Skip to main content

An Urgent Call for Integrative Neuroimmune Clinics

404 Comments

M
Mary Rogers
9 months ago

A friend dealt with this with her daughter

K
Krischele Whitnah
9 months ago

Signing for Lilly and TJ

D
Dana Scotto
9 months ago

As a public health professional with over 30+ years in government and advocacy, having a niece with PANS I respectfully request a thorough read of this petition. Children and young adults are being inflicted by this autoimmune disorder at an alarming rate since COVID. Our mental health supports and medical supports need to be looked at TOGETHER. Each blames the other. It is a combined syndrome effecting both medical and mental. Instead of pushing these individuals and families into the psych ward. Look at the medical cause and integrate. Our mental health facilities can’t and don’t know how to handle the medical cause and effect. Long term insurance payments could be minimized by treating the medical supports, instead of committing these children and young adults. Please read the petition with intent. This is a Public Health Crisis. Our families are in crisis and need to be heard and under stood. Thank you for your attention to the detail.

E
Elizabeth Woodhead
9 months ago

Mom of a young adult - non verbal with autism and PANDAS. We need this so much for my son’s medical needs.

A
Anonymous
9 months ago

Please support these children and families....

M
Michelle Schmitt
9 months ago

Thins is not only a huge mental health issue but a medical one as well and the fact that a child can have so many issues and none of it is covered by insurance is horrible!!! In what world is it ok to pick and choose which conditions a child should be covered for! Please make this change

M
Marisa Watkins
9 months ago

Listen to the mothers!

S
Sandra Zion
9 months ago

Please help these children!!!

A
Anonymous
9 months ago

I advocate and support PANDAS legislation

J
Judith Otto
9 months ago

My son had PANS and I have had to navigate his healing on my own. There simply are not resources. Allopathic solutions are psych meds. Our kids deserved better. They deserve healing.

C
Cara Erickson-Park
9 months ago

Our son has lost almost his entire childhood to his complex illness. Without me fighting tenaciously against a broken medical system that wrongly separates body from brain, we wouldn’t even have a diagnosis, and certainly wouldn’t be seeing improvements. Thank you for any attention you can give to this urgent matter for my child and so many others.

K
Kate Welbourn
9 months ago

My daughter has PANS. Took us 3 years to get her accurately diagnosed. Of course, none of the treatments that helped her were covered by insurance. It was a lonely battle

H
Hannah Halbakken
9 months ago

This also applies for many adults. We badly need advocates and to have better options.

J
Jack Roberts
9 months ago

Please help these children and their families!

M
Mary Therese Taylor
9 months ago

Extremely important!

S
Sara Hattan
9 months ago

Two kiddos with PANS and we have spent some much money out of pocket for treatment that we are struggling despite my husband having a very good paying job.

K
Kimberly Hoover
9 months ago

Please!!!

A
Anonymous
9 months ago

Please help

K
Katie Zigmond
9 months ago

We desperately need neuroimmune treatment centers

M
Michelle Simon
9 months ago

Please do something for Those effected by Pans) Pandas!!