 14 year old son was diagnosed PANDAS in 2023. He’s severely affected because he was misdiagnosed with psychiatric illness for years. He’s still extremely ill because we have to fight and appeal insurance for every treatment. And we live in a state where IVIG is mandated! His has no quality of life and his childhood has been stolen. We are in trauma.

It is important to note that the public school system also fails to support these children and their families and these children not only suffer medically,, mentally, physically and emotionally but socially and academically. We need support AND remediation for the children that have lost their childhoods due to the lack of medical and educational resources and support

Find the cure!