An Urgent Call for Integrative Neuroimmune Clinics
404 Comments
C
Channing Baker
9 months ago
Pans pandas mom
M
Mary Malinowski
9 months ago
We need help.
B
Bill Swanick
9 months ago
Please help
M
Mehri Coulter
9 months ago
PLEASE help our children, we are begging!!!
H
Huskins Larry
9 months ago
We need help with this issue
A
Anonymous
9 months ago
My heart breaks for families I have seen this in
M
Maureen Iuliano
9 months ago
Please help us. This is destroying families across the country. Signed a NJ mom.
J
Jessica Guglielmo
9 months ago
My 8 year old is now suffering from some variation of PANS/basal ganglia encephalitis, and finding accessible resources for proper testing, treatment, and follow up is near impossible. We are having to take it that much slower to find the funds to even get on waitlists for knowledgeable practitioners, almost none of whom accept health insurance because of the nature of the diagnosis and treatments. We have family and friends dealing with even more severe symptoms in their children, some with multiple children suffering, who have to pick and choose who gets what they need because it is so ridiculously expensive for simple blood tests and consultations. Let's continue to spread information and awareness and work for more research.
J
Jim Nolan
9 months ago
Prayers
M
Meg Brown
9 months ago
Dear Senator Kennedy, thank you for everything yiu are doing to help families who are in desperate need for answers. We have been in an 18 year nightmare with our 20 year old daughter with PANS. Traditional medicine has failed us time and time again. Not to mention drained us financially, emotionally ,and physically. We need nation awareness and support.
Thank you.
F
Faith Tighe
9 months ago
Such an important part of so many lives!!!!!!
S
Shirley Carter
9 months ago
Please help these children!!
D
Devon Collins
9 months ago
This is vital! So many children are in crisis!
N
Nina
9 months ago
agreed
A
Anonymous
9 months ago
As a psychologist in public school, I can arrest that this is literally an epidemic with a skyrocketing number of children with one or more neuropsychiatric disorder.
M
Marlea Akins
9 months ago
I have many friends with children who have PANS. Please help these families.
A
Anonymous
9 months ago
MAHA!
T
Timothy Tang
9 months ago
My 13 years old son suffered at least 2.5 years going down the psychiatric path before a proper PANDAS diagnose was received.
A
Anonymous
9 months ago
We really need this
There are so many suffering children!
C
Cheryl Holden
9 months ago
Please help Tim and Marnie Salvatore’s family in Orchard Park, NY with their son struggling with Pans/Panda and a relatively new house that is loaded with
Mold.
Pans pandas mom
We need help.
Please help
PLEASE help our children, we are begging!!!
We need help with this issue
My heart breaks for families I have seen this in
Please help us. This is destroying families across the country. Signed a NJ mom.
My 8 year old is now suffering from some variation of PANS/basal ganglia encephalitis, and finding accessible resources for proper testing, treatment, and follow up is near impossible. We are having to take it that much slower to find the funds to even get on waitlists for knowledgeable practitioners, almost none of whom accept health insurance because of the nature of the diagnosis and treatments. We have family and friends dealing with even more severe symptoms in their children, some with multiple children suffering, who have to pick and choose who gets what they need because it is so ridiculously expensive for simple blood tests and consultations. Let's continue to spread information and awareness and work for more research.
Prayers
Dear Senator Kennedy, thank you for everything yiu are doing to help families who are in desperate need for answers. We have been in an 18 year nightmare with our 20 year old daughter with PANS. Traditional medicine has failed us time and time again. Not to mention drained us financially, emotionally ,and physically. We need nation awareness and support. Thank you.
Such an important part of so many lives!!!!!!
Please help these children!!
This is vital! So many children are in crisis!
agreed
As a psychologist in public school, I can arrest that this is literally an epidemic with a skyrocketing number of children with one or more neuropsychiatric disorder.
I have many friends with children who have PANS. Please help these families.
MAHA!
My 13 years old son suffered at least 2.5 years going down the psychiatric path before a proper PANDAS diagnose was received.
We really need this There are so many suffering children!
Please help Tim and Marnie Salvatore’s family in Orchard Park, NY with their son struggling with Pans/Panda and a relatively new house that is loaded with Mold.