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Free Our Health Data

Free Our Health Data

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Started by Anonymous 14 years, 10 months ago
Patients and patient centered care are at the core of a high quality, effective, safe, timely, efficient and equitable health care system and we know that when patients have access to data the make better health care decisions.
In order to have a transparent, participatory, lean and collaborative healthcare system - where patients are co-creators of their own health we need to have full and open access to our health care data.
Under federal law, every patient or a designated representative has the right to see and copy the patient's medical records but this access is often delayed or cost prohibitive.
We therefore call upon both the public and private sectors to "FREE OUR HEALTH DATA" to patients and provide them with the same access to their health care records as other members of their healthcare team.

Updates

December 11, 2011

Seeing this momentum grow reminds me of the years I spent fighting to get my own medical records released just to understand my own diagnosis. It is deeply moving to see so many people recognize that our health data belongs to us alone.

3 Comments

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Mark Becker
14 years ago Featured

about time. sick of being treated like an outsider when it comes to my own body and health history. let us see the charts.

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Jessica Fuentes
14 years ago Featured

My doctor tried to charge me $50 for a digital copy of my lab results. Absolutely insane that they can hold my info hostage.

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Sarah Stewart
14 years ago Featured

Its my data! I shouldnt have to pay a fortune or wait weeks to get my own medical records from the doctor. This is just ridiculous.

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