The government has finally committed to integrating palliative care services for children across the country. It has been a long and draining road but we have reached the outcome we fought for together. We have to keep watching to ensure these words turn into actual beds and medicine for the …
May 22, 2019
Final supporters
Please sign the petition ! ! !
Million for a Million Campaign. We need a MILLION adults to sign on behalf of the MILLION children in need of palliative care. It starts with ONE adult signing for ONE child in need...
This petition was started to draw attention to a Declaration made at a High Level National Stakeholder meeting for children with serious illness in Braamfontein, South Africa on 18 March 2019. The meeting was co-hosted by Patch-South Africa and the South African government's National Department of Health. The Declaration articulates the need for children’s palliative care to be recognised and for palliative care services for children to be implemented across the country.
PATCHSA 2019 DECLARATION OF CHILDREN’S RIGHT TO PALLIATIVE CARE
Remembering the ICPCN Declaration of Cape Town 2009,
Recognising our country’s ratification of the World Health Assembly Resolution 67.19 May 2014 “Strengthening of palliative care as a component of comprehensive care throughout the life course”,
We commit to working with government and all stakeholders having an interest in the health and welfare of children experiencing severe health related suffering, to implement paediatric/children’s palliative care throughout South Africa within both public and private health care sectors.
Realising that children are not small adults and that the spectrum of diseases including rare diseases affecting them is different, and that they are more vulnerable by virtue of the fact that they are dependent on adult caregivers for care and decision making.
We support the government’s National Policy Framework and Strategy on Palliative Care and call on government to implement this policy which was approved by the National Health Council in April 2017 with special provision for meeting the needs of children and their families.
We recognise that under Section 28 of the Bill of Rights in the Constitution of South Africa, government has a duty to realise children’s right to palliative care as part of basic health care services and as a component of Universal Health Coverage and that International human rights law obligates South Africa to provide generalist integrated and specialised paediatric palliative care services.
We call upon Government to find the budget to implement the policy and allocate resources, since according to Section 237 of the Constitution, government is required to perform its obligations diligently and without delay. The implementation is to include pain relief medicines for children and training on paediatric palliative care.
We call on all relevant stakeholders both governmental and non-governmental to commit to working together to implement palliative care for children throughout all provinces of South Africa.
This declaration includes an Appendix of recommendations arising from discussions at the meeting, structured using the World Health Organisation model for integrating palliative care in to the public health system and further proposes for similar integration into private health care for children in South Africa.
See Appendix
Updates
Reached 500 supporters
May 3, 2019
April 19, 2019
Reaching one hundred signatures feels heavy given how far we still have to go for these children. It is exhausting work to keep pushing this forward but knowing others see the necessity of this care keeps me moving.
Reached 100 supporters
April 16, 2019
204 Comments
I'm living with FOP. I'm in support of a pallative care policy under the SA health system. I believe the government should implement and support with resources the policy for all the children across the board rich and poor including children living with FOP.
As a pediatric palliative care physician who has witnessed the work of my PPC South African colleagues, I am a supporter of this important petition. So proud to stand in solidarity.
I have just moved to Australia after working in mostly rural healthcare in South Africa for 20years. There is a critical need for palliative care in South Africa!
I fully support this for the trauma we got through as parents,my four year old has a rare glioma cancer and the promulgation of this legislation will assist people who are going through the similar situations.
I support this call for an end to needless suffering and the integration of paediatric palliative care into both the public and private heath system to ensure the best possible care for children and their families
There is a desperate need for palliative care for children
Children in South Africa has the same rights as an Adult to Palliative Care.
Share Petition
Don't stop at signing, share the petition link with friends to multiply our impact
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The government has finally committed to integrating palliative care services for children across the country. It has been a long and draining road but we have reached the outcome we fought for together. We have to keep watching to ensure these words turn into actual beds and medicine for the …
May 22, 2019
Final supporters
Please sign the petition ! ! !
Million for a Million Campaign. We need a MILLION adults to sign on behalf of the MILLION children in need of palliative care. It starts with ONE adult signing for ONE child in need...
This petition was started to draw attention to a Declaration made at a High Level National Stakeholder meeting for children with serious illness in Braamfontein, South Africa on 18 March 2019. The meeting was co-hosted by Patch-South Africa and the South African government's National Department of Health. The Declaration articulates the need for children’s palliative care to be recognised and for palliative care services for children to be implemented across the country.
PATCHSA 2019 DECLARATION OF CHILDREN’S RIGHT TO PALLIATIVE CARE
Remembering the ICPCN Declaration of Cape Town 2009,
Recognising our country’s ratification of the World Health Assembly Resolution 67.19 May 2014 “Strengthening of palliative care as a component of comprehensive care throughout the life course”,
We commit to working with government and all stakeholders having an interest in the health and welfare of children experiencing severe health related suffering, to implement paediatric/children’s palliative care throughout South Africa within both public and private health care sectors.
Realising that children are not small adults and that the spectrum of diseases including rare diseases affecting them is different, and that they are more vulnerable by virtue of the fact that they are dependent on adult caregivers for care and decision making.
We support the government’s National Policy Framework and Strategy on Palliative Care and call on government to implement this policy which was approved by the National Health Council in April 2017 with special provision for meeting the needs of children and their families.
We recognise that under Section 28 of the Bill of Rights in the Constitution of South Africa, government has a duty to realise children’s right to palliative care as part of basic health care services and as a component of Universal Health Coverage and that International human rights law obligates South Africa to provide generalist integrated and specialised paediatric palliative care services.
We call upon Government to find the budget to implement the policy and allocate resources, since according to Section 237 of the Constitution, government is required to perform its obligations diligently and without delay. The implementation is to include pain relief medicines for children and training on paediatric palliative care.
We call on all relevant stakeholders both governmental and non-governmental to commit to working together to implement palliative care for children throughout all provinces of South Africa.
This declaration includes an Appendix of recommendations arising from discussions at the meeting, structured using the World Health Organisation model for integrating palliative care in to the public health system and further proposes for similar integration into private health care for children in South Africa.
See Appendix
Updates
Reached 500 supporters
May 3, 2019
April 19, 2019
Reaching one hundred signatures feels heavy given how far we still have to go for these children. It is exhausting work to keep pushing this forward but knowing others see the necessity of this care keeps me moving.
Reached 100 supporters
April 16, 2019
204 Comments
I support this wholeheartedly. I am privileged enough to have made some sort of plan via private insurance to support my children with their immune disorders. It is devastating to think about the children who will never be able to afford proper supportive care to simply have a chance at life. Please, please consider this plea.
I'm living with FOP. I'm in support of a pallative care policy under the SA health system. I believe the government should implement and support with resources the policy for all the children across the board rich and poor including children living with FOP.
As a pediatric palliative care physician who has witnessed the work of my PPC South African colleagues, I am a supporter of this important petition. So proud to stand in solidarity.
I have just moved to Australia after working in mostly rural healthcare in South Africa for 20years. There is a critical need for palliative care in South Africa!
I fully support this for the trauma we got through as parents,my four year old has a rare glioma cancer and the promulgation of this legislation will assist people who are going through the similar situations.
I support this call for an end to needless suffering and the integration of paediatric palliative care into both the public and private heath system to ensure the best possible care for children and their families
There is a desperate need for palliative care for children
Children in South Africa has the same rights as an Adult to Palliative Care.
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I support this wholeheartedly. I am privileged enough to have made some sort of plan via private insurance to support my children with their immune disorders. It is devastating to think about the children who will never be able to afford proper supportive care to simply have a chance at life. Please, please consider this plea.