International Trigeminal Neuralgia Awareness Day October 7th!
5,071 Comments
J
Janine Tozer
8 years ago
Let's raise awareness of this horrible disease
R
Roselien
8 years ago
Boyfriend struggels with it.
N
Nancy McGraw
8 years ago
I have had TN since October 2013. Have had MVD, Gamma Knife, and tried every drug possible. I have facial numbness due to the gamma knife and my face, mouth, and eye burns constantly. I would love to feel normal again.
D
Donna Anderson
8 years ago
Where can I purchase a trigemial neuralgia magnet for my car
N
Nina Echols
8 years ago
I to suffer from trigeminal neuralgia. It has been very hard because people do not understand. Please make that difference for us. Thank you!
M
Mary-Ann Amodea
8 years ago
I am a sufferer of TN like so many others who suffer in silence with this very painful disease. No matter what type of medicine one takes, it never takes the pain completely. So many of the treatments are medications that have dangerous or serious side effects and leaves one like a zombie unable to speak or drive. Please help look into what causes a=this horrible ailment and what may help control or limit it's effects so that people, their loved ones and friends/supporters can begin to live a normal life.
K
Kareel Anderson Percel
8 years ago
I am a sufferer. Ready for a cure.
D
Dave Stringfield
8 years ago
I Have had TN for 17 years. At the beginning it felt like I had a cut above my left eye when in the shower, then one day the electrical thunder bolts started firing off. I have had relatively good relief from Tegratol, but now it's efficacy wearing off. I fear the future.
M
Milena Pérez
8 years ago
Tengo neuralgia del trigémino estoy buscando información para decidir el tratamiento que necesitaré
C
Caressa Roy
8 years ago
Diagnosed 4 years. Cannot take the normal meds. We need more alternatives and docs who know about prevention. Body alignment. Allowing cranial massages for some as treatment. Including cbd & thc.
W
Warren gilbert
8 years ago
My wife has this and I swear it's almost as pianfull for me to see what she goes thru is as the pain she's going thru. I hate this disease.
A
Anne Johnson-Hassinger
8 years ago
Signed for a dear friend
M
Michael Jewell
8 years ago
More funding for research and single payer health care.
D
Diana Milton
8 years ago
I suffer from TN and it is the worst pain I can ever imagine. We need a cure as soon as possible to help the many people who live with this. There are so few specialists who know how to treat this condition. I basically keep my pain low with medicines but I don't want to take 4 different ones daily just to get through the day. The medicines could be damaging my body. I belong to an online support group and we have lost or almost lost several members to suicide in a short amount of time. We desperately need you help. We can't keep losing people from this pain.
M
Miranda kirsch
8 years ago
I've been battling TN since I was three, it's time to find a cure!
W
Will Wing
8 years ago
I have Trigemenal Trophic Syndrome. That's TN x 10.
Rhyzotomy,,MVD are deadly. Don't let a lying surgeon tell you different.
R
Robin Chacon
8 years ago
Please provide funding for this very painful disease.
J
Julie peterson
8 years ago
My mom has this and it's horrific
M
Melissa Carrau
8 years ago
Please add Trigeminal Neuralgia to the health topics list.
D
Dave Grabow
8 years ago
There's always hope, just don't lose sight of it. Love and understanding is more powerful than any doubts . Never sweat the little $h*t & everything is little $h*t. THE POWER OF LOVE IS MIGHTY!
Let's raise awareness of this horrible disease
Boyfriend struggels with it.
I have had TN since October 2013. Have had MVD, Gamma Knife, and tried every drug possible. I have facial numbness due to the gamma knife and my face, mouth, and eye burns constantly. I would love to feel normal again.
Where can I purchase a trigemial neuralgia magnet for my car
I to suffer from trigeminal neuralgia. It has been very hard because people do not understand. Please make that difference for us. Thank you!
I am a sufferer of TN like so many others who suffer in silence with this very painful disease. No matter what type of medicine one takes, it never takes the pain completely. So many of the treatments are medications that have dangerous or serious side effects and leaves one like a zombie unable to speak or drive. Please help look into what causes a=this horrible ailment and what may help control or limit it's effects so that people, their loved ones and friends/supporters can begin to live a normal life.
I am a sufferer. Ready for a cure.
I Have had TN for 17 years. At the beginning it felt like I had a cut above my left eye when in the shower, then one day the electrical thunder bolts started firing off. I have had relatively good relief from Tegratol, but now it's efficacy wearing off. I fear the future.
Tengo neuralgia del trigémino estoy buscando información para decidir el tratamiento que necesitaré
Diagnosed 4 years. Cannot take the normal meds. We need more alternatives and docs who know about prevention. Body alignment. Allowing cranial massages for some as treatment. Including cbd & thc.
My wife has this and I swear it's almost as pianfull for me to see what she goes thru is as the pain she's going thru. I hate this disease.
Signed for a dear friend
More funding for research and single payer health care.
I suffer from TN and it is the worst pain I can ever imagine. We need a cure as soon as possible to help the many people who live with this. There are so few specialists who know how to treat this condition. I basically keep my pain low with medicines but I don't want to take 4 different ones daily just to get through the day. The medicines could be damaging my body. I belong to an online support group and we have lost or almost lost several members to suicide in a short amount of time. We desperately need you help. We can't keep losing people from this pain.
I've been battling TN since I was three, it's time to find a cure!
I have Trigemenal Trophic Syndrome. That's TN x 10. Rhyzotomy,,MVD are deadly. Don't let a lying surgeon tell you different.
Please provide funding for this very painful disease.
My mom has this and it's horrific
Please add Trigeminal Neuralgia to the health topics list.
There's always hope, just don't lose sight of it. Love and understanding is more powerful than any doubts . Never sweat the little $h*t & everything is little $h*t. THE POWER OF LOVE IS MIGHTY!