International Trigeminal Neuralgia Awareness Day October 7th!
5,071 Comments
A
April Mosco
9 years ago
We need to bring awareness to this awful disease.
A
awilda davilla
9 years ago
cure soon.
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Rod Taylor
9 years ago
Please support Int'l TN Awareness Day...Thanks
K
Karen Cohan
9 years ago
My son has suffered from atypical TN for 17 yrs and is totally disabled by this excruciating pain. He has had many failed surgeries and procedures and is in pain day and night. It started with wisdom teeth removal. He has lost everything and lives with his Dad and me.
J
Jean Shultz
9 years ago
Pleading with you to take action regarding Trigeminal Neuralgia and all other facial pains. I have watched my daughter's face swell for years and she is in agony for days! Please add it to your health topics list. I don't think people are aware of this excruciating painful disorder...the pain felt is the worst pain known to man! Some. have committed suicide because of it! Please help!
M
Mary Anne Gladfelter
9 years ago
Please stop the pain.
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Sammie carmen
9 years ago
I hope this helps ❤️
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Jacqueline payson
9 years ago
Lets help the people realize this is a very painful serious disease. Need to be regarded as dont ignore it work on a cure.
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Natalia flores
9 years ago
I am a TN survivor
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Anonymous
9 years ago
Please make this a priotity - the suffering experienced by folks with this horrid disease NEEDS your IMMEDIATE and CONTINUING attention!!
M
Morgan Hutchinson
9 years ago
27 year old female, diagnosed with Atypical Bi-Lateral Trigeminal Neuralgia (Type 1 &be2) for 6 years now and have suffered for 7. I've been told multiple times I'm not a candidate for surgery but, maybe with a little more funding they can find an alternative procedure that I may be a candidate for.
J
Jan Faudoa
9 years ago
I also live with this Beast. This monster has destroyed my life. It is time for doctors and governments to to something.
P
Patty Calhoun
9 years ago
My 18 yr old daughter has had TN for two years. More neurologist need to be educated that this is not just a 50 year old woman's disease. We saw 4 neurologist who told us she was too young. A pain Dr diagnosed her with a diagnostic Trigeminal Nerve block and convinced her neurologist she had it. I knew at 4 mo that is what she had. She went through more pain and damage to her nerve than she should have had to. At MVD she had an artery and 4 tributary veins wrapped around her nerve like a paper clip. Took us 2 years to get to the point of surgery because some Drs were not educated enough on this disease.
C
Catherine cunningham
9 years ago
I have had TN for the last 2 years, life is horrific let's get this horrible condition out there so people become more understanding and more awareness is created and who knows better treatments available
C
Christina Hamilton-Tschopp
9 years ago
Along with Trigeminal Neuralgia, more awareness needs to be made about Occipital Neuralgia (I have both).
A
angel carter
9 years ago
TN has taken the life that i once had. I cant work, make plans to share time with family&friends. The pain puts me screaming on my knees and the meds arent helping,surgery didnt help either. We need better meds and treatment. Some of us cant live with this pain. We need to be recognized to get funding for research.
R
Rhieanna
9 years ago
I suffer every day with TN. As of right now I am in hospital as nothing is helping ease the pain this time.
D
DeAnne Mullins
9 years ago
Was dx with TN in 2008....it's horrific when in play. I am so thankful when I am not suffering and pray it never returns. So sorry for all who suffer
Y
yakub Karim
9 years ago
Trigeminal Neuralgia is an I never old disease it
S
Shelley Lundy
9 years ago
PLEASE LET PEOPLE KNOW. TN AND FACIAL PAIN IS REAL.MORE RESEARCH IS NEEDED.
We need to bring awareness to this awful disease.
cure soon.
Please support Int'l TN Awareness Day...Thanks
My son has suffered from atypical TN for 17 yrs and is totally disabled by this excruciating pain. He has had many failed surgeries and procedures and is in pain day and night. It started with wisdom teeth removal. He has lost everything and lives with his Dad and me.
Pleading with you to take action regarding Trigeminal Neuralgia and all other facial pains. I have watched my daughter's face swell for years and she is in agony for days! Please add it to your health topics list. I don't think people are aware of this excruciating painful disorder...the pain felt is the worst pain known to man! Some. have committed suicide because of it! Please help!
Please stop the pain.
I hope this helps ❤️
Lets help the people realize this is a very painful serious disease. Need to be regarded as dont ignore it work on a cure.
I am a TN survivor
Please make this a priotity - the suffering experienced by folks with this horrid disease NEEDS your IMMEDIATE and CONTINUING attention!!
27 year old female, diagnosed with Atypical Bi-Lateral Trigeminal Neuralgia (Type 1 &be2) for 6 years now and have suffered for 7. I've been told multiple times I'm not a candidate for surgery but, maybe with a little more funding they can find an alternative procedure that I may be a candidate for.
I also live with this Beast. This monster has destroyed my life. It is time for doctors and governments to to something.
My 18 yr old daughter has had TN for two years. More neurologist need to be educated that this is not just a 50 year old woman's disease. We saw 4 neurologist who told us she was too young. A pain Dr diagnosed her with a diagnostic Trigeminal Nerve block and convinced her neurologist she had it. I knew at 4 mo that is what she had. She went through more pain and damage to her nerve than she should have had to. At MVD she had an artery and 4 tributary veins wrapped around her nerve like a paper clip. Took us 2 years to get to the point of surgery because some Drs were not educated enough on this disease.
I have had TN for the last 2 years, life is horrific let's get this horrible condition out there so people become more understanding and more awareness is created and who knows better treatments available
Along with Trigeminal Neuralgia, more awareness needs to be made about Occipital Neuralgia (I have both).
TN has taken the life that i once had. I cant work, make plans to share time with family&friends. The pain puts me screaming on my knees and the meds arent helping,surgery didnt help either. We need better meds and treatment. Some of us cant live with this pain. We need to be recognized to get funding for research.
I suffer every day with TN. As of right now I am in hospital as nothing is helping ease the pain this time.
Was dx with TN in 2008....it's horrific when in play. I am so thankful when I am not suffering and pray it never returns. So sorry for all who suffer
Trigeminal Neuralgia is an I never old disease it
PLEASE LET PEOPLE KNOW. TN AND FACIAL PAIN IS REAL.MORE RESEARCH IS NEEDED.