An Urgent Call for Integrative Neuroimmune Clinics
404 Comments
V
Virginia Brown
9 months ago
We need your help
E
Eslie Collins
9 months ago
I have a niece with similar conditions!
S
Sammie Rutledge
9 months ago
Please help our kids!
A
Anonymous
9 months ago
Please don't leave this condition Unnoticed.
J
Jill Koncaba
9 months ago
Please help us and our children
B
Becky Jimenez
9 months ago
A beautiful soul named Addie lost her life due to suffering from a neuroinflammatory disorder called Pans/Pandas at only 22! This needs to stop and help needs to be found for these families.
K
Keri Kane
9 months ago
PANDAS Awareness please
C
Cheryl Enck
9 months ago
Featured
My grandson suffers from PANDAS. Heartbreaking to watch him go thru this. Antibiotics and anti inflammatory medication helps get him thru flare ups, But his pediatrician often will not prescribe. It is so very sad when you know what he needs and can’t get it.
B
Brittany Klinger
9 months ago
The doctors have failed my son repeatedly, I had to figure all this out on my own. He’s better now!
T
Tracy Shaban
9 months ago
Please help us!
E
Emily Pryce
9 months ago
Raise awareness
A
Anonymous
9 months ago
There is such a need for this!
H
Hilary Washburn
9 months ago
Please, please I beg you help us. We have two children diagnosed with pans the last five years and my second grade son was so severe that he had to be medically homebound for three years. He could not leave his room, let alone wear clothes or eat or take showers because his brain was so inflamed. We were blessed with learning about Dr. Latimer who removed his tonsils and adenoids and then we paid almost $25,000 out of pocket for an IVG for him which brought us our child back. He’s only back 70% and we have been paying about $10,000 a year for the last five years in treatment for him alone. We also have an 18-year-old daughter who is diagnosed at 13 but has become so severe that now she is in crisis. Please, please help us. We have seen pediatricians from the force surrounding states and none will help us Monitor or children’s conditions. We are paying over $300 a month for a concierge service just to have access to a neurologist and pediatrician to help us manage these conditions. Please help us!
A
Allison Denning
9 months ago
Please help!!
S
Sharon Taylor
9 months ago
Parent of two teens with PANS
S
Suzy Hearne
9 months ago
Please make this happen!! God, I pray that you bring wisdom to the people making these decisions. Lord, help them understand thr importance of funding to find cures and bring awareness to these diseases/disorders.
L
Leona Gump
9 months ago
Happy to help
C
Cindy Lasseter
9 months ago
I lost my daughter 3 mo the ago to the psychosis caused by the brain inflammation. She needed to be in a hospital, but they only wanted to send her to a psychiatric hospital. They almost killed her in there twice. We spent hundreds of thousands of dollars trying to save her. Now she is Noone forever. What a horrible nation we live in that doctors know less about PANDAS than parents do. Shame on the medical community!!!
A
Anonymous
9 months ago
Please help these struggling families and children
R
Robin Prado
9 months ago
My daughter has lost four years of her childhood. Our kids need help!
We need your help
I have a niece with similar conditions!
Please help our kids!
Please don't leave this condition Unnoticed.
Please help us and our children
A beautiful soul named Addie lost her life due to suffering from a neuroinflammatory disorder called Pans/Pandas at only 22! This needs to stop and help needs to be found for these families.
PANDAS Awareness please
My grandson suffers from PANDAS. Heartbreaking to watch him go thru this. Antibiotics and anti inflammatory medication helps get him thru flare ups, But his pediatrician often will not prescribe. It is so very sad when you know what he needs and can’t get it.
The doctors have failed my son repeatedly, I had to figure all this out on my own. He’s better now!
Please help us!
Raise awareness
There is such a need for this!
Please, please I beg you help us. We have two children diagnosed with pans the last five years and my second grade son was so severe that he had to be medically homebound for three years. He could not leave his room, let alone wear clothes or eat or take showers because his brain was so inflamed. We were blessed with learning about Dr. Latimer who removed his tonsils and adenoids and then we paid almost $25,000 out of pocket for an IVG for him which brought us our child back. He’s only back 70% and we have been paying about $10,000 a year for the last five years in treatment for him alone. We also have an 18-year-old daughter who is diagnosed at 13 but has become so severe that now she is in crisis. Please, please help us. We have seen pediatricians from the force surrounding states and none will help us Monitor or children’s conditions. We are paying over $300 a month for a concierge service just to have access to a neurologist and pediatrician to help us manage these conditions. Please help us!
Please help!!
Parent of two teens with PANS
Please make this happen!! God, I pray that you bring wisdom to the people making these decisions. Lord, help them understand thr importance of funding to find cures and bring awareness to these diseases/disorders.
Happy to help
I lost my daughter 3 mo the ago to the psychosis caused by the brain inflammation. She needed to be in a hospital, but they only wanted to send her to a psychiatric hospital. They almost killed her in there twice. We spent hundreds of thousands of dollars trying to save her. Now she is Noone forever. What a horrible nation we live in that doctors know less about PANDAS than parents do. Shame on the medical community!!!
Please help these struggling families and children
My daughter has lost four years of her childhood. Our kids need help!