Sign Petition

A petition calling for direct real-time patient access to loop recorder, pacemaker, and cardiac defibrillator data

101 Signatures Goal: 1,000

Each year, hundreds of thousands of people are implanted with loop recorders, pacemakers, and cardiac defibrillators.

In addition to providing life-saving therapy, these medical devices collect and store advanced diagnostic information pertaining to the device's normal function and a patient’s clinical status. This information is transmitted to a secure and private network owned by the manufacturer of the device.

Some of the data collected is made available to clinicians through a secure website, enabling doctors the convenience of monitoring patients without the need for in-office visits.

Unfortunately, this data is not made directly available to the patient who originates it.

Access to this data can do more than just help patients take control of their disease. It may also help with timely identification of device-related malfunctions, and may ultimately contribute to better patient engagement and improved health outcomes.

Knowledge is power. And a patient privy to his/her data is an empowered partner in his/her own health and healthcare.

As a device patient, I know that direct real-time access to my device's data can help me track, understand, and manage my condition better, become more active in my care, and work more effectively with my healthcare providers.  I have the right and responsibility to care for myself, but cannot do so without information.

I hereby request that my device company give me direct real-time access to my device data.

It's my device, my data, my body, and my future. I want my data, and I want it now!

*please note: your email address will not be published


#icduser

#GimmeMyDaMData

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55

Signatures

  • 2 years ago
    Peter Schneider Australia
    2 years ago
  • 2 years ago
    yspsbtuvou Spain
    2 years ago
  • 3 years ago
    Thomas Davis United States
    3 years ago
  • 3 years ago
    Ed Lynch United States
    3 years ago
  • 3 years ago
    Vance POSEY United States
    3 years ago
  • 3 years ago
    Terry Hays United States
    3 years ago
  • 3 years ago
    Phil Rossiello United States
    3 years ago
  • 3 years ago
    John Murphy United States
    3 years ago
  • 3 years ago
    Rika de Jong South Africa
    3 years ago
  • 3 years ago
    Henry Ticknor United States
    3 years ago
  • 3 years ago
    Tony J Velez United States
    3 years ago
  • 3 years ago
    Mikkie Stump United States
    3 years ago
  • 3 years ago
    Susan Higgins United States
    3 years ago
  • 3 years ago
    Joan C. Kienlen United States
    3 years ago
  • 3 years ago
    Joan C. Kienlen United States
    3 years ago
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